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Avatar universal

when to see the gp/neuro

Hello,

Currently I am on my way to a diagnosis I have been told I am possible MS at the moment.

Over the past couple of weeks my headaches/pains which I have had for a couple of years have become much worse and intense. The other day I lost colour vision in my right eye, but only briefly. I thought it was my glasses so gave them a clean and rubbed my eye (I don't think it was this that casued it). Eventually it went back to normal. I also get pain over my eye and aches around the outside. I am not due to see my neurologist until February. When you get these changes is it wise to see your GP or do you wait and tell your neuro on your next appointment? they always say to keep a log of symotoms and present them on your next visit. I don't like to waste their time. Thanks for your time and take carex
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Avatar universal
Yeah it helps, thanks for your reply. All the best with yourself
Helpful - 0
667078 tn?1316000935
I personally see my GP whenever I have something that is truly bothering me which is not often. Many things are not MS and have no clear cause in my case. Every human machine works a little differently because we are truly organic. Doctors first of all know little about the human body. The way the medical system is set up they have to solve things fast and some things are not that easy. My doctors tell me I am just too complicated.

Our medical system is set up on fixing broken things and for many things there are no clear fixes. I do not worry about diagnosis, I look at symptoms that really bother me. Somethings take years of tweaking to get them better.  Often I use hypnosis and mindfulness meditation. The advantage is I am taking control.

My health care is beyond control with MS, asthma, migraines, thyroid, and stage IIIC cancer. I control my diet and exercise and do what I can before I call a doctor or nurse.

My health team is my GP, pain clinic, MS Specialist, and cancer team and a psychologist who specializes in chronic conditions. Mostly what I get is I do not really know how to help. My pain clinic PA is my best help at this point I see her monthly. We only look at symptoms everyone else has to diagnose it which wastes too much time. The therapist helps a lot with hypnosis and mindfulness. I never thought I would be into either since I skeptical but they do put my care in my control and I like that. I take very little medicine these days because of these practices. With minfulness I can see what hurts on me and I can reduce stress which helps with the pain. Hypnosis is distraction which helps with pain. My GP also is good at treating symptoms and not caring what its called.

I thought I would be diagnosed with MS and then they would know how to fix it. They know so little about MS. They do not know much about my cancer either. None of the doctors lives in my body so they do not know me like I know me.

With both diseases you have to live with uncertainty and be okay with it. It took me some getting used to. I no longer worry about my MS at all. Both it and the cancer are going to do what they are going to do. When I can't live with a symptom I call one of the professionals. I do not expect them to solve it. I just hope they can help.

I have had MS 47 years and for over 40 years I did not know I even had MS. I learned to live with most things. When you are new to diagnosis you worry about every little thing and most things have nothing to even do with MS so I run it by my GP first. Most of it is fear of the unknown and MS in unknown.


It gets easier. Alex
Helpful - 0
3054080 tn?1358722856
Hi, I'm in the same sort of predicament. I don't have any type of diagnosis, probable or otherwise yet;still going through the testing phase. I know what you mean about not wanting to make a big deal over nothing. Of course, wouldn't you know my situation happened on a weekend :/

I've decided I'm going to go ahead and contact my neurologist on Monday. I think we tend to be too concerned about what the doctor will think and logically I know that if it is a concern we should not hesitate to contact them.

Lol, I don't know how much my response has helped, if at all. but I understand.

Hugs,

Minnie
Helpful - 0
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