Myelodysplastic Syndrome Community
42 Members
Avatar universal

Anyone still on the site?

I see some old posts.
Anyone our there?
2 Responses
5114708 tn?1363805872
I am! I haven't seen anyone post on here yet. My girlfriend has been diagnosed for over a year now.
Avatar universal
Hi,Glad someones on here.

I was diagnoised about a year or two ago with MDS.
I also have Lyme disease,EBVand MTHFR.
My WBC is getting lower and I am very weak and spacy. Don't know what this is from.

How is your girlfriend? They told me to just watch it.
Dr's drive me crazy!!
Bad day today, took folate and seem to be having herx reaction.
Nice chatting with you.
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