Myelodysplastic Syndrome Community
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Avatar universal

What is next

Hi! I am new to this site but not new to MDS, I have been on decitabine treatments for 6 months, my blasts are at about 5% they were close to 3% when I started.  Not sure what to do now, nor is my onc.  He is going to talk with Dana Farber to see what they recommend, in the meantime, is there someone out there who was successful with treatment?  I did not choose to go with the transplant because of previous medical issues, so not sure where to go now.  I am not having treatment at e moment, however I am concerned.  Counts are normal for white, red & platelets are low any suggestions would be appreciated.
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Avatar universal
Contact the Aplastic Anemia and MDS Foundation as they can connect you with other patients who are using Dacogen through their support connection network, www.aamds.org.  Hope this information helps.  
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