I've come and gone from here over the years as my symptoms have come and gone, but since I have a disturbing new set of problems and I'm not sure where to go, here I am again.
The shorthand of my story is:
-Crazy MS-like symptoms appeared in 2010; I was 32
-MRIs, EMGs, blood tests showed nothing and so I was sent away
-In 2011, more and different symptoms sent me to a new neurologist, neuro-ophthalmologist, and more doctors, again with few findings, except: 1) "blurry" optic nerve disc in my right eye; 2) abnormally brisk bilateral knee-jerk reflexes; 3) cervical arthritis
-The docs sent me away suggesting I should come back for a follow up if a) I become incontinent, b) I have double vision for longer than 1 week, or c) I can't walk for longer than 1 week.
-Several months after the last visit, I started getting torturous "cluster headaches" in my right eye almost daily. They stopped after one month.
Most of the symptoms I had have improved, although I still get a lot of tingling and electric-shock sensations, my vision blurs on and off, etc.
But a few weeks ago, I woke up with a dull ache in both of my arms, shoulders, forearms, fingers, chest and lower jaw. It felt like it was deep in my bones, and became unbearable. Painkillers did not work. It has happened 3x now.
I just realized that the arm/shoulder/hand pain is a lot like the pain I had in my right eye...over 5-10 minutes there is a dull ache and then within a minute or two, it's a throbbing, deep pain. Since I know I have cervical arthritis (at 35?!), I am inclined to investigate that first, but even for that, I am not sure what type of doctor to go to. Or if there is any point--I guess at this point all I'm trying to do is find out what is wrong with me and I guess treat these acute episodes of unbearable pain. Spinal surgery at my age doesn't seem like an option, even if that were the cause. I just don't know what else to do. I can’t live like this forever.