I've been trying to figure out what unknown disease I had for the last five years and I feel like I'm starting to lose my mind. I've already been checked for the basics (Lyme, b12, etc) over the years and have had a few MRIs. I've always thought this might be an autoimmune disease as well, but my AMA tests always come back fine. I know it has to be some rare disease that my doctors are not aware of. I'll list my chronological symptoms over the years and how they've progressed. Any ideas or insight would be greatly appreciated.
Started with Numbness, tingling, burning and slight lack of sensation in my toes.
A few months later it had spread to my arms.
When rolling my eyes to the top of my head, my left ear would vibrate.
Numbness, tingling, burning and slight lack of sensation has now spread all the way up my arms, legs and groin.
When I get the chills it only affects the areas my numbness has not yet reached.
Getting harder to tell when urinating and sexual performance has decreased when the numbness hit my groin.
Numbness, tingling, burning and slight lack of sensation has reached the top of my head and is moving down.
Lots of pressure/tingling in head and getting hard to concentrate, kind of feel like I'm always in a foggy state - This one is very hard to deal with on a daily basis.
Neck has become stiff and can hear 'crackling in neck'
Feels like my eyesight is getting a little worse.
Random muscle twitching in top of head (imagine clenching your jaw) and eyelids twitching as well.
The tingling has reached my chest and now I can feel my heart beat 24/7. This one is also terrible and hard for me to deal with on a daily basis, especially when trying to sleep.
When having a bowl movement, I get the chills. They smell is getting consistently worse and I think they are becoming smaller/thinner.
When my stomach growls I can hear the 'cracking' in my neck.
This is pretty much where I am at today. I'm sure I missed a few smaller symptoms, but it has taken a little over 5 years to get to this point. If anyone has any ideas or leads, I would greatly appreciate it.