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1257808 tn?1322762215

9 years continues headache, 24hrs\7days\9years

Hello, nice a day. I have this problem: chronic continues headache evry single minute during last 9 year approxmitly without significant causes & all investigations, images,.. etc are normal. No medication affect on headache  or control it. I see alot number of doctors & try doffrent treatment like acupuncture & magnetic energy therapy but no result. I have other symptoms, some of symptos come &back &others daily or like daily, but no symptom continues evry day & evry single minute during all this period like this headache. I have also sleep problems which begin before this headache. I have other symptom may i write about it later. I hope there is some one can helping me to know what i have? whats my problem? which can cause continues headache for long time & no medication affect on it with normal results for investigation? I loss control of my life! ifail in my life & my study with unknown causes & im in pain all time.
19 Responses
1093617 tn?1279302002
MEDICAL PROFESSIONAL
Thank you for your question. Although without being able to examine you I can not offer you the specific advice on diagnosis and treatment that you need, but I would try to provide you some relevant information about your health concern.

For persistent & recurring headaches, possibilities like migrainous, cluster, tension and refractive errors that need to be evaluated thoroughly with the help of a neurologist here. Migraine like headache can be throbbing, one sided of face & head and preceded by aura (starts with blurred vision). Cluster headache may appear as burning, explosive in nature and tear appears from eyes. Tension headache originates with stress and anxiety disorder. Please arrange an appointment with a neurologist right away who will evaluate the further underlying disorders by clinically examine you & ordering MRI or CT scan here that may be the main reasons of your headache attacks & other symptoms and can provide you an appropriate treatment. Hope this information proves helpful to you. Take Care & Regards!!!

1257808 tn?1322762215
Thank you for your answer.

I was meet at least 2 neurologist. & i did 2 CT-scan during first 5 years after i have this headache. Both CT-scan were normal, nothing was observe.
I meet other spechaist for other symptom or try to have answer.
All types of headache you was tell me about it, does not describe what i have & its diffrent. Its not migrine or clustures or vascular headache. & its also not tension headace. Its realy difference with unknown causes. all days evry my last 9 years i lived with this very bad headache not only evry days but evry minute without any explanation or answer or medication affect on it. nothing.
1257808 tn?1322762215
THESE SOME SYMPTOM I HAVE, I HAVE IT DAILY OR LIKE DAILY OR MUST TIMES DURING LAST  9YEARS:

-24hr headache
-sleep problems
-general fatigue &tired
-psychological changes (nervous, tension, depression, stress..)
-emotional changes
-obesity (sometimes unintelligible gain weight (mainly) & sometimes unintelligible loss weight) with changing my appetite.
-l cannot study
-loss of concentration
- affect on my memories & remember words or other language
- change my behaviour or desire

THERE ARE OTHERS SYMPTOM BUT ITS PERIOD LESS THAN OTHER SYMPTOM I WAS MENTION IT ABOVE. Iwill write it as soon as posible.

Can you suggest any test to determine what i have? new one.
Thanks
1257808 tn?1322762215
Hello.

My headache feature is not on one side, its on both side & in sever episode may include face &neck.

The headache is may increase due to Physical exertion  but in general, my headache is may increase the severity of the pain with factors or without, so i cannot control it or manage my life according to it.
Im not alcoholic.
Im not smoking.

I have G6PD .

Im male, single, 25years, I have the headache between 16&17 old.

******************

I have other systemic symptom with unknown causes, all investigations, tests. U\S,... normal.
like:
GIT problems &general abdominal pain.
Back pain spechal lower part
Chest pain
Increase breathing rate
muscle weakness & sometimes spasm
feal hot in lower & uper limp joints
i feerl weak in perpheral like hand, arms, foreams, foots.
I drink alot & i have polyuria
i sweat alot &quick.
i feel runny nose, but not all times.
nausia
numbness
heard in left ear is weaker than right one.I suffer from time to time in the ear defect similar to that which occurs in the aircraft when taking off and upset pressure due to rise.
sometimes i do not natural movement to my limb spechal my foot to feel better, & i cannot explain why?
sometimes tremor.
all symptoms above are not continues, its go & back, & witth normal results.
Im in pain all the time, but without know the cause.

SO, WHATS NOW?
1257808 tn?1322762215
Hello.

My headache feature is not on one side, its on both side & in sever episode may include face &neck.

The headache is may increase due to Physical exertion  but in general, my headache is may increase the severity of the pain with factors or without, so i cannot control it or manage my life according to it.
Im not alcoholic.
Im not smoking.

I have G6PD .

Im male, single, 25years, I have the headache between 16&17 old.

******************

I have other systemic symptom with unknown causes, all investigations, tests. U\S,... normal.
like:
GIT problems &general abdominal pain.
Back pain spechal lower part
Chest pain
Increase breathing rate
muscle weakness & sometimes spasm
feal hot in lower & uper limp joints
i feerl weak in perpheral like hand, arms, foreams, foots.
I drink alot & i have polyuria
i sweat alot &quick.
i feel runny nose, but not all times.
nausia
numbness
heard in left ear is weaker than right one.I suffer from time to time in the ear defect similar to that which occurs in the aircraft when taking off and upset pressure due to rise.
sometimes i do not natural movement to my limb spechal my foot to feel better, & i cannot explain why?
sometimes tremor.
all symptoms above are not continues, its go & back, & witth normal results.
Im in pain all the time, but without know the cause.

SO, WHATS NOW?
1093617 tn?1279302002
MEDICAL PROFESSIONAL
Thank you for your question. There can be several reasons of your all symptoms and sounds more like any neurological disorder, although without being able to examine you I can not offer you the specific advice on diagnosis and treatment that you need. Please consult a neurologist as soon as possible. Hope this helps.
1257808 tn?1322762215
Thank you for your helping.
what are you Suggection? & what i say to next nurologist?
1257808 tn?1322762215
THESE SYMPTOM, I FORGET WRITE IT:
When I want to write with the pen, I feel difficulty in the maintenance of the pen &start writing –special when I start- & I feel that heavy pen, &my hand gets tired quickly, &my arm is sweating alots.  

JUST TO KNOW:
I was meet other specialists, like: 4cardiologist, pathologist, 3psychiatrist, psychologist, 5internal medicine doctors, endocrinologist &MORE
1257808 tn?1322762215
The only thing observe on EEG IS:
Abnormal EEG showing evidence of bilateral frontal delta activity discharge with eventual generalization.

but my last neurologist cannot explain why? or the causes, & the CT-scan was done appear normal, & he said its not problem or mean anything.
1257808 tn?1322762215
About two years ago, are suffering from hallucinations during sleep, and I see things like a real, even when I shut my eyes I see it, and became afraid because of sleep in the dark, then turned not to sleep in the dark to the custom, and later became a sleep in the dark, naturally, but since two or Become a little more afraid to sleep in the dark, and became afraid to close my eyes at the beginning of sleep and I can not sleep in the dark
***********************************

Today, i have new symptom:

i feel like nerve pulse in my Rt middle arm extends to Rl little finger, whats that mean?


************************************

What are differntial diagnosis of my case?
thanks
1257808 tn?1322762215
I see new doctor today, &he give me this medcation:

Flupentixol &melitracen tablets
Paroxetine

What are your sugeetion?
thanks
1257808 tn?1322762215
my condition still worse.
nothing helping me.

I dont know what i do with my headache & sleep problem .

any  suggection?
Avatar universal
Dear Mr. Alsaihati,
Since your hearing symptoms and occasionally runny nose can suggest a serious sinus cavity infection, which would indeed cause the kind of headache you have, I would suggest you go to an ear nose throat ENT doctor.  When you see him, describe to him as best you can what your awful headache is like, mention your hearing and nose symptoms, and he will know what to do.  He'll take a special scope and look into your nose, your ears, perhaps order a different scan of just your facial cavities, maybe do a hearing test, and it COULD BE that he'll find something going on in your ears and nasal cavities that is giving you this terrible headache.  He would probably use an antiseptic solution to clean out your sinuses, perhaps give you drops for your ears and a spray for your nose, and also give you antibiotic medications, to clear up any infection you may have in your head.  OR he may find an obstruction somewhere in those areas and refer you to a surgeon who can remove it, and that will make your headache stop.

While you are waiting for your appointment with an ENT doctor, you MUST return to one of your neurologists.  You should describe in great detail what the headache is like, tell him you're visiting an ENT physician, and tell him you desperately need some medicines to help you sleep and also to make the headache stop.  Then ask him to perhaps do an MRI scan, sometimes they will pick up what a CT scan will miss.  In addition, you could ask him if there's a chance you have one of the following:  Some sort of meningitis or encephalitis going on (infections in the brain), or possibly a lesion that didn't show up on the previous CT scans, or hypertension and high blood pressure, or a possibility of seizure activity.  Let him decide on various tests he can do, to get to the bottom of this, which would include of course the MRI, also bloodwork to be checked in the lab, and maybe another lengthier EEG (24 or 48 hours, they attach wires to your head and you carry over your shoulder a little halter machine).  

In the meantime, I have some home-care suggestions to hopefully help you.  First, keep in mind that lack of sleep can cause a lot of your other symptoms.  So, may I suggest you go to the drugstore and buy some ordinary sleeping pills, like Tylenol PM or whatever the pharmacist suggests.  OR you can go to a health food store and the clerk in there should be able to guide you to some good sleep herbal medicines, like Melatonin or whatever they suggest, a natural ingredient to help you sleep.  Next, perhaps set up a few professional Swedish massage treatments, that can help headaches a lot, and if you find that helps, then also take some very warm tub baths before bedtime, heat helps pain and encourages sleep.  You could also visit an allergist, let him do a little skin test where they determine if you're allergic to some sort of food you eat all the time.  And then there's coffee, if you would drink just a half cup of coffee in the morning, see if it eases up your headache, and if that particular thing helps you, be sure to report it to the neurologist you will be seeing.

In summary, I really think you should go to an ear nose throat ENT physician, I am thinking it just may be some sort of problem with the sinus cavities, which can be connected to your hearing situation, and the whole works can give you an endless headaches (and fevers too).  Also, you must return to one of your neurologists and suggest an MRI, and ask if there's any chance this is a blood pressure problem or brain infection, and see will he give you medicine that is much stronger than what you've been given before, including a new sleeping pill type drug.  While you wait to see these people, get some over-the-counter sleep medicines, maybe get some professional massages, and try a half cup of coffee in the mornings.
GG
1257808 tn?1322762215
After my headache problem begins, i was see many ENT doctors.
They are not found any thing explain my headache.

yes, at recnt days i have sinusitis, but before i do not. I use the medication of sinusitis, but my headache not relife.
Avatar universal
Go back to one of the ENT docs, especially since you have sinusitis right now.  And also remember to go back to one of your neurologists.  This headache HAS to be treated.  I mean, there IS a cause of it somewhere, and those are the two specialists that can find it.  And be sure to mention to the neurologist a question about hypertension.
1257808 tn?1322762215
I see many, many doctors during all  these years but no one was helping me.
I was use drugs for hypertension managment but has no effect on my headache.
Now i feel intense heat inside my head, ankle & wrist mainly during my sleep,, read this topic:
http://www.medhelp.org/posts/Neurology/My-head-is-boiling/show/1304261
I talk about this problem there.
Im realy confuse.
Avatar universal
Okay.  Let's go with the hypertension thing for a moment.  I hope you did not stop your medicines for that.  But in any case, whomever prescribed those to you, ALSO go back to him, let him investigate and see if you need better medications.  Typically hypertensive people have to make changes to their drugs every few years to stronger and stronger stuff.

This heat or fever thing, it suggests what I've thought all along, which is an infection of some kind, be it in your sinus cavities, or an infection in the brain, which can be something like meningitis.  But I think it's in your sinuses, you've got a raging infection, and it's got to be cleared up.  See, you've had this going on a long time, and just because a doc couldn't find it somewhere back in time, doesn't mean you don't have a problem now.  They could have missed it the first go-around.

I understand completely that you've seen a lot of docs and nobody knows what's going on, and no matter what you do, you have this 24/7 headache.  So, I've given you my very best thoughts on what might be going on, and I suggested what docs to go back to, and things to ask them, and so forth.  I cannot argue my position.  I can only tell you what I think.  If you think it would be no help to go back to some of these docs and get a more intensive workup, then that's your perogative to continue to wonder.  I wish you the best.  
1257808 tn?1322762215
Ok.
thank you for your words first.

About hypertension, I did not have it when I was get this headache, but after few years i have some chest problem & my blood pressure increase & cholestrol level increase also. about my chest pain & difficult breath problem they tell me that does not know why but they was give me some medication to manage blood pressur & cholestorol.

About sinuse problem, after this headache happen, i was see doctors & he do investigate for sinuse problem & x-ray for head & neck but nothing apear.
know my headache be more sever with extra problem like sinusitis, photophobia, intense heat inside my head, ankle &wrist, more numbness .... etc

I do not tust doctors any more, because they are not help me before until now with all these pain.

know, im not sure about see new doctors again is the corrrect choise.
1257808 tn?1322762215
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