ALS SYMPTOMS - SCARED

[jake454]

Dear Doctors,

This is my question. For the past two years, gotten a little worse over this time period, I have had the following symptoms:
Leg pain and weird feelings in legs - legs feel like they are cold, and weak with muscle twiching in the knees, thighs and calves. It is worse when I am sitting down then when I am moving around
Muscle cramps in hands and feet and arms
When standing still, feels like I need to sit down but balance is fine
I can run on a regular basis, climb stairs, workout without any weakness or tripping.

I had an EMG done in April 2007 and I have having a MRI on May 2 2008. Th EMG results came back normal:  he said I had VERY minor abnormalities but nothing to worry about.

I saw a neuro dr which didnt think I had ALS since there were no signs of atrophy or muscle weakness. What could be going on? is it MS? I am really scarwd since it has been going on for so long and gotten mildly worse. I am a little comforted by the fact that I can still do day-to-day activities. It feels like a dense vibrating feeling in my calves and knees. The weakness is mild like I said but I need for it to be resolved. I am scared it could progess further. Is it 2 years without serious weakness a sign that it isnt ALS or MS???

Please help.

Thanks, Jake

[DrNoopurMD]

Hi,

How are you?
You have not mentioned about MRI report, was it normal?
There is a possibility that your symptoms are due to fibromyalgia. Fibromyalgia is characterized by muscle weakness and twitching.
In some patients with fibromyalgia vitamin D levels were found to be low. Such patients showed radical improvement in symptoms after Vitamin D supplements.
Regular exercise, massaging the affected muscles and nutritional supplements will help.
Please discuss this possibility with your treating doctor. Keep us posted!

[jim5]

Yes,for as long as I have been dealing with this my lower leftside hurts badly when I am trying to sleep but before all this it was my lower back. A cat scan showed that I had to bulging disks but after changing my working habbits that caused it, it has felt much better. But my side is worse. Go figure.

[tonyad]

Count me in! Been like that way off and on for a while but notably worse the past 3 or 4 weeks. I was actually put into hospital a week ago and given IV steroids. It seemed to help quite a bit but Yesterday it started rearing its ugly head again!

Do either of you have the low back pain/strain and rib area hurt/soar/fell constricted??
Thanks in advance for the replies :)

Chow,
~Tonya

[jim5]

Not sure if anyone really helps on this forum or doctors for that mater. But you seem to have the same problems that i do. Maybe we can compare notes to figure this out.Just after a year ago my legs started with the feeling of being cold then my calve muscles started twiching soon after. Now my feet and legs twitch constantly and have a vibration feeling in them much worse in my left foot. My calve muscles hurt constantly now and getting worse. I need some relief soon. Please comment. I can tell you what I think couldhave caused this .Maybe yours too.