Wow! Almost all of your post sounds like what I've gone through!
At 23 years old, I was having chest pains and found out that my spine was sticking into my heart causing it to spasm. My curves were 78 degrees and 84 degrees (a vertical "S")! I too, was told that if I didn't have surgery, I would be crippled or one of my major organs would be punctured.
I was supposed to have one six inch rod, but, once they got in there, they ended up needing eight! That was done in Orlando, FL. My husband is a land surveyor and was hit by a car, while doing a survey on a bridge. His knee caps were crushed and he ended up in a wheelchair (God healed him, by the way.) He was 6 ft. 3 in., and 263 pounds, and I tried to lift him and his wheelchair over the stoop at our house. I had to have another surgery - also done in Orlando. The doctor snipped a nerve, leaving me in severe pain with a "dead leg". I couldn't stand for even two minutes without SEVERE pain. I remember many times I had to sit down on the floor in the middle of Walmart, because it hurt to breathe. After LOTS of tests, both orthopaedic and neurologic, I needed another surgery. When he got into my back, he found that, because I was using my pelvis to do things that my whole back should be doing, my pelvic bone was pretty much mush. He ended up adding 4 more rods. I now have rods from my neck well into my tailbone! He was in Dothan, AL.
As for no pain, you can tell that doctor that he doesn't have a clue!! I have been in pain 24/7 - especially at night. If I roll over it feels like a knot tightening in my back - SEVERE pain! I take Demerol with Phenergan when I just can't deal with the pain any more. I also take sleeping meds, but none of them work. I don't sleep well at all. I used to be on the Morphine patch, too (the strongest there was), but I was too afraid that I would become addicted. I have a very weak stomach so pretty much every pain med that I've ever been on has made me sick as a dog! They even tried me on Oxycontin, but it put me in the hospital in a semi coma. Prayer is the only thing that makes life bearable!! God gives me peace when I'm in the most pain! He even makes me a happy person, even though I have to suffer a lot. He's also what gets me through the nights! When I'm awake at 3am, I can talk to Him, and I know He is listening!! I don't have to be afraid, bored, or lonely!
I was a Christian school teacher of fifth graders (which I adored), but finally got to a point that I had to hold on to their desks in order to get from one point to the other. I took a deep breath to make it from one end of the hall to the other. My hip locked on the playground one day, so I decided that one of the kids could be hurt and I wouldn't be able to get to them. I gave it up at that time. I tried going to a doctor at the Houston Orthopaedic Clinic in Columbus, GA. He said that another surgery was too dangerous! Now, I write, watch tv, play computer games, read, and do crafts. I use what I've been through in the books that I write. God ALWAYS works EVERYTHING out for the good!!
As for SS Disability, I was unable to get it, though I worked for almost twenty years and paid LOTS of SS taxes. They said I was too young!
I hope I've helped! Feel free to email me if there is anything that I can say or do to help. Know that I am adding you to my prayer list and will be praying fervently for you!
Have a GREAT day!
I live in North Myrtle and have had no luck with doctors here. I had Harrington Rods put in in 96 and am 27 years old. I've only been to the "doc in box" places....access medical and little river medical clinic. Their eyes just glaze over when i mention pain and i actually saw a note on my chart while waiting for the doc to see me that said "per front desk-do not give painkillers." Then the doc proceeded to tell me horry county is one of the worst places to live if you need pain management. On that note, i wish you good luck and if you find a good doc in the area, please tell me.
There are some great neurosurgeons in NY. I go to Dr Mincy and my mother goes to Dr Hrustirch (sp). They're fantastic.
I had HArrington Rods placed in my back 2 years ago for scoliosis.
They fused me from T2 to T12. I was great after the surgery but went baqck to work and really screwed myself up anyways I felt like I needed to say look up Dr. Serena Hu at UCSF Spine MED center in San Francisco, CA. She is an awesome spine doc just google her to see all shes done in the spinal community. www.ucsfhealth.org
UCSF spine care center 415-353-2954 415-353-2739
I can't believe this !!!!!! I TOO had a surgeon tell me in 1983 (at the age of 13) that " none of my other patients have complained of this pain before".
My husband gets so mad at me . . . "if your back hurts why don't you just go to the doctor?" . . . . I may have only been 13 years old, but now at the age of 40 my thoughts are "Why? No one will believe me anyway."
Best of luck . . . if you find a doctor in S.C. pass along the info - I'm in N.C.
Hello, I hope I can help you with this great doctor I went to for my back surgery. He is in Augusta Ga. not far from SC.
I have had a total of 7 back surgeries due to scoliosis. I was in Shrinner's Hospital when I was 7 years old until 16 and I was dismissed. After they finished with 2 differant upper surgeries stayed there almost a year before going home. I was in many body cast and a brace. I did work for about 27 years. Until I had one of the surgeries in 1994. I was told I had a tumor on the spial cord and some cysts. Unfortunately the lamb bone Shrinner's used to replace my spine had the tumor in it. They had know way of checking it back in the mid 50's. Thank God it is not cancerous and it is a slow growing tumor. This past year 2010 I had 2 more surgeries. My neck was leaning forward and when I walked I was leaning forward. My whole body ached and the lower part of my spine. It was twisting because the tumor had grown and was putting pressure on my hips, legs, alot of weakness. This was done in Augusta by a neurosurgeon. He put the plate in the front of my throat. Then the next day, I had the upper surgery on my back with the titanium rod. The doctor used laser to get as much of the tumor he could. The problem it left me with Foot Drop.He stated to give it time to heal and the lower section of my back should get better. Well, with my luck it got worse. I went then to see an orthopedic doctor and after he checked my MRI I felt as if I were sleepig on rocks. The doctor stated he could help me with my problem. So then from where the last doctor put in the rod, he put the rod from there to my tail bone. Yes, I still have pain, but I am trying to deal with it one day at a time. At least I am off those terrible pain killers, only Aleve. I pray each day to get better or to accept the problems I have know control with. This doctor only specializes in scoliosis patients .You can contact me at ***@**** and I will give you the Orthopedic doctors name. He is so very thorough and has very good bed side manor. If anything changes I will go back to him.
I wish you the very best of health dear friend.