i dont know much about cysts, but i recently found out i have a small subarachnoid cyst of the posterior fossa. so far i havent found any evidence whether or not this causes symptoms. however i have developed progressing symptoms over the years which is why i got the cat scan. i dont know if this is related or if this is something i always had, or is new. sometimes people are born with them thought. when i was 5 i was diagnosed with diffuse cerberlar dysfunction and adhd. later they called it aspergers. when i was 15 i developed psychotic and parkinsonian like symptoms. i have also had seizures. now im sleeping about 18 hours a day and have no energy to do much of anything. however keep in mind that i may have something else not at all related to this because autism runs in my family which would seem that it is unlikely a cyst would genetically run in my family showing up in the same spot in the brain everytime. tommorow i am going to the neurologist. they will try to rule more things out that it might be such as wilsons disease. i will let you know if i remember to repost what they say.
Despite your doctors' claims, Arachnoid Cysts can cause the symptoms your son is having and AC's can grow. I have a 5x5x9cm sub-arachnoid cyst that afects my mid-brain and cerebellum. It's hard to tell if I even have a cerebellum when looking at my films. I recommend you join the Arachnoid Cyst Friends group on Yahoo, the Arachnoid Cyst Awareness Network on the web, and the AC group on FACEBOOK to communicate with others who have AC's or have loved ones with AC's. Most of us had been told that AC's don't cause symptoms because medical students are taught this in school. In reality, there are many symptoms including: headaches, lethargy, vomitting, eye misallignment, vertigo, tingling, mood changes, irritability, motor skills difficulty, dizziness, etc. MY AC caused hydrocephalus, eye misalignment, poor motor skills, headaches, vomitting, etc.
I to am surprised your first doctor told you that this posterior fossa subarachnoid cyst did not cause headaches, or migraines. I have suffered migraines most of my life, and had a CT scan that found this same type of cyst on the back of my brain too. It is said we are born with them and they are formed in the uterous. While the my cyst was found over ten years ago, other than the migraines, they are now just putting together other symptoms I have had which had continually grown worse over the years to be caused by this. I have no appetite, I have almost always had to force feed myself but never know what to eat because there is no appetite, I have a radical heart rate change from laying to sitting and then to standing, I get dizzy from this, I still have the migraines which often cause me to throw up, I get forgetful.... all sorts of things. There is another site that explains this cyst well. It can be found at: http://www.********.com/community/share/posterior-fossa-arachnoid-cyst-cyst-grows-back-brain-it-can-compromise-cerebellum-an.... The pertinent information in that article is: "A posterior fossa arachnoid cyst can create pressure on the brain stem and the cerebellum. These are extremely vital organs of the brain and they both produce tremendous functions that are required to live.
The brain stem controls a lot of our everyday functions that we do not even think about. One thing it controls is our body temperature. It controls our diaphragm for breathing, and it is where our hunger and thirst are controlled. It is also the path in which all our nerves leave the brain and travel throughout the body. The brain stem controls our pain, it is also where the nausea center is based, and it plays a role in the regulation of our hearts."
I am glad you got a second opinion, and I hope this helps you further. The good news is, with all the research I have done I find no report of death or a death rate from this.
I have a arachnoid cyst in my posterior fossa, as well. The last MRI I had was 13 years ago when it was the size of a chickpea. Since I am now experiencing more severe neurological symptoms, I have a new one scheduled in a couple of weeks. However, I also had a non-contrast CT scan two years ago for a brain injury. The cyst was not included in the report. Would any of you know if arachnoid cysts show up on non-contrast CT scans? Thank you.