For nearly twenty years, I've had progressive neurological and neuromuscular issues with fasciculation, tremor, and myoclonus plus horrible burning pain in my legs and numbness in my arms that wouldn't go away, plus numbness and clumsiness. It would take a long time to explain what the pain felt like. I've had MRI, MRA, EMG, EEG, EKG, and more blood tests than I can count, and I'd seen seven neurologists in total and have been placed on about two dozen medications and was told it was psychosomatic at times and personally gave up figuring anything out. Then it took a turn for the worse, so underwent many more tests at the hospital here because I was really sick with new symptoms.
It turns out that I had a severely low B12 deficiency that was unnoticed because I wasn't tested for it. I'm not vegan and don't have any stomach problems, and I'm not elderly. So I'm waiting to find out if it's pernicious anemia or some other cause since it's not 100% clear if I have anemia? I have been ordered B12 injections daily for a week and then once a week for a month and possibly longer.
My recent symptoms were intense shortness of breath and shakiness/tremor along with fatigue, tachycardia, and headache plus seeing stars from literally any exertion. Also, I fainted. These are anemia symptoms. These are what finally brought me to the doctor again. These symptoms were brand new and just started a few weeks ago.
My blood labs do not make full sense to me, and my doctor didn't explain them clearly. Can you help me understand if this is, or is not, anemia too (the B12 deficiency is obvious)?
B12 = 152 (range 200 and above)
Rdw, Rdc = 11.8 (range 12-16)
I cannot find much information about the above test except that it means all of my blood cells may be large or else small.
All of the other blood looks normal? This is where I am confused because if the rbc is low, that's anemia, isn't it?
red blood cells count -- 4.33 (range 3.60-5.70 K/uL)
hgb -- 13 (range 11.5-15.0 M/uL)
hematocrit -- 38.2 (range 34-46 g/dl)
mcv = 88 (range 80-100 fl)
platelets count = 202 (140-400 K/ul)
WBC Count = 7.4 (3.5-12.5 K/uL)
Thanks if you know why the rdw, rdc would be low with low B12 and normal other red blood cell stuff plus definite anemia symptoms. Also, are there other tests that they ought to be ordering? The doctors have been wonderfully helpful but admittedly confused throughout. These are just a few of the labs. They ordered about thirty others, and I have most of them and am still waiting for a few. I think they are testing my intrinsic factor.
The doctor did say all of my symptoms were caused by the deficiency, but was a bit vague on the B12 vs. anemia part. Thus my question and posting of blood labs. Also, if it's not pernicious anemia, I'm at a loss for why I would have B12 deficiency when I have a good diet and no known stomach issues. Any ideas about the labs?