Hey everyone! Let me start off by listing my symptoms and then I'll tell you how I got here.
Brain fog. I went from being a really sharp guy to a space cadet almost over night. I have trouble finding words, retaining information, following sentences, reading. Anything that requires cognitive horsepower I am completely at a loss. This is pretty bad for a guy who graduated with a 4.0 in engineering. Now, it's like I can't get enough blood to my brain.
Dizziness. Now this is a general term, but it's more like being on a boat when I'm not. I would say it's more of a combination of lightheadedness and disequilibrium.
Bobbleheadeness. If that makes sense. Basically, it's difficult to hold my head up.
Visual issues. I can't really pin this one down so let me describe it. It's like my vision is flat, like everything is 2D and slightly doubled and hazy. No real deficits identified per my ophthalmologist but it's like there's not enough processing power in my brain to work my eyes.
Palatal myoclonus. This one developed over the past year. My palate will spasm (you might have to google it) and click. Most people have a continuous form where mine is posturally mediated; the frequency and occurrence varies with head position.
Fatigue. Profound fatigue. I don't think I need to describe this any more.
Myoclonnic jerking. This occurs all night long most nights. Sometimes it's just my hand and legs, other times it's my whole body. It will happen intermittently throughout the day when one limb or my neck will just spasm randomly. Nervous system generally feels hardlined and is running on overdrive.
I had POTS like symptoms when this first started occurring, thankfully that has dulled down, but my BP is still really screwy.
Headaches. These originate in the back of the skull, up into the ears and into the face. It's a combination of pressure and mechanical pain. This is easily associated with the grating and grinding I hear when I turn my head and the killer neck pain.
Coordination issues. These are subtle, but those close to me notice that I sway and stagger sometimes. I don't walk in a straight line. Feet seem uncoordinated.
Those are the major issues. Other problems that I have are more intermittent: Eye Floaters, Tinnitus, Night Sweats etc.
I've tried all sorts of medications and therapies (PT, Chiro, Acupuncture, Massage, etc) with no help. I've also tried a few different drugs and I haven't had any real improvement.
This has been a heck of an experience, I'm holding onto my job by luck, my relationship by a thread, and my sanity by a strand. This all started after a very minor whiplash injury and has continued for 3years. I'm suspecting that my C1 is loose on my C2 due to the injury. I've done quite a bit of research on this but wanted to put it out there in case anyone was going through something similar. I'm scheduled for an upright MRI and a Digital Motion X-ray here in the next few weeks. Hopefully they can shed some light on my situation.
If anyone has any information, advice, direction to offer, I'm all ears!
PS. Has anyone had any interaction with Dr Franck in Tampa. He deals with C1/2 instability for post-whiplash patients?