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Burning Skin - Burning Eyes - Genital Skin Irritation - Anxiety

Please help me ! --
My problem started 3 months ago; I was in excellent health.  I had unprotected sex for the first time with my now ex-girlfriend.
I knew I shouldn't have before hand and I made a mistake. She is in poor health - and has had numerous sexual partners in the past...she had been diagnosed with Fibromyalgia 3 years ago.  She has been to the STD clinic after the incident, and HIV tested and Gonorreah and Clamydia - and had a Herpes visual check - all negative.

I was very distraught, stressed, and disappointed in myself for making such a poor choice in sexual partners-let alone having unprotected sex.  3 days later I experienced tingling sensations in my scrotum along with a red rash, abnormal scrotal movement and it felt a little sticky, and moist all the time.  The area didn't look right - however, there were no lesions.  I had a slight discharge, when forced from the base of the penis to the head, but it was cultured for Gonoreah and Clymdia- which was negative...(Could I be experiencing a reaction to non-GC bacteria, yeast or fungus?)  I do have occasional abdominal pain, but not extreme.

The Dermatologist looked me over - said I have eczema and possible allergic reaction on my scrotum.  I tried a prescription steroidal cream - didn't help.  

I went to the Dr's 7 times over the next 3 months.
The first time the Dr. gave me Acloyvir in the case I was experiencing a primary episode of Herpes- took it for a week and no improvement.  I was blood type tested for HSVI & II 7 weeks later, HIV tested, Gonorreah and Clymdia cultures - all negative.

After 2 weeks of 3 hours of sleep or less, I went and got checked again. My vision was impaired, were photo-sensitive, and I had slight discharge and burning of the eyelids..I still had the rash, tingling and itchiness, my scrotum was never in a relaxed state.  Also, my muscles all over my body were twitching out of control. He recommended Natural Tears.  He also gave me Atavin which helped a little for the sleep and muscles.

After 2 months of waking up in the middle of the night, or not sleeping more than 3 hours...I went to the Dr again..this time he gave me a long-term anxiety medication.  I bought some over the counter sleeping pills which I took for 2 1/2 weeks to substitute the Atavan.  I stopped taking the sleeping pills 10 days ago, and I still seem to be sleeping the same as with the sleeping pills.

I went to the Dr yesterday-3 months later, having frequent feelings of gitteriness over the past 8 weeks, sometimes running a mild fever.  My skin on the upper body burns at times, including my face, lips, and eyelids.  My eyes are still having problems with slight sleep accumulation & discharge in the morning and look irritated.  My lips chap constantly and I see little white bumps on both upper and lower lips.  The lips also feel sticky and then they chap over - with a white layer of dry skin on them.  I also have the muscle twitch going on - and the feeling the blood is being forced through my veins.

The rash seems to go away only with J&J Medicated Baby powder, as I have tried numerous creams.  I have been using Detergents Free Laundry Soaps - all herpal Shampoos, toothpastes, soaps and shaving cream, and I have switched to all Silk boxers to eliminate possible irritants.  Nothing goes away - Food allergy?  I started fasting- taking only the Buspar - anti-anxiety medication and drinking water.  I am a day into that and I don't feel different.  I use the J&J powder habitually, but if I stop the pain and rash return- though not as bad as the 1st episode.


All this being said - I feel my health has just plummetted.  Being a psychology major, I understand what the mind can do mentally and physiologically-but this is absurd.  I had seen 7 Doctor's (including 1 Dermatolist).  What can I do besides jump off a bridge?

I have done more reading on this stuff and there are just so many triggers and causes, and reasons for all these symptoms, I understand how it's difficult to diagnose anything.  I have written this to you as a last ditch effort to list all my problems, in sequence for a better perspective and hopefully something that makes more sense.  I understand you can't diagnose me unless I am seen, but can you offer some insight as to what may be going on? and what kind of testing (bacterial, patch, blood) I might consider having done to eliminate these health issues.  Please be specific ...

I feel that unless the Fasting elimates the problems (possible food allergy) I have exhausted what I can to to feel better.  I will continue to take it day-by day and gauging myself on improvement rather than problems.

The Dr's I have been to- I feel are discouraged with me, so if I need to go again, I will go to a new Doctor.  I would like to arm myself with some suggestions to him, as far as what the next steps are.

My heart tells me something is wrong-and it feels like my body is trying to fight off something...which may have lead to why the eczema started and the burning sensations.  If viral, it should have been gone by now.  I think it's something bacterial...and somehow affecting the skin...PLEASE, PLEASE, HELP!



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Avatar universal
vc
I have been experiencing the same symptoms you described for the past month and a half, I also had a encounter with someone whom I am now concerned about their health status. He never reveiled to me until recently that he gets coldsores and had a bad bout with Shingles two years ago, He's only 27. I have been experiencing increased urination, feelings of fatigue, burning sensations and white spots on my lips. I have gone to see many doctors and have undergone a battery of test, Herpes 1 &2 HIV, Clym, the whole nine yards, All negative. The doctors only diagnosis I may be having increased anxiety due to being worried about being sick. I saw a dermotologist and she said the white spots on my lip are caused by sun damage, but I never had these symptoms until a month ago,  And I I've always been careful about how much sun exposure I get, It has been very fustrating for me because I know my body has been functioning very different. If you have any feed back or have found any additional information on this please let me know...
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Avatar universal
I am also having very similar problems and would love to know if there have been any answers for the other people listed.

I have been tested for many, many things that all come up that I am fit as a fiddle and yet I have burning sensations at extreme levels in my crotch, anus, and stomach.  In the past I have felt the same burning on almost every part of my body.  I have experienced skin deterioration as if the top several layers of skin were missing. ( sticky ) At one point I stopped working due to excessive heat and burning that made it just about impossible to keep a pair of pants on.  Over a year later, bankrupt and burning up, I am still trying to diagnose this thing.

Where can someone get real help?  We may all have some new STD that five years from now will have a name.  Until then, are we all screwed.  Someone should research all three of us since I can tell you this condition is miserable and a leap of a bridge would be a relief.

HELP!!!!!!!!!!!!!!!!!!!!!!!
Helpful - 0
Avatar universal
I am also having very similar problems and would love to know if there have been any answers for the other people listed.

I have been tested for many, many things that all come up that I am fit as a fiddle and yet I have burning sensations at extreme levels in my crotch, anus, and stomach.  In the past I have felt the same burning on almost every part of my body.  I have experienced skin deterioration as if the top several layers of skin were missing. ( sticky ) At one point I stopped working due to excessive heat and burning that made it just about impossible to keep a pair of pants on.  Over a year later, bankrupt and burning up, I am still trying to diagnose this thing.

Where can someone get real help?  We may all have some new STD that five years from now will have a name.  Until then, are we all screwed.  Someone should research all three of us since I can tell you this condition is miserable and a leap of a bridge would be a relief.

HELP!!!!!!!!!!!!!!!!!!!!!!!
Helpful - 0
Avatar universal
vc
I have had the same problems with an almost identical incident which started it off. Have you been able to find any answers? I have been told that I am suffering from anxiety and am just focusing on the incident which is causing the problem. Can you help?
Helpful - 0
Avatar universal
The symptoms you are experiencing seem quite similar to those that I have been experiencing . . .  except for the Burning Eyes . . .  I am 27 year old male who, prior to April 2001 was full of life.  At this point, I am trying to figure out what is wrong with me . . .

In April, I did something pretty similar to what you did along the girl lines, being with someone I should not have been with, which I have learned to deal with . . .  except that the vaginal intercourse was protected . . .  I also received oral sex (which was not protected), but she had no sores on her mouth . . . A couple days following the episode, I found myself going to the bathroom some 14 times . . .  after two days of it, i went to the emergency room . . .  and was told that it was not an STD after numerous tests, but that it was some form of urinary tract infection . . .  little did i know that urinary tract infection diagnoses in the emergency room occur about as often as any urinary tract symptoms are complained of (kind of a cover your a#@ diagnosis) . . .

I took the 3 days of medication i was given, and started to urinate less . . .  let me also state that in my life prior to April, I urinated twice a day, sometimes 3 times . . .  rarely if ever more than that . . .  so 14 times was clearly not the norm . . .

Three weeks later, I received a phone call from the girl's boyfriend (supposedly) that she had HSV II, and basically that is when the tingling sensations in the scrotum began . . .  subsequent tests by 7 doctors have shown no bacterial STDs, no HIV, Hepatitis or HSV II . . .  When I asked her directly, she said she didn't have anything . . .  but I most certainly wonder how he would get my phone number . . .  All my life I have had cold sores, so testing positive for HSV I did not alarm me much . . .  however, I was told that HSV I can impact the genitals in the same manner as HSV II (some 15-30% of the cases) . . .  that being said, I have never had one lesion, or anything resembling anything of a herpetic nature . . .  therefore, there is nothing that can be cultured . . .

After seeing a Urologist who thoroughly gave me a once, twice and three times over, he said he could not totally rule out HSV, but that the symptoms were more in line with Prostatitis . . .  

I am a very educated individual, and read constantly on a variety of topics . . .  but it seems my obsession with finding out information about what is causing my problem seems to have overtaken me . . .  I truly believe a little information is dangerous, and certainly a lot of it is downright crazy . . .

The only symptoms I have are a tingling whenever (it seems) my pelvic floor is contracted (laymen's terms: anus squeezed) which causes a tingling sensation for a couple seconds (seems like a stiff wind from the North) which has persisted for almost 4 months (which leads me to believe that it is not herpetic in nature as that type of tingling last for 8-72 hours and is then followed by an outbreak) and is possibly musculo-skeletal . . .  and frequent urination as I have an enlarged prostate . . .  At one point, I felt a slight uncomfortable (possibly a burning) sensation in my genital area but that sensation has long been gone and not returned . . .

Any ideas here?  Has your doctor diagnosed you with outright Prostatitis?  I amat my wit's end, and have learned to deal with it, but certainly would appreciate any help anyone could give me in finding, if not a resolution, then surely a definite diagnosis . . . .

Helpful - 0
Avatar universal
RC
Hi,

I was reading along here and happened upon your entry.  I'm not a doctor, but it sounds a lot like Reiter's Syndrome.  It is mostly caused by Clamydia and is more common in men.  The symptoms are similar to what you described, especially the eye discharge, which is one of the main symptoms (besides joint pain later on). The eyes can be Conjunctivitis or Uvietis (Uvietis will cause the eyes to be photo-sensitive).  It can also cause rashes, mouth sores, gential sores, arthritis, urinary tract symptoms.  It is an infectious form of arthritis (like Lyme Disease).  It can be treated with antbiotic early on, so I would see a doctor to get a test for Clamydia one more time. The anxiety you are experiencing could be related, but I think you're very, very worried (and with good reason). Write your symptoms down and bring it with you to your Doctor, along with information about Reiter's Syndrome. It may not turn out to be RS, but a least you'll rule it out.

For more information about RS, go to the web site: http://www.nih.gov/niams/healthinfo/reiters.htm

Hope this helps,
RC
Helpful - 0
Avatar universal
If you suspect a food allergy, you may have a condition called mastocytosis, in which you have too many allergy cells and they release all this inflammatory junk in your bloodtream causing all sorts of problems.  See an allergist/immunologist for blood tryptase testing as well as urine histamine.  There are some other possible casues like pheochromocytoma and carconoid syndrome that can mimic and be aggravated by allergy.

Helpful - 0
Avatar universal
Infectious Disease? Your much too gentle....

What you did, unprotected sex happens, so acccept your misjudgement and FORGIVE yourself!!! This is not something your going to hear in a psych class. Yes the mind is powerful, obviously you haven't given it it's rightful due,and no this is not absurd it's just a show of the power of the mind and what can be created. I think with the training you may have this is obvious to you now, so seek the help of a professional and clear up this part of your past, eat right and your body will do what it already knows how to do.....be healthy!
Helpful - 0
Avatar universal
I did forget to mention that I am 25years old, if that helps.
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Avatar universal
Dear Macdost:

I am not sure I can help you.  The problem seems to be in the realm of an infectious disease person.  Since your ex-girlfriend tested negative for the common STD's it is doubtful that you have contracted some STD that is causing your problems.  But, then again, are you sure she was tested?  At least your testing has come back negative.  This would say that you do not have one of these STD.  If you had another type of bacterial infection you would be much sicker.  If it was viral, you might be experiencing symptoms but they would not usually last as long as you have had your symptoms.  HIV usually takes alaittle longer to manifest itself after unprotected sex.  A repeated test might be useful in a few more months.  It doesn't sound like it is neurological in etiology.  I do hope you find the cause and I am sorry that I am not much help.

Sincerely,

CCF Neuro MD
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