I'm a 45 year old male, and until 6 months ago in good health. At that time I began experiencing numbness and burning in a small area (about 2" in diameter) on my right thigh. Approximately one week after the burning in my thigh showed up I began having stamina and what seemed like equilibrium difficulties. I could get a good night's rest and an hour or so later I felt like the gravity had been turned up several percentage points. I generally felt like my body was collapsing in on itself. Going up stairs was a slow process and I didn't feel too stable. I did not have any headaches of fever during this time, did not have an accident, and wasn't knowingly exposed to any toxins or chemicals. The only other neurological problem that I've experienced was Bell's Palsy in the right side of my face nearly 20 years ago.
I saw my GP after the first month. He did some basic blood tests, including, CPK, thyroid and blood sugar. All results were normal. Two weeks later I was still feeling lousy, the burning in my thigh was expanding, and I was starting to get some burning in my right foot and the right corner of my mouth. My GP referred me to a neurologist and after a 3-week wait before I could schedule a visit my malaise subsided and I felt that the burning and slight numbness in my cheek might have been diminishing.
The neurologist conducted a basic exam and did an EMG on my right leg with normal results. He suggested a CT scan and more blood tests. All were normal. After a couple of weeks the burning and numbness expanded to other areas of my body. A MRI of my head was ordered as well as a B-12 and Lymes test. At that time, I was also placed on 900 mg/day of Neurontin. The blood tests were normal, as was the MRI.
The burning and numbness have continued to spread and are starting to effect my job where I need to do quite a bit of walking and driving. My dosage of Neurontin is now up to 2400 mg/day. I have a partial loss of sensation (I still can feel a pin or a cotton ball) in my checks, lips, forehead, and scalp, everything from my waist down, forearms and just last week my fingers started to lose some feeling. I have good days and bad days with my level and locations of pain. Occasionally my knees and hips ache so bad that it is difficult to walk, the burning in my feet reaches a level that it becomes hard to work the accelerator, brake and clutch. In some locations like my fingers, I never have had any burning, just loss of sensitivity. My motor nerves still seem to be working ok although, as the partial numbness moved into my hands, my ring and little fingers feel like they are swollen (as my lips frequently do) and it seems like they just don't want to work quite right. Although better, my stamina may be only 50 to 75% of what it was before this started.
Next week I am scheduled to have a lumbar puncture. While the analysis of the spinal fluid may reveal what is going on in my case, I seem to recall from a previous search of the archives someone with similar conditions. However, I don