Burning tingling legs

[tomandkimberly]

I am a 50 year old female and for the last 15 years or so, both of my legs, from hip to ankle burn and tingle like someone is putting ice on my skin, and sometimes buzz or feel like they're vibrating, as if from an electric shock. I have these symptoms literally 24/7, every second of the day. The only relief I get is from standing or walking (but not sitting or laying down). I should mention that I had a similar case like this in my early twenties that lasted several years but then seemed to go away. I have seen 2 neurologists who can't tell me what's wrong and have basically ruled out many autoimmune or nerve disorders. I have had MRIs of my spine, neck, and brain, a CT scan, nerve conduction studies, doppler veinous ultrasound, and tons of bloodwork to look for mineral/vitamin deficiencies. Everything has come back fairly normal. On my own I have tried supplements, such as magnesium, iron, B-12, B-2, B-complex, potassium, and probably others, with no benefit. I've also tried an anti-inflammatory diet for 6 weeks (basically just fruit, vegetables, nuts, seeds, legumes, fish, and meat). Does anyone know what might be wrong with me or what other treatment I might try to get rid of this annoying, persistent pain? Thank you.

[GuitarRox]

I'm not going to lie. That sounds terrible. And will give you lots of credit as you have been fully on it in terms of trying different things and seeing doctors to resolve it. It's clear you are intelligent and that also means that these symptoms are real and from 'something'. It sounds like it is unusual enough that it is hard to find out and you have doctors that aren't going further to do so. You need a doctor that likes a good mystery to solve. How do you find one who will do that though?

Arachnoiditis is what popped into my head. https://www.healthline.com/health/arachnoiditis  It's not a total match though including that it starts in the head and you'd normally have the same kind of pain you describe in your back too and it gets worse with movement.

Something else that could be happening is lumbar spine issues. https://www.verywellhealth.com/electric-shock-pain-2549268  Copy and paste this link. It has info that does sound relevant to your situation. It can happen due to injury (perhaps in your 20's) and then stenosis as we age (perhaps now)?

Have you ever done any physical therapy?

[tomandkimberly]

I will check out both of those disorders. I have not tried physical therapy. But that is something to consider as well as acupuncture and chiropractic. Thank you for your help.