I believe I have a CSF leak somewhere in or around my ear. I lonly eak fluid down my throat and when i do, I head a horrible headache, dizzy, tremors, numbness in my arms/legs, loss of dexterity, weakness in my hands and unable to grip, ringing in my ear etc... etc.. when i lie down and drink tea it usually improves.
i notice what triggers it is when i twist my neck, lift anything with my right arm, valsalving, bumping my head or a lot of activity.
how do i go about getting this diagnosed and fixed? i saw a neurologist and he felt since my MRI was clear that I am fine. I feel that this leaking is intermittent and will only show up on a scan if i'm actively leaking. my ent thinks i am not leaking as well and says just as long as i'm not leaking out my nose there is nothing he can do. i do get the occasional drip out my nose but not often... it does however gush down my throat.
i've tried waiting this out to see if i can heal but it's been almost 2 years and i have only improved a bit.