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I had a codman programmable placed in 2003 for Hydrocephalus. EMORY lost my hospital records and screwed up my clinic records and, consequently is denying that I have the system. My regular doctor didn't put the system in, doesn't use it, and want to know anything about it. I have had it reprogrammed once, to what I don't know, because they wouldn't tell me anything. I have screaming fits because of low-pressure headaches, or something. This system has never worked for me. Early on, I begged them to put the old fixed system back in. Now they won't see me, because they say that I had it replaced in 2009, which didn't happen. I don't know what to do, I can't even find a doctor to see me. WHAT CAN I DO? HELP, PLEASE!!!!!  
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1711789 tn?1361308007
Hi there!

While one should be able to get information about the valve and the programmer with Codman, this is actually irresponsible of the hospital. Medically I would suggest seeing a neurologist and possibly have the valve changed. If there are legal issues attached, I would suggest seeing a lawyer.
Hope this is helpful.

Take care!
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Avatar universal
Thank you for your help!! I have been able to schedule an appointment with someone familiar with the Codman, surprisingly, after explaining my story. I have since learned from my records when I was in Southern Regional that the neurosurgeon that examined me there says that my shunt is not functioning properly, but that I didn't want to have it worked on or replaced. She didn't even present the possibility, but instead said "I wouldn't recommend doing anything, " and I wasn't alert enough to ask her if there was a problem. I have an appointment with a neurosurgeon in Gainesville, Georgia about reprogramming it, but this may only be part of the issue, or an entirely different issue altogether.  
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