Update!
Well guys, i don't think this is as bad as we first thought - infact going by what my Dr said and thinks, it's not even close!!
Apparently the Xray i had on my lower spine showed some sort of Disc narrowing, the report said - Disc space narrowing at L5/S1, lumbar vertebrae seem normal.. My Dr thinks this is causing my lower body to go numb although i wondered why the heck is there no back pain then?? UNTIL TONIGHT, i was sitting on my pc chair and after about an hour i started to get a pain in my lower back and bum! How weird? Or is my mind tellign me that now lol!
I have been referred at last to my private health clinic to an osteotherapist i think they are called, first appt is on the 14th May - couple of weeks away however if i didnt go private i would be waiting Months on the National Health!
Hopefully this is what the problem is and i can get it sorted!
speak soon!
Ricky
Hey, I am 26 yr old male. Same deal no sports but always active. I woke up two days ago, numb waist down. Your story sounds almost identical! I know its been a couple years since you posted, but would you mind to share what was the final outcome please Im actually kind of nervous
Indeed lol, Dr is waiting on report being written up, they will call me.
Good luck. I guess I'd rather have a large brain than a small one:)
Got the MRI Films back today - was having a laugh looking at them although i've no idea what to look for - Just waiting on Appt to go and get the results, will need to ring the Dr on Monday. My Brain is HUGE :D
Well, been a month on and at last i got to see a specialist who has ruled out that the disc space narrowing has nothign to do with this at all. He sent me for an MRI yesterday, i'll have to wait on the results which will be about a week.
Good Luck with everything!
Thanks everyone for the replies and apolagies for not being on to reply myself! I start a new job on Monday and needed to sort some things out. anyway the story so far is..
Xray results came back yesterday, they were all clear, no nerve damage or anything the Dr could see so i have to make appt with my Dr again to talk about the next stage which i guess is a referral to a neurologist. I can't do that until Monday now.
At least we're ruling things out one by one all be it slow!
Ricky
Hi,
I would try and see neuro asap, I'm no expert, but I don't think an xray would reveal TM it would just rule out other possiblities for the loss of sensation; disc compression or degeneration for example ~ I guess they all start with the obvious and then look further when it's not so straight forward.
I've been taking Gabapentin now for about 2/3 weeks which has definately helped. I know you're not in pain ~ but they may be worth mentioning ~ I've been told so many times there is nothing they can do....it's only 'cause I'm a pain in the arse patient that wont accept that I have to accept anything that doesn't fit in with my idea of the future (denial? maybe ~ but now amazingly there is something that helps!)
Keep us posted
Best Wishes
Jacqui
They can get the results quicker than that!
You have a few options.
1 - You can request a copy of the Xrays or MRI's yourself and physically deliver them to your doctor. (You have a right to a copy of your own tests)
2 - You can ask that the radiologist send the "wet reading" which is a hand written copy that most offices write up the SAME DAY - they should be able to fax it to your doctor.
Your doctor should be able to request this..... when I went for my MRI's they had me ask the doctor to fax them the same day - my doctors appointment was later the SAME day....
And I agree....... you should get to a neurologist for quicker help. The Neuro's are usually much more thorough in seeking out the cause for your problems.
God Bless!
Amy
I feel very badly for you. The care that you have received regarding this whole situation is just so bad in my opinion. If by chance you do have TM, you could have had proper treatment if it was found earlier.
Got X Ray done this morning, radiologist said he couldnt tell me anything but the Dr was lookin for any signs of nerve damage on lower spine and i asked him did he see anything he said nothing that sticks out, but the Dr would maybe spot something that he hasnt, he then told me it takes 2 weeks to get this xray and report sent to my own Dr!
I am not waiting 2 bloody weeks, i have asked my Dr to refer me to a neurologist to a nearby private clinic because i have private medical care which my employer pays for, i shall ring again in the morning because i have a list of neurologists names who work there, all i need to do is for him to refer me and i can then get the ball rolling properly!
I'll keep you updated.
Ricky
Thanks for the messages,
I was about to give up and just live with it in hope that the numbness goes away, until i rang my Private healthcare.
They sent a letter to my dr and asked them to confirm that this wasnt related to my underlying medical condition ( Factor V Leiden ) and if it wasnt then they would go ahead and start tests on me.
My doctor rang me today and confirmed that this had nothing to do with my blood disorder but said before she faxes back the form to them she has arranged an xray for me tomorrow in my local hospital. So i am going tomorrow for an xray, don't know what for or where but i'll go anyway and try and find out as much as possible then return to my Dr if they find nothing and demand that form be faxed so that i can get my private healthcare rolling!
I'll keep you updated!
Ricky
Chin up chuck!
Fingers crossed you don't wait too long to see them.
Best Wishes
Jacqui
Thanks Jacqui,
I am currently awaiting to be referred to a neurologist via my private healthcare, hopefully i get some answers becuase this is just going on too long and i'm getting fed up.
Ricky
Hi Ricky
Sorry for the delay in replying,
In 03 after about a week- 10 days of gradually going from cold feet to no feeling from my waist down I went to see my GP and was refered to A&E. I was admitted to hospital and the neurologists had actually diagnosed it within a week from a physical examination and MRI scan. I was sent home told it would get better with no explaination or treatment....by the end of that week I was numb from my er um nipples down.
I had another MRI, Evoked Potentials and a lumbar puncture before then being given steriods via an IV. It was after being admitted the 2nd time that the Dr in A&E told me what I had from reading my notes, he told my family to look it up on the internet as it would be more useful than him explaining it.
I consider myself very lucky as it was only sensory, however it took 2 years before I considered I'd got back to my old self and could 'trust' my body again. I also had neurophysiotherapy to teach me to walk again, a continence nurse to help retrain my bladder and bowel and an occupational therapist visited at home and fitted equipement for me to be independant ( I had a history of a bad back and was use to being in pain and as I'd lost feeling there was some concern that I would injury my back and not be aware that's why I had o/p assement at home - they raised my chair, fitted a toilet raiser and bath board ~ I was only 30 at the time!) I also had 4 children then 6months, 3, 5 & 7- so a major incentive to get well and not accept half measures.
It's a rare disorder so alot of GP's have not come across it, but for the majority we do get back to normal albeit after a little while ~ I had just about resigned myself to never feeling my feet again and hey presto as mysteriosly as it started it was all better.
For most people it is a one off incident.....
I'm in the process of being investigated now as something simular has happened again this January....I've been given Gabapentin this time and so far so good, I can feel my fingers again after about 10 days being on medication.
Good Luck
Jacqui
I would demand an immediate MRI of the thoracic and cervical spine to see if there is transverse myelitis. I find it totally unacceptable that this was not done.
Hi ggreg,
Thanks for the reply.
One thing i would like to add is that i'm not in any pain apart from my knees and this only started since the numbness began, there is no pain in my back at all, the floor i walk on is carpet and i wear fairly comfortable shoes.
Many thanks
Ricky
I'm not a doctor, but I have a bad back, and IF it's not myelitis, then another thing you can try is what I do. I lay down on the floor with my legs resting up in a chair or on a couch. Scoot up close to the couch. Laying like that takes all the weight off the spine and might give you some relief.
You said you walked a lot at work. If you're on concrete floors, this can put a strain on your lower back, which if it gets wrenched out, it might numb your nerves. Cushioned and supportive shoes, like running shoes, with a good arch, might ease the stiff jarring that may be going up to your back. Also, if there is muscle tension in your back, then you need to see a professional massage therapist to work out your muscles.
Hi There,
Thanks for the reply, another user of this forum who is also a Physician has also mentioned Transverse Myelitis, i shall mention this to the Dr on Monday and see what he says.
Did you have numbness like i do from the waist down? If so how long did it stay for??!
How long did it take to diagnose you?
Thanks again
Ricky
Yes they should have done a MRI..Magnetic Reasonance Immaging (excuse the spelling )
I'm no expert but I experienced something simular in 03. It was Transverse Myelitis, if you're only experiencing a sensory loss that's good ~ although mind blowing as you have to tell your head that your body will do it's job as there is a blockage along the nervous system. Please Follow the link below for more info.
http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm
Keep an open mind when you read this. I made a full recovery (although having a blip now)
Good Luck