Aa
Aa
A
A
A
Close
Avatar universal

Concern of AlS , Lyme, etc...

Okay, here are my symptoms:

I have had a general weakness since I had a 36 hour flu back in March of 2006.  I can still run and work out with ease, but with my day-to-day acitivities, my muscles feel weak or strained.  This is an all-over feeling.  My ears ring all the time.  My left hand feels icey-hot and prickly when I touch anything in the freezer.  My right hand feels somewhat of an electrical shock when I touch hot water. I have twitches or tremors all over my body.  I can feel and see them and my husband can see them too. So while it seems like I'm losing my mind,  at times, I know I am not. :)  I have an appt. with a Nuero on the 25th, but I'd appreciate hearing from anyone who has experienced this:  Good or bad. I live in Arizona but I do travel to the northeast and to San Diego often. This could be post Lyme disease , but it would be very difficult to get that diagnosis here in AZ.  I am 36 and have a sweet little girl who needs her Mom to be healthy and well.  I'm sick of worryong about this.  If you have any information on this type of thing, please let me know.
5 Responses
Sort by: Helpful Oldest Newest
Avatar universal
I'm from California and boy,  we have lots of Lyme emdemic areas here.
Thanks for the update on Primetime.
Helpful - 0
Avatar universal
No word yet on when the ABC - MS/ALS/Lyme program will air.  They are lengthening the segment and having trouble scheduling interviews with some of the IDSA people.  So, we
Helpful - 0
Avatar universal
I heard the Primetime show (on ABC) was moved to sometime in February, no one seems to be sure exactly when. Have to watch for it. But I'm sure others will let us know when they get word.

Your symp's sound like very much like Lyme & other autoimmune diseases.

Mariani, I agree with what 4t said.
Also...(I'm pasting the following from a previous post):
I highly recommend looking into the Marshall Protocol (MP), a curative therapy for people with autoimmune diseases/symptoms, & the links to each other referenced as "Th1 disease." You don't have to have an actual diagnosis for the MP, in fact the MP site has hundreds of members who searched for years for help & were always told they were fine. Here are some good links to for starters: (I've been on the MP for 6 months and it is working!)
"What is the Marshall Protocol": http://www.marshallprotocol.com/forum2/4213.html

"Is the MP an applicable treatment for my disease?" http://www.marshallprotocol.com/forum32/1263.html

Then on their main page: marshallprotocol.com, look up the many different articles under the headings: "Essential Information about the MP" & "Marshall Protocol FAQ's"

This link is really interesting, check the list of symptoms of Th1 inflammation, "Hypervitaminosis-D Symptoms" http://www.marshallprotocol.com/forum2/2588.html

Keep us posted, K!
Helpful - 0
Avatar universal
Does anyone know when they will air the MS/Lyme- Medical Mysteries on Primetime?  First I heard it was beginning of month and then the end
Helpful - 0
Avatar universal
the fact this started in March is convincing it's benign, if it was ALS, you would likely have progressed further.

You should insist on an EMG, MRI brain (Rule out MS) and a full Lyme workup at IGenx (California)....

YOu also have a Mayo Clinic in Arizona...

good luck

Helpful - 0
Have an Answer?

You are reading content posted in the Neurology Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
5265383 tn?1669040108
ON
1756321 tn?1547095325
Queensland, Australia
1780921 tn?1499301793
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease