I don't know where to turn at this point. About five years ago, I was diagnosed with generalized anxiety disorder and put on anti-anxiety meds. I was only 15 at the time, but over the years my medication was increased and swapped so many times, I don't even remember all the different kinds I tried. 8 months ago, after I had developed insomnia, depression, constant brain fog, gained 120 pounds and completely isolated myself from the outside world, I decided I had had enough and quit all of my medications. Everything else got better (ironically, even my anxiety was dramatically reduced), but the brain fog hung on hard. I went to the doctor and we treated everything that she thought COULD have been causing it- mild hypothyroidism, vitamin D and iron deficiencies, gluten intolerance- and I can think a little better now. But what has not changed is this constant feeling that I'm not really here- that I'm watching my life unfold from behind a screen, or that it's all in a movie. I have a lot of trouble being "in the moment" to the point where it's seriously holding me back. I'm working through my anxiety and getting back into the world, but my brain fog is making it so much less than it should be. It's always worse when I leave my house, when I'm tired, when I'm anxious, or when I'm doing something I was really excited about. It throws off my sense of time, as well as makes it hard to remember things or concentrate.
The best way to describe it is that it's almost "blurry", like my brain can't see properly. I can see fine with my eyes (unless I'm having those vision problems*), but the world around me just looks and feels a million miles away. When I try to recall memories from a really bad day, I literally remember a white or black fog surrounding the edges of my vision. On the worst fog day I ever had, I barely remember anything that happened and the memory is almost completely white, save for a small blurry window in the middle. Sorry, this is getting a little abstract- I have trouble describing it.
I feel like no one knows what I'm going through or understands how badly it affects me, including my doctor. In fact, I'm pretty sure my best friend thinks I'm faking it...but anyway. I talked to my doctor about it last time I was in, and expressed concern about brain tumors (because of the brain fog, and because *my vision occasionally goes blurry or doubles for a few hours) she said it wasn't likely- but in her defense we had a lot of things to go through that day. My therapist also has no explanation. I have not had any brain scans yet, no one has recommended them. I'm about to get aggressive about it because there is no reason I should be feeling this way.
I've gone through times of no stress and times of great stress, times where I was sleeping too little/much and times where I was sleeping just the right amount, times where I was eating only the most healthy foods and times where I was eating the worst, times when I was doing healthy amounts of activity and times when I was sedentary- and though my brain fog was often worse during stress and when I was tired, it NEVER got to a bearable level during the other times. I'm just a a loss- I want to move forward so badly, but my brain fog is holding me back.
Does anyone have any experience with this or advice? I'm terrified that it's going to last for the rest of my life. The thought just exhausts me and I don't really want to live at all if this is how it will be.