D.O. doesn't know whats wrong

[AJZook]

I have been to my doctor twice now and he doesn't know what is wrong with me, I have an appointment with a neurologist but its more than a month away and I was hoping to get some answers sooner.  
My symptoms include:
eye movement makes muscles or nerves jerk inside head, neck, shoulders and chest.
dizziness
nausea
off balance and leaning mostly to the left, running into walls on left side
vomiting
headaches
     I also catch myself squinting a lot and my eyes seem to be sensitive to light, like my laptop right now.
     I have horrible back pain and I don't know that these things are related but it might give you a better idea of how to answer my question if you are able to.  
I recently had knee surgery, about 2 or 3 months ago, I don't think that would make me sick like this but every detail might help.  
I really would like to know what is wrong with me, I don't like being sick and I hate missing work and feeling down all the time, it has gotten worse and is physically draining.      Thank you for any help you can give me.    

He has already treated me for nystagmus and it didn't go away.

[BloominHeather]

I'm willing to bet you have Lyme Disease.  

[AJZook]

I just had my MRI and my doctor has the results and what he told me today is that he 'thinks' my problem stems from blocked/full sinus cavities.  He says this 'might' be the problem and that I might need surgery to fix that.  HOWEVER, I do NOT have any symptoms that would indicate this BUT I do have symptoms that would match something else.  I just feel like this isn't an answer, but a guess, and it's not going to fix my problem.  Anyone know anything?

[tellybee]

I have Chiari 1 Malformation.  I have all those symptoms that you have described.  It's where your cerrebellum of the brain is lower than its suppose to be and you have these tonsils that are compressing on your spine.  I fell down the stairs in Oct. and since then I have not been the same.  I have headaches, dizziness, forgetfullness, backpain, eye problems, heaviness on my shoulders, numbness and tingling in hands & legs.  I find other symptoms and everyday is diffrent.  I am waiting to find out about this MRI I just had done.  I was also checked for MS, Tumor and BloodClot.  I had none of those.  It is very rare get checked for everthing to rule out.  Go to the Chiari Forum.  You have to have a MRI of the Brain and Spine.  Do some research on this also.  Good Luck to You and God Bless.

[AJZook]

I have made several appointments with doctors to see in the future but I have heard that I probably have Vestibular Disorder and I was wondering what people thought about this?

[AJZook]

I'm not taking any medication and I have been trying to limit my computer use, I work at a bank so it's a little hard. Even when I close my eyes I still have the same symptoms and it's the worst when I wake up so I don't know that the computer/TV would be the issue because I don't watch them in my sleep.  But no matter what I do this wont go away.  My mother has migraines but they aren't treatable, that's what I was saying.  I've scheduled an eye exam so I'll see where it goes from there.  Thanks for the suggestions.

[ggreg]

I might throw in a couple other things, too.  If you spend a lot of time in front of a computer screen, you have to get up every hour or so and rest your eyes on something far away.  Otherwise, you can get some of your symptoms, all kinds of wierd stuff.  Plus, if your eyes need glasses and you're staring at tiny type or focusing hard on anything with your eyes, and they aren't seeing as sharply as they might, then you'll have the same sort of thing.  The eyes get tired just like any other part of the body.  And you should sit an arm's distance from the screen, with good back support.

The other thing is, like one of the above posters mentioned, is the effects of medication.  You said you had hurt your back, and if you are taking some medicines for it, could very well be it's just some side effects from it.  I remember one time I had to take a whole bunch of pain medicine, and I near about fell down when I was walking through a big room in a building I worked in.  I was leaning, just like you, to one side, and it scared the daylights out of me, I thought I was going to fall over and faint.  I realized later it was the medication.  So, just look up the side effects of whatever you're taking, and if that's what it is, well, there you are.  You can keep taking your medicines, just be careful what all you're doing when you're on them.

Those would be my ideas.  But I think the mention of migraine before is a very real possibility.  And when you said your mother had them and no one knew what was wrong with her, well, THAT'S what was wrong with her.  Migraines are a condition that is very debilitating to a person, knocks them back, very wierd stuff.  One of my best friends in school had those, she was number one in her class, and when she'd get one, she could not visit with anyone, she would pull down all the shades in her room, get in the bed and pull a pillow over her ears, and just try to make it through.  They do have prescription medicines for them, which help a little bit, but not completely.

Hang in for the neurologist visit, because he would know if it's anything more complicated than some of the ideas here, unless someone else posts that has your same symptoms and can tell you different than the rather milder stuff that everyone has suggested so far.

[DrNoopurMD]

Hi,

Sometimes migraines can occur without headache, these are called acephalgic migraines.
The symptoms of nausea and photosensitivity usually occur before the onset of headache.
Please discuss this possibility with your treating doctor.
Also undergo an eye exam again if possible. Keep us posted!

[AJZook]

Throbbing  but the headaches don't always accompany the other symptoms, the predominant symptoms are the jerky eye movements and dizziness which makes me nauseous.  But I've been wondering about migraines and if that could also be a problem because my mother gets them all the time and they still don't know whats wrong with her.  Right now I don't have a headache and I have the eye issue and nausea and I just recently noticed that sometimes when my eyes are closed I see flashing lights. This eye thing makes me squint really bad and grind my teeth.  Ha I'm sure I'm dying!  I've never had so much stuff wrong with me! Thank you for your help.

[DrNoopurMD]

Hi,

How are you?
What is the nature of these headaches? Is it dull or throbbing?
Your symptoms are suggestive of migraine. Migraine headaches are characteristically throbbing and are accompanied by photophobia, nausea, dizziness and pain in the eyes.
I would suggest you lie in a dark quiet room when these symptoms occur and apply cold compresses to the head and neck.
You can also take an OTC pain killer for pain. Hope this helps!

[AJZook]

Thank you so much, any advice or insight to my problem is greatly appreciated.  I will start journaling them and the other stuff, I think it will help when I see this neurologist because it's hard enough to explain my symptoms.     It is actually worst in the morning and worse when I've been on the computer or watching TV, but I'm not sure if it's only then so this will help.  Thank you again.  

[medchick0523]

Are you experiencing those symptoms all the time, or are they intermittent? If they are intermittent it wouldn't be a bad idea to start journaling them. Noting time of day, what you were doing, what helped/relieved symptoms, what exacerabated them, what you've ate, medications you've taken... et cetera. My apologies if you have heard all of this before, but I too, know how difficult it is to get into a neurologist -- even as an established patient. Going to the appointment abundantly prepared could save you another trip.

Best Wishes.