A little history as it is 5 years later :(. A little long but Thank you so much for reading.
Prior to November of 2001, healthy energetic female, athletic, running upwards of 5 miles per day, daily aerobic workouts and weightlifting. BP always normal, (110/70 – 120/80) even throughout entire pregnancy. Chronic pelvic pain of 8 years prompted surgery for endometriosis in March 2000. November 2001, gave birth to a healthy girl, no known complications although very difficult labor. Very run down after delivery with chronic congestion, fatigue and pain. After 8 months of continued congestion, fatigue and pain went to doctor. Had positive ANA but negative for arthritis and Lyme. Was sent to PT to help with muscularsketal issues. In November 2002 developed illness consisting of severe fatigue (difficulty getting out of bed from fatigue), swollen glands and soar throat. In December 2002, went to doctor due to bright green nasal discharge sore throat, nausea, swollen glands, and tremors on right side. Had syncope in doctor office. Sent to hospital with cardiac testing showing no abnormalities. Blood testing showed low red count, low hematocirt, low potassium, low magnesium, and low calcium. White count was normal. Illness was not producing any vomiting and I was eating and drinking sufficiently. No known reason for lab results. Discharged still not feeling well. One week later after holding and playing with daughter developed severe headache. Went to lay down and developed slurred speech, inability to move right side, bluish color in fingernails and vertigo. My blood pressure was also elevated. Didn’t want to go to hospital since just there a week ago. Finally agreed to go to hospital 3 hours after event. When CT scan was done, didn’t show stroke. Other tests included echo, brain MRI and upper GI. All negative. There were some areas of high-signal in brain MRI, but they felt they were non-specific. ECG showed some low beta activity but didn’t feel it was relevant. Blood tests showed positive anti-phospholipid antibody at high 89.9, positive ANA and some lymph counts, but no elevation in white count.
I was discharged 3 days later unable to walk. Weakness was so severe, I couldn’t cut my food or use a pair of scissors. I also would get tremors where something I was holding would just fly out of my hand. Went through 6 months PT to gain strength on Right side and improve balance. During the process I continued to have migraines, nausea, clumsiness and knees would often buckle when trying to walk. At times it was difficult to breath and I felt like I was choking and would get severe shortness of breath, but no weezing. I had pulmonary function tests at 50% of capacity, although I nevered weez. Pulmonary did not give definitive diagnosis since I don’t weez.
Although I can now walk, I have permanent right side weakness and continues to get “flare ups” of migraines, clumsiness, vertigo, tripping on feet, blurred vision, high blood pressure, shortness of breath, heat intolerance, irritability, nausea, and occasional night sweats and insomnia. Also have episodes of blurred vision, and lightheadedness, especially upon standing and gets motion sick. I also has a chronic measle like rash on chest and abdomen that sometimes looks bumpy, other times flat, and other times is not visible at all, in addition to some non-painful lumps under skin developed sometime after illness in 2002, possibly related.
Today, October 2008 and 5 years later, I continue to experience symptoms exhibiting neurological conditions; right side weakness, migraine headaches, blurred vision, clumsiness, neuropathy, bone and muscle pain, air hunger, vertigo (imbalance), nausea, intermittent high blood pressures, as high as 170/110, especially in morning hours between 7AM and 12PM. The only new symptoms since 2002 is corneal edema and blepharitis. I am also being treated for interstitial cystitis. Hormones seem to play a role in episodes of high BP. Has tried to see many doctors to get answers and they all keep telling her to see a neurologist.