Desperate!!

[DaDiva2493]

I have pseudotumor cerebri (2002) and chiari malformation 1 (Dec 2011). On March 29, 2012 I had my 1st seizur in my sleep I couldn't wake up I could hear everything. I have been tested and the drs call them non epaliptic-spelled wrong sorry. I don't just have the sleep, I can be walking, or in the middle of a convo, in the tub, washing and folding clothes. They just come from nowhere. Right before I have one I taste a lil vomit and like when u bite your tong watery and bloody. I've have so many the muscles around my spine are swollen. I'm going to Jackson Er today, I haven't had much help here. I have been suffering for so long now this, please help me!!!!

[Paderla Anitha, DNB]

Hello and hope you are doing well.

If in the EEG there is no evidence of seizures, its unlikely it could be seizure activity. For seizures to occur, electrical activity is initiated in the brain which results in convulsions. This is detected by an EEG. For the abnormal movements, if the present medications are not effective, ask your doctor for alternate ones.

Hope this helped and do keep us posted.

[DaDiva2493]

I had an EEG and there was nothing there, so the call them pesudoseizures. At first he wouldn't give me any meds n all this time they just kept getting worse. Now he has me on 1mg of Ativan, just started it yesterday. I am aware I need a new Nl but with me on medicade it's hard!!

[Paderla Anitha, DNB]

Hello and hope you are doing well.

Understand your predicament. Your symptoms could be due to abnormal involuntary movements (AIMs) are also known as 'dyskinesias'. The movement disorders include tremor, chorea, athetosis, myoclonus, and asterixis. It could also be seizure activity, only an EEG (electroencephalogram) can help confirm this. This is done under the guidance of a neurologist. Please discuss this with your doctor.

Hope this helped and do keep us posted.