Hello, I am a 34 year old female with the below symptoms - they keep adding on and I am desperately seeking opinions on if this sounds like ALS (or something else) until I can see my neurologist in Feb. Thank you in advance!
1) Since July 2013: Twitching all over, all kinds of twitches, with hot spots. No cramping. Clean EMG 10 months after twitching started (EMG was only performed in two places). Clean neuro clinical exams 2 times. At times, twitching has died down for a few weeks. I do not twitch in my tongue, though.
2) Since Dec 2014: Body jerks/big twitches. Not just before falling asleep, a leg or my abdomen will just randomly move, big area.
3) Since Oct 2014: Excess saliva/constantly wiping the corners of my mouth and swallowing. Some days were not so bad as others. GERD meds do not always help. Endoscopy was normal, showed mild Reflux and Gastritis. I am not choking on anything and can swallow ok, but I am swallowing often.
4) Since mid-Dec 2014: Biting/nipping at tongue. Good and bad days. No slurring issues. I may have Bruxism, tongue is always pressed against the roof of my mouth or teeth.
5) Since mid 2014: Lump in throat and sometimes food or pills getting stuck - no problem swallowing, but will feel sometimes something sticking further down.
6) Since Feb 2014: Bouts of thenar pain, pulsating sensations, twitching, weak grip and acknowledged „shrinkage“ of the muscle between my thumb and index finger, and on my thumb joint itself, by two doctors (one neuro and my primary care). A Ganglion cyst was found and will be removed. It is not clear to the Hand surgeon if the cyst is causing the weakness. Since Feb, I can still use my Hand totally normal except for gripping and that part has waxed and waned.
Left arm and shoulder:
7) Since end of Dec 2014: Major hot spot twitching in the entire left shoulder and arm, followed by immense pain, as if I had been punched and bruised in several places, and weak/clumsy feeling in whole arm and hand.
Left leg and back:
8) Since Oct 2013: Left leg pain, twitching, weakness, also in lower back and in butt. Was so bad to the point that I felt like I had to drag my left leg with me. Lumbar MRI showed nothing. With cortisone/lidocaine shots and two times physiotherapy, symptoms always improved, including weakness and gait. Doctor belives it's an irritated nerve root in my lumbar spine.
9) Since- I was a teenager: Anxiety, panic and psychosomatic disorders (all diagnosed). I will add health anxiety and OCD to the list.