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Does Anyone Else Have Agenesis Of The Corpus Callosum?

Hi im 16 years old and I have Partial Agenesis of the Corpus Callosum, I feel so alone cause I don't know anyone who has this condition and I really wanna chat with others that have what I have, Everytime I mention what I have to someone it seems like no one knows what it is. I wanna be able to talk with others that have this condition because I feel like no one understands what im going through. I also have a condition called Cataplexy which is very rare and I have narcolepsy. If you wanna learn more about what I have I made a site that explains everything I have and what it is,

http://www.piczo.com/kristens-life/

If you have any of these conditions and want to talk I have msn just add krissi-***@**** or tell me your msn and i'll add you


This discussion is related to angenesis of the corpus callosum.
2 Responses
Avatar universal
Hey Kristen,
I am a parent of a child with Partial Agenesis of Corpus Callosum (ACC).
There are several resources online for people with ACC. I would recomend you visit the ACC Network where you can join a mailing list of people who have kids with ACC or have the agenesis themselves. It is a great resource for support and information.

Check out the following page:
http://www.umaine.edu/edhd/research/accnetwork/accnetopps.htm

Avatar universal
I have complete ACC! :)
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