I AM AMAZED TO SEE OTHER PEOPLE THAT HAVE THE SAME PROBLEMS I AM HAVING UNFORTUNATELY, IT SEEMS LIKE NO ONE HAS EVER HEARD OF THE PROBLEMS I AM HAVING. WELL AT FIRST MY HEAD FELT LIKE LIQUID WAS DRAINING ON THE INSIDE OF MY HEAD, NOW THE INSIDE OF MY HEAD BURNS AND MAKES A BUZZING NOISE AND AT TIMES I GET DIZZY, I HAD BEEN TO A NEUROLOGIST AND HAD A MRI ABOUT 2 YEARS AGO WHERE THEY DISCOVERED I HAD A SMALL NODULE ON MY PITURITORY THAT WAS NON ACTIVE, I HAD ANOTHER ONE ABOUT 7 MONTS AGO WHERE THE MRI WAS NORMAL AND THE PITURITORY NODULE WAS GONE, BUT I AM STILL HAVING HEAD PROBLEMS, IS THERE ANYONE ELSE HAVING THESE SAME PROBLEMS, OH ALSO IT MAKES ME WEAK, AT TIMES I FEEL PINS AND NEEDLES AND HOT SENSATION IN MY FACE. IS THERE ANYONE ELSE WITH THESE PROBLEMS, PLEASE HELP, SORRY FOR THE SPELLING
just read your post. If you can tell I have similar symptons. I also have ringinng in ears and the feeling of a heart beat in ears. I also have the fluid draining problem I cant seem to find anyone to help me let us know what you are being DX with maybe the rest of us will be helped someohow also.
I was recently diagnosed with CM and have heavy pressure/pulsation in my head (tinnitus and "heartbeat in both ears), my head bobs when I'm trying to sit still, it feels like someone is pulling my hair all of the time, base of my skull burns and my ears drip throughout the day. I suggested to my Dr. that I thought I might have CSF leak and he treated me like I was crazy. The leaking has been going on for more than a year. I also have 2 herniated discs and a syrinx so it didn't seem so far fetched to me. I can't get anyone to explain the pulsation and give me some kind of resolution. It's driving me crazy. I don't sleep enough. I'm losing vision in my right eys and my body feels like it's trembling/vibrating all of the time. I had a CINE MRI that showed diminished posterior CSF flow and cerebellar tonsils abut foramen magnum. I also have what I call "drop attacks" where I fall down without losing consciousness (I feel like I'm in a vortex)--no hydrocephalous. I am becoming physically weaker every day. Does any of this sound familiar to you? I'm desperate for answers and trying to plan my next move. I need to find a Dr. who is well versed in this type of problem.
Thank you San Francisco for your reply! Again this is very reassuring for me. Although I still need another evaluation, it is SO good to know that I am finally hearing comments of people who felt what I felt! I was thinking like oh goodness, I have one of those odd conditions like only one in a million get because everyone would have these surprising reactions when I told them I drip through my head. Thank you so much. I will have to do some "spring" cleaning early-lol-
Dear No Name,
I understand your concern, I had the very same feeling and still do. I saw an ENT and he determined it was Post Nasal Drip.
I know it feels really odd, Now I am not a doctor, but I think that if you had a "spinal fluid leak" from the age of 15-22...well I am pretty sure you would have been dead long ago.
My post nasal drip comes and goes, it depends on many things, seasons of the year, what part of the country I am in, and how dusty my room gets...
lol So clean your room and under your bed, vaccume and dust often, that may help.
Well good luck dear. I mean, its only a matter of time before you find what you are seeking. Keep us updated on your condition and if you find anybody!