I am not asking for a diagnosis. I would like to be directed as to where to go from testing of an EEG.
I had an EEG after the neuro wanted to rule out seizure activity. During the EEG, at the time to induce hyperventilation, I was asked to breathe in and out. A cascade of strange symptoms followed that I never experienced in full consciousness. Also, I was fully awake the entire length of the eeg, but the results "stated I was asleep."
As I was breathing my left muscle in my neck started pulling downward and then I felt a weird sensation on left side of head which erupted like a burst at the top of my head. At that point my mouth shut and I was breathing normal in/out of nose. The burst involuntary pulled my head backward and to the left and cascaded down my body which resulted in muscle tightness and tingling. My left arm from the shoulder to my elbow was stiff and at my side and from the elbow down was twitching. My chest was completely rigid and tight. While my legs were moving involuntary.
This continued on and when I was told it was over and asked to get up, I was able to come out of it. I felt confused and disoriented. I sat on the side of the bed and was asked to move from the bed to the chair. At that point, I still had not spoken and I couldn't. I tried to open my mouth and talk, but my mouth formed an O. At that point, my eyes starting blinking rapidly and I felt tears on my face. After the assistant gave me a wet clothe, I was able to explain that I couldn't speak before and I certainly did not understand what just happen.
I felt fairly certain that this test would produce some insight to the myriad of symptoms I had been experiencing, but the test came back normal and only stated that "hyperventilation produced a slow buildup, but no epileptic activity".
What is the accuracy in EEG's, what happened to me during the EEG and how is it possible that there was no more of an explanation concerning what it was?
The problems I had been experiencing I feel were exacerbated during the EEG. Problems with speech: inability to recall names, dates or an object that I should recall instantaneously causing me to appear unresponsive. Twitching in my head, pulling in my neck muscles.
Should I have a Video EEG?
I have never fallen or passed out making it visibally obvisous to everyone that I had a seizure. What will this test tell me that a normal EEG didn't. Should I have another EEG done, instead of a Video eeg. I don't understand what the video EEG will find that the normal eeg didn't and I can't afford to be having unnecessary tests
My neuro didn't seem concerned with my experience during the EEG, but wants to order a video EEG. In addition, I went to neuro for a second opinion of a PET scan in which "abnormal metabolism" was reported, but according to neuro he doesn't agree with this diagnosis.
I am not certain where to go from here..if I should start over with another doctor, if so what specialty. I understand you cannot diagnose. I am asking for direction. Any insight into testing or explantions would be appreciated. Thank you.