I am so sick of feeling this way and just want a good week! Well I want to feel better period! I have been through 2 decompression surgeries for Chiari, after the last one I have felt even worse and I have symptoms worse than I had before and newer symptoms. I recently turned 40 years old. My recent MRI's were NORMAL (as stated from the doctors). The Brain MRI, just states previous decompression surgery for Chiari Malformation and also mentions a lipoma in the supersellar region (it didnt' give the size and it differs on all my MRI's & CT's as to size and whether a lipoma, dermoid, or rathe clefts.
As to my Cervical MRI, they state:
Findings: There is a vertrebal body hemangioma of T4. The curavature of the cervical spine is within normal limits (weird because other MRI's stated lordosis). Theere is disc space narrowing and osteophytess at C2-3, C3-4, C4-5 and C5-6 and C6-7. The bony spinal canal is congenitally small. No abnormal signal is identified within the spinal cord.
C2-3 There is disc protustion or osteophytes causing mild narrowing of the left neural foramen. The thecal sac and right neural foramina are intact.
C3-4 There is disc protrusion and osteophytes measring 2mm. The thecal sac measures 9mm. There is mild narrowing of the neural foramina bilaterally.
C4-5 There is disc protrustion and osteophyte measuring 2-3mm. The thecal sac measures 9mm. There is mild narrowing of the neural forimina bilaterally.
C5-6 There is disc protrusion or osteophyte measuring 2-3mm. The thecal sac is flattened anteriorly. The thecal sac measures 8mm. Disc and/or osteophyteds result in narrowing of the neural foramina bilaterally.
C6-7 There is disc protrustion or osteophtye toward the left measuring 3-4 mm. The thecal sac is flattened anteriorally. The thecal sac measures 8mm. Disc osteophyte narrows left neural foramen greater than right.
C7-T1 The thecal sac and neural foramina are intact.
There is no abnormal enhancement in the cervical region. There is a suboccipital craniectomy.
Impression: Disc Protrusion and osteophytes throughout the cervical region resulting in mild stenosis of the thecal sac and narrowing of the neural foramina as discussed above.
Now could any of this be causing my symptoms? I know it is not in my head and it is NOT depression causing my issues! Something has got to be causing this. I want whatever it is gone and fixed.
Here are just a small amount of the symptoms I have of many:
I get severe pain in my neck and into my face to eyeball and above (all at once - starts in neck) - mostly my right side, but once in awhile I do get in the left - mostly the right though, big time!
I get severe pain/migraine that feel like an icecream headache times 100!
Pain in upper back area worse in one area.
Pain extending into arm.
All kinds of migraines!!! Different kind/areas
some tinglng and pins needles
face freezes up like paralyzing almost - feel like can't breathe, feel like going to pass out (and i have before so I know what that feeling is like), weak, get dizzy but is not spinning dizzy, it is up and down up and down. It is very strange!
I have much weakness in my arm/hand (left side) and my left leg! Big time! I am having trouble typing and more trouble writing. Can't hardly hold pen to paper.
Those are just some! (that is just my upper half).
So why are those results considered normal? They don't cause symptoms? I am in pain here and I need someone to help me but so far, a lot of the people I have gone to see, look at my MRI's for literally 30 seconds and say, "you have a headache, that is normal", etc... or they say, "everyone has those things in your MRI'. I want to feel better. I miss going to concerts, football games, and fishing! I can't stay at family function but for an hour or less. Sitting up etc..makes my neck pain much worse and then I get that into the face, eyeball, etc...!
Any help would be appreciated.
Thanks ahead of time!