I just remembered I had all the tests for B's, B-12, etc. I also had brain MRI no tumors, proteins checked and all such as that.
I have a similar problem with all-of-body-neuropathy. I've had the problem in gradually increasing degrees for a long time, mine is caused by undiagnosed pinched nerves in my neck, when I say undaignosed - it's ONLY taken doctors 22 years to see that I have pinched nerves in my neck despite me complaining about the pains for 22 years and despite the fact I had a car accident 22 years ago that resulted in me suffering whiplash for many months.
God bless Australia.
I have had muscle & joint pain -- and overall feelings of having the flu -- all over my body to the point where it became disabling. Upon numerous tests, the doctors could find nothing wrong. However, I am a diabetic and have had foot neuropathy for many years. What I discovered was that when I kept my blood sugar within the 90-120 range, the pains subsided. When my blood sugar went above 120, the pains would begin to come back. At times, when my blood sugar was 300+, the pains all over my body were so severe I could hardly get out of bed. This experience has been an incentive for me to keep my blood sugar down to around 100 day and night and this entail constant testing/monitoring of my sugar and use of short term acting insulin 4-6 times per day in addition to using long-acting insulin at night and in the morning.
My pain was not of a burning sensation as you describe but more of a severe ache, shooting pains and overall weakness as if I had the flu. Good luck with your case!
I have the exact same symptoms! My whole body burns ALL of the time, even inside my throat, my eyelids, and especially my chest. I have to keep ice packs on my body almost all of the time. I can't sleep without taking several pills to get to sleep because the pain is SO bad. It began just after a car accident where I broke my hip and, over the past seven years has gradually taken over. Like you I have been to numerous doctors, had tons of tests, and tried lots of medicine. I see your post was from 2008, are you any better or worse? Thurman, Lynchburg, VA
I was diagnoised with peripheral neuropathy several months ago and have lesions on my body that I thought was mesquito bites. I naturally scratched them because I have always had a very sensitive reaction to the bites. These lesions are taking forever to heal, are very sore and painful. I am taking 800 mg of neronton twice a day, my vitamin D level was low so I am taking 50,000 iu of Vitamin D twice a week for two months. I have had a Vitamine B 12 deficency but was able to get it back to normal. I am stumped, with these symptoms. I have severe cramps in my legs, abdomen, back, feet and hands especially my fingers. Is there anything else I need to know or do about this and is it going to be permanant? I am 70 years and have always been in good health.
Okay, I want to jump on all of this. First, thank God someone within just a few months posted here and I found this old post still has followers. I posted on Med Help several months ago, but no one answered by cry. I too am a suffer, but my twist is not only is it systemic (toes, legs, arms, back, fingers, face, eyes and even top of my head, mine is worse in my vaginal area!) I wake up every morning to the feeling of something crawling in my vaginal area. I have had all STD testing done, numberous times, all negative. Like all of you, all Blood tests come back that I am healthy as a horse. The other spin I have is my tinnitus is off the charts. Right now it sounds like a high pitch sound you hear when you go for a hearing test, can not put my finger on the exact word to use for what it sounds like. I have refused any medication, not that I am a masochist, but I fear it will interfere with blood testing. I have been advised by the physical therapist I saw to ask for a spinal done, but my Dr says she has no idea what we should check for if she did have spinal fluid drawn. I am hoping to get a referal to the Mayo Clinic in Scottsdale, it was the last thing the neurologist mentioned. He said I have poly neuropathy, which generally means I have neuropathy all over my body, but her refused to do anymore tests. I have been told to see an infectious disease specialist and/or a rare disease specialist. I am in so much pain, mine is not just burning, it is pins and needles, stininging, tingling and then followed by itching. I have forgotten what it feels like to feel normal. I cry a lot, it is my only help, other than when I can get to sleep. This is no way to live. We all need to stay in touch and let others know what we find. Support is so vital. I wish all of us the gift of finding a good Dr and a diagnosis..D
Have you considered that you might have Candida? I have the exact same symptoms and I am convinced it comes from yeast....testing for it is difficult, but the best testing is from the stool - not blood tests....Yeast is a fungus and difficult to treat...one of the best methods is 1 part baking soda with 3 parts of organic maple syrup (yeast loves sugar) place it in a pan on the stove and cook over low heat, so it binds....so the yeast is drawn to the sugar, and the baking soda destroys the yeast...I just started taking this, so I don't have results yet. It's worth a try...also, check it out on google.
Me too! Full body all over burning tingling debilitating pain. When I wake up in the morning my whole body is buzzing and burning, including my head, which feels like it's in another dimension. I test negative for EVERYTHING. I don't think this is peripheral neuropathy. It's much more serious than that. And I have these attacks sometimes that include tremors, electric shocks like lightning through my brain, severe cognitive difficulties, and too many other things to list. Yours is the first account I've read that is similar to mine. Please let me know if you learn anything, and I'll do the same.
have you ever read up on morgellans? do you have a lot of shiny shimmers all over your hands in the sunlight? have you ever taken cipro or levaquin? I am stinging from head to toe after 4 scripts of levaquin that seemed to blow my entire sensory nerves out.. I am literally out of my mind with it and feel like I am being electrocuted.
hi I am the exact same way could you pleaseeee write to me at ***@****
I have same issues - burning stinging sensations all over body from head to toe and feel my body breaking down due to it. All tests negative, severe hair loss, rashes, uticaria, itching like something is crawling on me! It feels like something is in me and causing me to be allergic to everything. This all happened shortly after delivery of my first child. Please post if you discover the cause of all of this
I have this same thing head to toe tingling and burning, it has stopped me from living a normal life. I also have been tested for everything, no help at all. I AM ON LYRICA WHICH DID HELP AT FIRST BUT IS NOW not working anymore, I am also on cymbalta and pain pills and now paroxtine even with all these drugs I am sitting here tingling and burning. I cannot live like this its just awful. The only way I can sleep is with sleeping pills. They have said neuropathy, fibromyalgia but there is nothing they can do for me, there doing the only things they know of to do. If anyone comes up with a different answer please let me know