My 2 1/2 year old suffered a grand mal seizure last Sunday. He has never had anything like that happen before, and there was no warning. We went to the ER and were told it was a "febrile" seizure (his temp was 102.4). They administered Motrin and Tylenol and he started feeling better. He was released, and as we were walking out of the ER (literally) he started seizing again. This was about 3-hours after the first episode. He was admitted into the ICU where he had two more seizures over the next 8-hours. During one of the seizures, they gave him Atavan (?). While there, he was tested for meningitis, pneumonia, had a CT scan and numerous blood tests - all tests came back fine.
He was released Tuesday morning and was fine until last Friday when, out-of-the-blue, he had another seizure. His pediatrician put him on "phenobarbital", which we started Friday afternoon. The next day (yesterday), he was groggy and lethargic - probably due to both the seizures themselves, and the medication. He had three seizures during the day. Today he has had three seizures.
My concern is that he is having so many. And, what could have triggered these episodes, as he has always been healthy?
**During the seizures, he clenches his hands up near his neck and his entire body shakes / jerks. He makes "ck ck" sounds in his throat, and in a few his lips have turned blue.
Any advice or suggestions would be greatly appreciated!!!