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a medical condition that is ruining my life

I have a disorder thst has stumped top Dallas doctors that I would love for someone who has had this could help me identify.
When I become warm I get a sudden onset of stinging all over that is just unbearable. If I go somewhere that is cool, the stinging goes away completely in 5 minutes. I've had my blood and body chemistry looked at by an internist,
hemotologist, dermotologist, urologist, psychyatrist
Has anyone dealt with this?
thanks
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Avatar universal
You might check an acupuncturist my body has done somewhat similar things but not as severe as yours.  You need to see an acupuncturist with a master's degree they have more than 2000 hrs of training and a MD who does medical acupuncture only has about 200 hrs.  To me it sounds like you are having an allergic reaction.  You might see if your pcp will give you a steroid dose pack it might do the trick then you would know it is either allergies or autoimmune ... good luck
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Avatar universal
Here is what I have experienced.


RAPID ONSET in October of 2007:

Stinging – hundreds of needle points on skin (sweat glands?):
like tiny hot metal sparks from 4th of July sparkler
(not tingling, not itching, not prickly, not like parasthesia)

It is as if each sweat gland produces a hot needle stick instead of sweat.


I feel pressure “spikes” in my forehead just before the stinging begins.

Can be triggered by:
An increase room temperature (with no change in activity),

Moving from cooler temp to warmer temp,

Holding back urination or defecation

Any physical exertion or straining, (coughing, bending over, carrying, or physical working).

Being in Sunlight (with no exertion)

Being “startled” (almost dropping a plate, un-expected noise).

Moving to colder temp and getting wet can reduce the intensity and after several minutes, it can stop. Usually, I have to move slowly to a warm area and return to the cold area several times to be able to stay in the warmer area. (I have to wear a wet shirt and towel around my neck most of the day at work.)

Cold / CHILLS –

I feel painfully cold (shivering & goose flesh). Chills come in waves from mid-section. If I try to get warm and get a little too warm, the stinging starts. This can happen even with a stable room temp. (Measured body temp has been 93.8° at times) I can be “freezing” at 76° or stinging at 20°. Sometimes have “goose” flesh while hot & stinging.

It reads congruent with much of Cholinergic Urticaria descriptions.
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Avatar universal
Here's that last link to the forum where everybody is stinging, sorry I left it off up there:
http://************.com/health/topic32323.html
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Avatar universal
http://www.mayoclinic.com/health/heat-rash/DS01058
http://www.nelsonsnaturalworld.com/en-gb/uk/a-z-of-ailments/first-aid/prickly-heat/

Don't know if the above links are what you have, but they do have an explanation for some types of heat rash or prickly heat (altho you may not have a rash, rather just the symptom of stinging), and also some ideas as to how to treat it.  But apparently getting overheated can cause a person's skin to really fire up, and it has to do with sweat glands getting clogged for various reasons and thus sweat has nowhere to go and causes irritation.

If you have other signs, it can also indicate quite a variety of medical diseases, ranging from Multiple Sclerosis to simple fibromyalgia.  Here is a link that talks about all that, altho it is based on an "itchy" feeling rather than a "stinging":
http://www.mayoclinic.com/health/itchy-skin/DS00847/DSECTION=causes
However, there are some kinds of nerve damage that can cause pain or an intense stinging sensation just when the skin is touched, which is not exactly you, but this website is sort of like the other one, in that it lists a bunch of nerve problems that can cause what you have:
http://www.livestrong.com/article/280311-why-does-my-skin-hurt-when-my-clothes-rub-against-it/

Also, medications can cause the skin irritation, like Accutane or clonidine, so if you are taking any medicine, review all the side effects.  Also, my FAVORITE reason you have this is to suspect any kind of soap, laundry detergent, or if you have dry skin and use lotion, then consider switching brands of any of those, particularly detergent.  I have VERY sensitive skin, altho not what you have, and I can only use certain products, like Dove for taking baths and Arm & Hammer laundry detergent.  Keep in mind that if you do not have the standard prickly heat illness, where it's not good to put certain things on your skin, you COULD go to the drugstore and find a skin soothing medicated lotion with numbing stuff in it, might get you through some rough patches.

And last but not least, here is a link to a forum where everybody there has got this stinging skin, some of it doesn't apply to you, but around halfway down, a person sounded just like you, and the reply was it might be cholinergic urticaria, which you can do a search on that one and see what the info says.  Sorry I couldn't be specific, but I imagine if you cannot find what you're looking for in what I've given you, I would go to another dermatologist and also an internal medicine physician group, and have another go at diagnosis.
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