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363281 tn?1590104173

Has any one had this surgery.

Well, I saw my GP yesterday, and the visit scared me and upset me so badly, I am still shaking this morning. He did a version of a hearing test (you wear headphones and each side is done individually) There are 4 levels of sound, two are low frequency and 2 high frequency. Well, I did fine on the left ear, but when it checked the right one (the one that has  swelling and cause all those vertigo issues I have) I did not hear the two high frequency ones. He says I have high frequency deafness in the right ear and is ordering an MRI to rule out an Acoustic Neuroma (benign brain tumor). I know what they are and have heard there are dangers to the surgery. I am petrified and have been crying off and on since I left his office. I have most symptoms of one, but don't have fascial numbness and both ears ring instead of just the right one. He said AN can mimic TMJ (Dental problems) and Meniers, but we won't know unless we scan. I have never been this scared in my life. The idea of surgery is making me sick. I don't know when the MRI will be, probably after I have another hearing scan November 10.

I am so scared, I can not even think straight.
5 Responses
987762 tn?1331027953
Hi there,

I totally understand you are feeling really scared over this situation but your anxiety issues has got you jumping to the conclusion that you absolutely do have Acoustic Neuroma (benign brain tumor) and absolutely must have a dangerous brain surgery, which isn't at all your reality.

If you can get control over your health related anxiety, you will be able to see more clearly that you not only fear having a rare medical condition that you havent even been diagnosed with and because of its quite uncommon, you most likely never will be diagnosed with.

You have also been feeding these health related anxieties, by reading about Acoustic Neuroma worst case senario brain surgeries, which in the unlikely event that you did actually get diagnosed with Acoustic Neuroma (benign brain tumor) it probably wouldnt even be the best treatment option for your specific situation.....breath!!

Find your calm and breath.............JJ  
Avatar universal
I have never had the test done, but think positive that it is not what he says it is. Have the MRI done and then you know for sure.
3 Comments
He hasn't actually said what it is, what prompted the idea for the MRI was the fact that in my right ear, I could not hear the two high frequency sounds, and I guess that is a symptom of an Acoustic Neuroma, but it can also be a sign of Menieres. He isn't going to schedule the MRI until I have another more thorough hearing test at an audiologist, but he feels it will reveal the same thing. It is strange, I hear perfectly, I hear things my husband can't hear even.  I just decided that when he said MRI, that it would be a tumor, I have a vivid imagination, but I admit, I am scared.
I definitely know how you are feeling as I just had an MRA and MRI and even though they could not even tell with these test I had a mini stroke which caused double vision. I am wearing prisms and it is getting better, but what they thought it was it was not. So don't let it scare you to have the test done if anything it can be good to show it is not what they think. I  will be praying for you....
Thank you, I appreciate your prayers
987762 tn?1331027953
I found some information about high frequency hearing loss that i thought you might find helpful....

"One of the most common types of hearing loss is known as high-frequency hearing loss. This means high-pitched sounds are harder to hear. It can affect anyone of any age, but is common in older adults with age-related hearing loss, as well as people exposed to loud noises. "

"Causes of high-frequency hearing loss
People of all ages can be affected by high-frequency hearing loss—and the reasons causing it are just as varied.

Aging
Age-related hearing loss is called presbycusis. Because this is a slow process that usually affects both ears equally, it’s often difficult to notice. One of the first signs is difficulty understanding speech in noisy environments.

Noise
Millions of Americans have hearing damage due to noise-induced hearing loss. The damage can occur as the result of a one-time, loud exposure to noise, such as a gunshot or explosion, or can occur over time with constant exposure to noise louder than 85 decibels.

Genetics
Check your family history. If your relatives developed high-frequency hearing loss, you may be genetically predisposed to developing it as well.

Medications
Some types of drugs are ototoxic, meaning they are harmful to your hearing health. Some of the more common ototoxic drugs include salicylates (aspirin) in large quantities, drugs used in chemotherapy treatments and aminoglycoside antibiotics.

Diseases
Meniere’s disease, which affects the inner ear, often occurs between the ages of 30-50 and may include fluctuating hearing loss, tinnitus and vertigo or intense dizziness. In severe cases, though, it typically causes low-frequency hearing loss.

In children, chronic otitis media (commonly known as a middle ear infection) can lead to hearing loss if it’s untreated. "
https://www.healthyhearing.com/report/52448-Understanding-high-frequency-hearing-loss

Hope that helps......JJ
1 Comments
Thank you. I appreciate this.  So far, mine is just the right side but both sides ring.
363281 tn?1590104173
Yesterday was awful. I tried to wash my hair over the sink and when I bent down I had a terrifying vertigo spell, I could not even finish. I was grabbing on to the kitchen counter and trying to stand, I was crying. I finally was able to stand but was shaking so badly I could hardly walk, it was horrible  the worse I have had. I am still very shaky and feel unbalanced. I am petrified. I made an appointment to see the doctor today at 3:45, I have to get some help. I am getting paralyzed with fear. I feel like I have no where to turn, like I am trapped in this literal vicious circle.

During my doctor appointment, I described what happened and how scared I was before trying to wash my hair, I already was shaking and dizzy before I started and when I bent my head down all hell broke loose. I told him all the symptoms I had after, I was crying as I told him which embarrassed me but I am sure he has seen that before. After I finished sharing he said he truly believes that my sub-conscience has gotten out of control and it isn't my fault, past experiences have helped to make it what it is and the last few years have added to it. He said I actually had a full blown panic attack as I was trying to wash my hair and that, added to the already fear of dizziness climaxed to the full blown incident. He said I could take meds to help but with my history of bad reactions to them he didn't think it would be good and I agree, I am petrified of them. We talked some more and I have set up an appointment with him for next week for F.A.C.T. therapy.
I also told him that I now am even afraid to look at that damn kitchen sink and when I walk into the kitchen and do dishes I almost get dizzy again and panic. It's awful.
987762 tn?1331027953
This pdf will help explain F.A.C.T therapy and help you work through some of your current issues.....

https://contextualscience.org/files/Robinson%20Strosahl%20Gustavsson%202-day%20June%2017-18%20handout%202.pdf

My advice would be to have a try at focusing on talking yourself out of your fearful thoughts re kitchen sink, by actively challenging them and see if it helps.

Take care..........JJ
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