Aa
A
A
A
Close
Neurology Community
45.1k Members
454606 tn?1361925680

Heat Intolerance- Please advise on how to manage

I do believe I am having a problem regulating my body temperature, and I don't know what to do about it!  No, I do not sweat.  Yesterday I was in a store shopping for clothes.  I thought I was fine.  In the dressing room to try things on, I was suddenly feeling hot, especially in my face, and like I was doing some serious blushing, or had a sun burn.  My face and neck were bright red, yet the fitting room seemed like a refrigerator in there.  I took of my clothes and noticed that I could see the veins through my skin, like they were buldging to the surface.   Today's situation has happened a couple of times.  The AC was on in the car and I felt fine, but when I came into the house, I felt like I was freezing.  I knew my body was cold, because when my legs and feet are cold, they hurt so badly.  My PPN is up to my hips as of two years ago.  Hope this is enough information, and not too much to read.  I just need to know what I should do until I see a neurologist who says more than "I can't help you, you know that, don't you?" which is exactly what mine said.  I have an appointment with another in one month, but I have had five episodes like this in as many days.  I need to know now what I should do to manage it.
Thank you!
Katijanae
9 Responses
368646 tn?1208393887
One thing you might want to explore is a problem with your autonomic nervous system.  There is a whole host of problems (digestive, temperature intolerance, etc.) that can occur from this.

There is a LOT of info out there, but here is a place to get started:

http://en.wikipedia.org/wiki/Autonomic_nervous_system
454606 tn?1361925680
Thanks for your comment.  I do believe I have autonomic neuropathy, but am awaiting an appointment with a qualified neurologist to be diagnosed..  I have all of the key symptoms, bowel bladder, sexual, digestive and now this temperature intolerance thing.  I've read all I can find on the net, but everything seem to talk about the symptoms, and I haven't found one article yet on precautions I should take to manage this temperature thing.  It's getting to be more and more of a problem here as the weather gets warmer.  I hope someone can tell me what to do soon.
Katijanae
368646 tn?1208393887
My Neuro told me there is a GREAT doc at the Mayo Clinic in Minnesota who deals with ANS disorders.  I don't have his name yet as I, too, am awaiting diagnosis.  I'll "keep you in the loop" if I hear anything.
Avatar universal
Have you seen your ob/gyn lately?

I wouldn't automatically assume that it is a neuro problem... There are other things that can cause your symptoms.

God Bless!
Amy
454606 tn?1361925680
I was given the name of Dr Phillip Low in neurology at Mayo Clinic in MN, and my doctor here has sent my records to him for review.  I was told by Mayo that he is highly sought after, that the soonest I could possibly be able to see him, if he agrees to see me, is the end of August.  I'm concerned about getting through the Summer when I don't know what to do to be safe with it.
I hope you can get some good help soon too, Ampky.  
Katijanae  
454606 tn?1361925680
I'm not aware of any gynocological problems that would cause all of my symptoms ( I forgot to mention my resting heart rate of 120), but if you know of something that a woman on Premarin, with no reproductive organs could experience that would cause all of these problems, I am happy to listen, of course.  Please read my first reply to Ampky to get a full picture of the symptoms I have, and keep in mind that I have limited abulation of about 20 feet with forearm crutches,  and use a wheelchair to get around most of the time, so there is pre-existing neurological deficit, including severe peripheral neuropathy from my hips down, as per an EMG 3 years ago.  I do appreciate any and all input though, and I also appreciate any blessings that come my way.
God bless you too!
Katijanae
Avatar universal
Wow..... your other health problems & symptoms do add a lot more to the picture...  I didn't read any of those anywhere on this thread, or would not have suggested seeing an ob/gyn.  What does the doctor say about your heart rate?  That would concern me as much as the heat intolerance... and I would have to wonder if it were related. ???
I hope you find a good doctor soon...

God Bless!
Amy
Avatar universal
Was doing some research tonight for myself....... stumbled on this web site....... doesnt mean anything to me, but thought about your post while reading it.  Thought I should post it for you in case it might help you... who knows....  Here's the link:

http://www.arachnoiditis.info/content/articles/neurological_aspects_arach/neuro_aspect_arach3.html

God Bless!
Amy
454606 tn?1361925680
Thanks for the link Shakin.  I don't have arachnoiditis, and I don't sweat, but the part about autonomic disfunction fits me very well.  My physiatrist believes I have Autonomic Neuropathy, which does cause autonomic disfunction.   Inability to regulate temperature is part of that, and because I don't sense the change in my body temperature, I don't know how I would avoid overheating as the weather gets warmer.  People die from this.   That's why I was hoping for some advice on what to do about this particular part of my condition.  Yesterday I spoke to a woman who's husband has autonomic neuropathy and the very same problems I have.  Her husband was diagnosed at Vanderbilt and the only advice they could give him was "don't get too warm".  They had no more information than that to give him, so perhaps there is no answer.  I hope that's not the case, and I hope the doctor here will comment, whether he knows what I should do or not.
Yours in HIm,
Kati
Have an Answer?
Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
5265383 tn?1483808356
ON
1756321 tn?1547095325
Queensland, Australia
1780921 tn?1499301793
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease