One thing you might want to explore is a problem with your autonomic nervous system. There is a whole host of problems (digestive, temperature intolerance, etc.) that can occur from this.
There is a LOT of info out there, but here is a place to get started:
Thanks for your comment. I do believe I have autonomic neuropathy, but am awaiting an appointment with a qualified neurologist to be diagnosed.. I have all of the key symptoms, bowel bladder, sexual, digestive and now this temperature intolerance thing. I've read all I can find on the net, but everything seem to talk about the symptoms, and I haven't found one article yet on precautions I should take to manage this temperature thing. It's getting to be more and more of a problem here as the weather gets warmer. I hope someone can tell me what to do soon.
My Neuro told me there is a GREAT doc at the Mayo Clinic in Minnesota who deals with ANS disorders. I don't have his name yet as I, too, am awaiting diagnosis. I'll "keep you in the loop" if I hear anything.
Have you seen your ob/gyn lately?
I wouldn't automatically assume that it is a neuro problem... There are other things that can cause your symptoms.
I was given the name of Dr Phillip Low in neurology at Mayo Clinic in MN, and my doctor here has sent my records to him for review. I was told by Mayo that he is highly sought after, that the soonest I could possibly be able to see him, if he agrees to see me, is the end of August. I'm concerned about getting through the Summer when I don't know what to do to be safe with it.
I hope you can get some good help soon too, Ampky.
I'm not aware of any gynocological problems that would cause all of my symptoms ( I forgot to mention my resting heart rate of 120), but if you know of something that a woman on Premarin, with no reproductive organs could experience that would cause all of these problems, I am happy to listen, of course. Please read my first reply to Ampky to get a full picture of the symptoms I have, and keep in mind that I have limited abulation of about 20 feet with forearm crutches, and use a wheelchair to get around most of the time, so there is pre-existing neurological deficit, including severe peripheral neuropathy from my hips down, as per an EMG 3 years ago. I do appreciate any and all input though, and I also appreciate any blessings that come my way.
God bless you too!
Wow..... your other health problems & symptoms do add a lot more to the picture... I didn't read any of those anywhere on this thread, or would not have suggested seeing an ob/gyn. What does the doctor say about your heart rate? That would concern me as much as the heat intolerance... and I would have to wonder if it were related. ???
I hope you find a good doctor soon...
Was doing some research tonight for myself....... stumbled on this web site....... doesnt mean anything to me, but thought about your post while reading it. Thought I should post it for you in case it might help you... who knows.... Here's the link:
Thanks for the link Shakin. I don't have arachnoiditis, and I don't sweat, but the part about autonomic disfunction fits me very well. My physiatrist believes I have Autonomic Neuropathy, which does cause autonomic disfunction. Inability to regulate temperature is part of that, and because I don't sense the change in my body temperature, I don't know how I would avoid overheating as the weather gets warmer. People die from this. That's why I was hoping for some advice on what to do about this particular part of my condition. Yesterday I spoke to a woman who's husband has autonomic neuropathy and the very same problems I have. Her husband was diagnosed at Vanderbilt and the only advice they could give him was "don't get too warm". They had no more information than that to give him, so perhaps there is no answer. I hope that's not the case, and I hope the doctor here will comment, whether he knows what I should do or not.
Yours in HIm,