I have had chronic elevated CK for no obvious cause, and if I exercise or do any even mildly strenuous activity,
it rises dramatically. Pain can be severe or very mild, but fairly constant. I have recently developed pain and movement problems in both shoulders, and it is worse in the right arm, muscle pain travels down the arm and in both their are a kind of burning sensations at times, like battery acid is in there. Xrays and Ultrasounds of the rotator cuffs show nothing, bone is better than good, not a speck of arthritis. I have had been found to previously
have a low acid maltase but not to the point of Pompe or anthing, muscle biopsy showed fairly normal, and most bloodwork shows up normal, other than the CK, occassional elevated Sed Rate, and chronic low iron, not quite anemia but close, and a history of autoimmune thyroid for about fifteen years but TSH is fine, my anitbodies are
quite plentiful I've been told, more than most have ever seen. I have had numb toes for years, no dx, no diabetes.
Any insight, direction I could take would be most welcome. I have had one specialist who's care I am not under suggest Polymyositis as a possibility. Thanks so much.