Hydrocephalus/VP shunt problems

[briah]

I was diagnosed with hydrocephalus a bit later in life than most patients with it, I was diagnosed at age 12 (1999). Last year, I became pregnant unknowingly which increased my ICP, and a VP shunt was placed. As of lately (the last two months) I've had excruciating headaches.. every day, and numerous ER visits later, only to be diagnosed with a migrane. However, the last ER visit I was finally given something else, that some patients with VP shunts have 'shunt headaches'. I've never heard of this, and never had anyone else tell me anything about a 'shunt headache'. Has anyone ever experienced anything like this? I've been told to look into pain management but have no insurance, so I think I'm out of luck until I can get some.. I'm debating on having the entire shunt removed. Could this even be an option? I just really need some help with this, I can't keep living in pain like this.

[Aimkat]

That is exactly what happened to me! I am having terrible Vp shunt issues. what our parents did was neglect and put us in danger. I have thought about consulting an attorney against my own mother. My shunt was a result of parental abuse. I know your pain. I was told I shouldve had many shunt series done and the resection:( Good parents are priceless! omg   Aimee K.

[RubyZimmie]

Dont know where you are located but just google Dr William Smith neurosurgeon and you will be amazed. He did my surgery and after reading all these posts i feel very lucky.He said headaches like this are a sign the shunt is blocked or plugged up. I would think any neurologist should know that.

[RubyZimmie]

Dont know where you are located but just google Dr William Smith neurosurgeon and you will be amazed. He did my surgery and after reading all these posts i feel very lucky. He has pioneered over 200 procedures and patented many devices a swell. He is on call to the Royal Family in Saudi but he is the friendliest, nicest and down to earth man I know. GREAT surgeon...worth a trip to NV or AZ

[Threewheelmobile]

Hi  luv.
I read when you go into stores you get a headache. Do you wear sunglasses or have shaded glasses to protect your eyes from the neon lights. The neonlights are very hard on the eyes, which in turn can cause headaches. Have you gotten your urine tested for bladder infections ? Did they keep it long enough to be sure that you don't have a bladder infection that cannot be tested by just with  a paper?
I have never heard of burning stoels  , are they hard ? If they are too hard get Colon Clean , it is a homeopathic remedy which is guaranteed to get your stoels to the proper consistency and make your life so much more pleasant.  Have you been checked for Hemoroids?
God Bless and take care.
Threewheelmobile

[Juicyhead]

I'm not sure about the hot urine or stool part but the gait problems and headache pain can definitely be caused from the shunt.

[bethobe]

Did you have the programmable shunt put in?  If so it could be the source of your problems.  My sister had it put in for her pseudo tumor cerebri and she had to have it redone 4 times in one year and now she just had them take it out altogether.  Since getting it out she found out that there is a recall on that shunt and it totally explains her problems that she was having.  She definitely had more problems with the shunt than without.