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Hypersensitive Skin
Hi. I suffer quite often but not all the time, from hypersensitive skin. It feels as though it's been scalded and it hurts to touch that area. It may be on my face, top of my thigh, waist, calf; seems it strikes one side of my body at one time in different spots. It affected my calf this week, and I could barely walk on that leg. I have had neuro check ups with no results or findings that support any disease in particular. I've suffered from this for about 10 years and it's getting worse. I am very frustrated because I don't know what to do to help myself at this point. Does anyone else suffer from this and have you been diagnosed with anything or have you found a med or supplement that helps? I do suffer from hypothyroidism and an occasional migraine. I take Synthroid .75mcg. Any help would be greatly appreciated. Thank you
Ask your doctor about Cymbalta, stopped my very bad hypersensitivity all over my body that wearing clothes would make scream from pain, my husband couldn't touch my skin, hold my hand or kiss my face he can now, except my hand sometimes because of my neuropathy is worse in my hands. Best of health and recovery.
I have constant hypersensitive pain mostly in legs and bottom of feet. Started after a cervical spinal cord injury. Thankfully I have no paralysis. Got much worse after lumbar fusion surgery. Think long and clearly before ever doing that.
My hypersensitive pain gets worse when my back pain is highest. I have some hypersensitive all over my body. Have been told overe time I can make it better by rubbing the areas with terri cloth. In other words to make it worse, make it better. Would YOU want to do that? I don't! I wish I knew what to tell you, or me. My pain from it lately has been horrible. A hot shower helps a little for awhile. That's all I can offer. God bless you and your efferts.
My hypersensitive pain gets worse when my back pain is highest. I have some hypersensitive all over my body. Have been told overe time I can make it better by rubbing the areas with terri cloth. In other words to make it worse, make it better. Would YOU want to do that? I don't! I wish I knew what to tell you, or me. My pain from it lately has been horrible. A hot shower helps a little for awhile. That's all I can offer. God bless you and your efferts.
1 Comments
I have very bad hypersensitivity all over my body caused from my neuropathy, hypothyroidism, and fibromyalgia. The one drug my doctor put me on is Cymbalta, now my skin feel so much better I can wear clothes without screaming, my hands being the only place that are still sensitive but, nowhere close to as bad, my neuropathy is just really bad in my hands and feet. I know it ***** not to have a diagnosis I have really bad stomach problems no one can diagnose so I know how everyone feels, but I do know Cymbalta works great I have so much other pain I am glad that pain is under control. Just an option to try, I hope someone still comes back here and reads this. Best of health and recovery to all.
I have EXTREME Skin Sensitivity ALL OVER- (Nearly always at Night-)
It's like having a fever all the time. My skin tingles, burns, itches and I can feel the minutest particle in bed! (I hardly get any sleep now which aggravates my Hypothyroidism and Fibromyalgia.)
It's driving me crazy!!
Have any of you found any more info and / or relief?
I Sympathize with fellow sufferers and would appreciate ANY help you can offer! (I'm near Houston, TX if you know a really good Doctor-)
It's like having a fever all the time. My skin tingles, burns, itches and I can feel the minutest particle in bed! (I hardly get any sleep now which aggravates my Hypothyroidism and Fibromyalgia.)
It's driving me crazy!!
Have any of you found any more info and / or relief?
I Sympathize with fellow sufferers and would appreciate ANY help you can offer! (I'm near Houston, TX if you know a really good Doctor-)
Complex Regional Pain Syndrome, is often misdiagnosed as fibromyalgia & sometimes all too often ignored completely by uninformed doctors !!! Unfortunately doctors all to often don't listen to their patients, when it's the patients who know their bodies best !!!!!!! I tagged quiet a few of you in the last post because you all talked about symptoms that do fit, but i'm NOT a doctor .... it's just something you could look into !!! I put a lot of information about the disease up there to try & inform you as much as I can, but there's plenty more on the internet .... this disease is RARE please understand that ... but chances are one of you actually may have it !!! I hope this information helps !!!!
netnet979, aldunn72023, dixielilly, ElsepthG, Auspiciousme, gypcwmn, JamieA76, KickedoldSally, Stevie0521, Stevie you said they diagnosed you with Lyme Disease where you bite by a tick ?? Some suggestions for pain relief though .... try Capsaicin cream, it's OTC & made of chili's !!! It works really well !!! Also since the pain is on the skin, ask your doctors about topiramate, it's for nerve pain. Also Nucynta which is also for nerve pain !! These both help the pain & skin sensitivity, I take both on a daily basis .... although my sensitivity & constant severe pain is from a disease called, Complex Regional Pain Syndrome !! It developed after an injury at work !!!! My left leg was crushed between metal bars & shortly after my entire left leg felt like it was on fire .... I also developed a severe allodynia, or hypersensitivity to touch on my skin !!! The slightest touch to my leg sent me into tears !!! Even fingertips on my leg felt as if someone was beating my leg !! Between than & my leg feeling like it was constantly on fire, I thought I was going crazy !! What's worst is when the doctors can't find anything & they don't believe you !!!!! I seen probably 7 doctors before being properly diagnosed !! After being misdiagnosed several times of coarse ... how I finally got my diagnosis was, about 7 months after my injury my leg turned bright purple !!! Just one day I woke up & it was purple with white blotches !! I was so scared !! I went to the ER & they told me I had Cellulitis. .. after seeing an infectious disease doctor, I found out I didn't !! Then I went to see the doctor I have now, I told him ALL my symptoms & he took one look at my leg & told me it was C.R.P.S. ...
There are two categories of CRPS namely CRPS I and CRPS II. The first type is often triggered due to a tissue injury and does not have any apparent nerve injury. In the case of patients suffering from CRPS II there is a clear indication of the disease being associated with some nerve injury. Other terms that have been used to describe CRPS are ‘Causalgia’ and Reflex Sympathetic Dystrophy Syndrome’. The word ‘Causalgia’ came into being around the time of the American Civil War
to describe a condition when war veterans experienced intense pain even after their wounds had healed. Both men and women, and
sometimes even children, can be affected by CRPS. However, it has been noted that it is much more frequent among women rather than
men.
Causes of CRPS
The exact causes for CRPS still continue to elude the grasp of professional medical practitioners and specialists. Most of them
agree that is does not have a single, definite cause. It is a medical condition that is actually a combination of several other medical
complications that share the same symptoms. Having said that, CRPS has often been found to inflict a person who has suffered from: some kind of trauma to the limb (could be a gun shot wound or shrapnel blast)
surgery
heart attacks
fractures
infections
Symptoms of CRPS
Some of the symptoms of CRPS include:
intense, burning pain often targeting
extremities such as arms, legs, hands or feet changes in the skin’s color, texture and sensitivity changes in nail growth patterns changes in hair growth patterns stiffness and swelling in the affected joints disability to move affected body part
Sometimes the pain begins in a finger or toe and travels through the entire arm or leg. The above mentioned symptoms can vary in terms of length and severity. The progression of the
disease could be of any of the following types:
Type 1: intense, burning pain where the injury has occurred. Rapid nail and hair growth maybe noticed. Muscle spasm and stiffness of joints
may also occur. The patient might also experience vasospasm or constriction of blood vessels which can lead to skin discoloration or variation of temperature.
Type 2: The pain begins to worsen and intensify. Bones become soft and nails tend to become brittle and cracked. Joints stiffen and muscles begin to weaken further.
Type 3: This type is quite severe and the patient may begin to suffer from restrictions in terms of mobility. The pain spread rapidly and begins to
affect the entire limb. Marked muscle loss also sets in and the changes in bones and skin often become irreversible. Some of the other problems faced by patients suffering from CRPS are insomnia, lack of
concentration, forgetfulness, irritability, anxiety and depression.
Signs and symptoms of complex
regional pain syndrome include:
Continuous burning or throbbing pain, usually in your arm, leg, hand or foot
Sensitivity to touch or cold Swelling of the painful area Changes in skin temperature —at times your skin may be sweaty; at other times it may
be cold Changes in skin color, which
can range from white and mottled to red or blue Changes in skin texture, which may become tender, thin or
shiny in the affected area Changes in hair and nail growth Joint stiffness, swelling and damage Muscle spasms, weakness and loss (atrophy) Decreased ability to move the affected body part
The term 'allodynia' refers to the pain that is produced by usually non painful stimuli. When a person is affected by this condition, he/she experiences painful, tingling or pricking sensation, even when the skin is touched gently. Such exaggerated skin sensitivity is usually associated with neuropathies or pathologies of the peripheral nerves.
Types of Allodynia
If the pain is felt when the skin is touched, it is called tactile or mechanical allodynia. Apart from tactile allodynia, there are three other types of allodynia.
These include:
Static mechanical allodynia (pain felt due to light touch or pressure) Dynamic mechanical allodynia (pain felt due to brushing) Thermal allodynia (pain felt due to hot or cold stimuli)
Causes
A painful sensation felt on touching
the skin can be a sign of several health conditions.
These include:
Most often, it is peripheral neuropathy, which occurs when the nerves of the peripheral nervous system get damaged. It can cause the skin to become so sensitive
that one can experience intense pain and pricking or a tingling sensation, even when the skin is touched gently.
Diabetic neuropathy, which is a complication of diabetes, could also be a contributory factor. Fibromyalgia, the condition which is associated with heightened painful response to pressure, can also cause
allodynia. Sometimes, excessively
touch-sensitive skin can be a result of postherpetic neuralgia, which refers to nerve pain that may occur as a complication of shingles.
Shingles is caused by the reactivation of Varicella zoster virus, which is the virus that causes chickenpox. The area of the skin that is affected by
the rash or skin lesions caused by shingles can remain sensitive for several days, even after the rash and lesions have disappeared. The virus
can lay dormant in the human body and can get reactivated when the immune system is weakened due to some other health condition(s). Tactile defensiveness is a neurological disorder that is caused by a neurological defect in the midbrain, which is concerned with evaluating and filtering different types of stimuli. The result of such a
defect is the exaggerated painful response to stimuli like touch and gentle pressure. Apart from these, certain other conditions can also render touch-sensitive and painful
skin, and they are chronic fatigue syndrome, deficiency of vitamin B1, B2, B6 and B7 and migraine.
There are two categories of CRPS namely CRPS I and CRPS II. The first type is often triggered due to a tissue injury and does not have any apparent nerve injury. In the case of patients suffering from CRPS II there is a clear indication of the disease being associated with some nerve injury. Other terms that have been used to describe CRPS are ‘Causalgia’ and Reflex Sympathetic Dystrophy Syndrome’. The word ‘Causalgia’ came into being around the time of the American Civil War
to describe a condition when war veterans experienced intense pain even after their wounds had healed. Both men and women, and
sometimes even children, can be affected by CRPS. However, it has been noted that it is much more frequent among women rather than
men.
Causes of CRPS
The exact causes for CRPS still continue to elude the grasp of professional medical practitioners and specialists. Most of them
agree that is does not have a single, definite cause. It is a medical condition that is actually a combination of several other medical
complications that share the same symptoms. Having said that, CRPS has often been found to inflict a person who has suffered from: some kind of trauma to the limb (could be a gun shot wound or shrapnel blast)
surgery
heart attacks
fractures
infections
Symptoms of CRPS
Some of the symptoms of CRPS include:
intense, burning pain often targeting
extremities such as arms, legs, hands or feet changes in the skin’s color, texture and sensitivity changes in nail growth patterns changes in hair growth patterns stiffness and swelling in the affected joints disability to move affected body part
Sometimes the pain begins in a finger or toe and travels through the entire arm or leg. The above mentioned symptoms can vary in terms of length and severity. The progression of the
disease could be of any of the following types:
Type 1: intense, burning pain where the injury has occurred. Rapid nail and hair growth maybe noticed. Muscle spasm and stiffness of joints
may also occur. The patient might also experience vasospasm or constriction of blood vessels which can lead to skin discoloration or variation of temperature.
Type 2: The pain begins to worsen and intensify. Bones become soft and nails tend to become brittle and cracked. Joints stiffen and muscles begin to weaken further.
Type 3: This type is quite severe and the patient may begin to suffer from restrictions in terms of mobility. The pain spread rapidly and begins to
affect the entire limb. Marked muscle loss also sets in and the changes in bones and skin often become irreversible. Some of the other problems faced by patients suffering from CRPS are insomnia, lack of
concentration, forgetfulness, irritability, anxiety and depression.
Signs and symptoms of complex
regional pain syndrome include:
Continuous burning or throbbing pain, usually in your arm, leg, hand or foot
Sensitivity to touch or cold Swelling of the painful area Changes in skin temperature —at times your skin may be sweaty; at other times it may
be cold Changes in skin color, which
can range from white and mottled to red or blue Changes in skin texture, which may become tender, thin or
shiny in the affected area Changes in hair and nail growth Joint stiffness, swelling and damage Muscle spasms, weakness and loss (atrophy) Decreased ability to move the affected body part
The term 'allodynia' refers to the pain that is produced by usually non painful stimuli. When a person is affected by this condition, he/she experiences painful, tingling or pricking sensation, even when the skin is touched gently. Such exaggerated skin sensitivity is usually associated with neuropathies or pathologies of the peripheral nerves.
Types of Allodynia
If the pain is felt when the skin is touched, it is called tactile or mechanical allodynia. Apart from tactile allodynia, there are three other types of allodynia.
These include:
Static mechanical allodynia (pain felt due to light touch or pressure) Dynamic mechanical allodynia (pain felt due to brushing) Thermal allodynia (pain felt due to hot or cold stimuli)
Causes
A painful sensation felt on touching
the skin can be a sign of several health conditions.
These include:
Most often, it is peripheral neuropathy, which occurs when the nerves of the peripheral nervous system get damaged. It can cause the skin to become so sensitive
that one can experience intense pain and pricking or a tingling sensation, even when the skin is touched gently.
Diabetic neuropathy, which is a complication of diabetes, could also be a contributory factor. Fibromyalgia, the condition which is associated with heightened painful response to pressure, can also cause
allodynia. Sometimes, excessively
touch-sensitive skin can be a result of postherpetic neuralgia, which refers to nerve pain that may occur as a complication of shingles.
Shingles is caused by the reactivation of Varicella zoster virus, which is the virus that causes chickenpox. The area of the skin that is affected by
the rash or skin lesions caused by shingles can remain sensitive for several days, even after the rash and lesions have disappeared. The virus
can lay dormant in the human body and can get reactivated when the immune system is weakened due to some other health condition(s). Tactile defensiveness is a neurological disorder that is caused by a neurological defect in the midbrain, which is concerned with evaluating and filtering different types of stimuli. The result of such a
defect is the exaggerated painful response to stimuli like touch and gentle pressure. Apart from these, certain other conditions can also render touch-sensitive and painful
skin, and they are chronic fatigue syndrome, deficiency of vitamin B1, B2, B6 and B7 and migraine.
Glad I can help. Let us know how you are doing.
For topical rubs, I have found that Peaceful Mountain brand back and neck
rescue works well, or anything with Arnica and or St. John's Wort extracts
are great for pain. If you are willing, Accupuncture can give
immediate relief that will last for days or weeks. Also try blacking
out your bed room windows at night, sleep quality is very important.
Having a low carb paleo style diet has helped me the most. Google
"The Whole 30" and do their 30 day kickstart, I have never felt better
than when I was doing that. Keep us posted, we are here for you, you
don't have to do this alone.
For topical rubs, I have found that Peaceful Mountain brand back and neck
rescue works well, or anything with Arnica and or St. John's Wort extracts
are great for pain. If you are willing, Accupuncture can give
immediate relief that will last for days or weeks. Also try blacking
out your bed room windows at night, sleep quality is very important.
Having a low carb paleo style diet has helped me the most. Google
"The Whole 30" and do their 30 day kickstart, I have never felt better
than when I was doing that. Keep us posted, we are here for you, you
don't have to do this alone.
Sorry the last comment I posted to myself , was for you, My memory is not the best when im in pain, Im sorry.
Thank You so much, just having you listen to me helps, no one understands, right now my scalp , and face, neck, upper back, side and buttocks, are throbbing, and raw! I try ben-gay but with bad attacks, it seems to make it worse. It used to help for a minute or two. I WISH someone could give me answers, I am tired of doctors saying , they don't know. I really really suffer. I am going to ask my doctor about Zonisamide, and try it. Again I will practice the tips, you have given me. Again just having you comment and listen, (and believe me) just means the world to me.
After suffering with this same horrible symptom for 20 years, here is where I have found relief:
I have great relief from the combination of the following:
Work hard to get 9 or more hours of quality sleep a night, do what ever it takes ( black out your bedroom, reduce computer and TV time after 8PM, see meditation below). For me it was getting restless legs under control, along with meditaton.
Reduce carbs and sugar intake to less than 100 grams per day, closer to 50 grams a day works better for me, any more and I start to get the skin pain. You can read about the excito-toxicity of sugar in the brain. You will feel sluggish for a week or two, but then that will subside, along with the sugar crashes you may already be having . Eat plenty of fat in your diet to replace the carbs as an energy source. Choose healthy fats: olive oil, avocado, coconut oil, grass feed butter (kerrys gold or kalona brand), pastured eggs, and meats.
Eliminate inflammatory oils (vegetable oils, industrial seed oils), replace with healthy fats above.
Eat plenty of low carb green and colorful veges: broccolli, cabbage, kale, spinach, berries.
Eliminate caffeine or any other stimulant like chocolate, taper off of caffeine to avoid headaches etc.
Reduce stress by choosing not to be around people that don't make you happy. Reduce stress by daily mediation, here is my favorite guided meditation, scroll down on this page and look for Bodyscan: http://www.buddhanet.net/audio-meditation.htm
The drug Zonisamide has truly helped, but reducing carb/sugar intake is the most important for me.
If I have a flare up, acupuncture gives me almost instant relief.
Look into a whole foods diet, the paleo/primal diet works for me, there are others as well.
Labs you may want to have your doctor check: Vitamin D level, saliva hormone profile (adrenal fatigue can play a big part in body pain), check zinc/copper ratios.
God Bless.
I have great relief from the combination of the following:
Work hard to get 9 or more hours of quality sleep a night, do what ever it takes ( black out your bedroom, reduce computer and TV time after 8PM, see meditation below). For me it was getting restless legs under control, along with meditaton.
Reduce carbs and sugar intake to less than 100 grams per day, closer to 50 grams a day works better for me, any more and I start to get the skin pain. You can read about the excito-toxicity of sugar in the brain. You will feel sluggish for a week or two, but then that will subside, along with the sugar crashes you may already be having . Eat plenty of fat in your diet to replace the carbs as an energy source. Choose healthy fats: olive oil, avocado, coconut oil, grass feed butter (kerrys gold or kalona brand), pastured eggs, and meats.
Eliminate inflammatory oils (vegetable oils, industrial seed oils), replace with healthy fats above.
Eat plenty of low carb green and colorful veges: broccolli, cabbage, kale, spinach, berries.
Eliminate caffeine or any other stimulant like chocolate, taper off of caffeine to avoid headaches etc.
Reduce stress by choosing not to be around people that don't make you happy. Reduce stress by daily mediation, here is my favorite guided meditation, scroll down on this page and look for Bodyscan: http://www.buddhanet.net/audio-meditation.htm
The drug Zonisamide has truly helped, but reducing carb/sugar intake is the most important for me.
If I have a flare up, acupuncture gives me almost instant relief.
Look into a whole foods diet, the paleo/primal diet works for me, there are others as well.
Labs you may want to have your doctor check: Vitamin D level, saliva hormone profile (adrenal fatigue can play a big part in body pain), check zinc/copper ratios.
God Bless.
I have had a raw, hypersensitive pain on my left side for 10 years now. My left side of my scalp is raw, it goes into my face , down my neck , back of my arm , down my back, into my buttocks, and back of my thigh. Its very very painful, feels like a very bad sunburn, and my joints hurt. Its only ever been on the left side. I am in very bad pain right now, my sheets, are hurting my skin and so are my clothes. If anyone knows what can help this or what this could be. please let me know. I was diagnosed with Lyme Disease 15 years ago and took a long intense treatment, and the pain gets worse, every year. It also comes in "episodes" I never know when it's gonna come and when it will go. Please help me.
"In conclusion, I think calling everything a symptoms of Anxiety, is a cop-out. "
Agreed, though it seems to be the tip of the iceberg when it comes to the dodgy amateur diagnoses being put forth on this site, thinly disguised product advertisements and blatant google-farming (the guy further above dropping keywords to boost hits on his site selling medical MJ - I'm looking at you).
I can't help but wonder if these "contributors" would be as quick to submit foolish advice along the lines of "you should take drug xyz because it totally worked for me dude" if their anonymity were taken away.
Agreed, though it seems to be the tip of the iceberg when it comes to the dodgy amateur diagnoses being put forth on this site, thinly disguised product advertisements and blatant google-farming (the guy further above dropping keywords to boost hits on his site selling medical MJ - I'm looking at you).
I can't help but wonder if these "contributors" would be as quick to submit foolish advice along the lines of "you should take drug xyz because it totally worked for me dude" if their anonymity were taken away.
I think its a little short sided to think that burning sensation is a symptom of burning sensation. I think in reality, many symptoms are caused by subtle and unknown causes such as household and dietary chemicals, they have unknown effects and then the resulting symptoms are blamed on anxiety, which in turn puts the patient into anxiety from being misunderstood. I think professionals need to take a more intensive course in psychology, they have no idea of the negative sometime fatal impact this type of misdiagnosis can have on an already sick person.
Burning sensations for one have been associated with Vitamin E deficiency, which sometimes are cause by other supplements, for example, Omega 3 fatty acids.
In conclusion, I think calling everything a symptoms of Anxiety, is a cop-out.
Burning sensations for one have been associated with Vitamin E deficiency, which sometimes are cause by other supplements, for example, Omega 3 fatty acids.
In conclusion, I think calling everything a symptoms of Anxiety, is a cop-out.
I am a victim of same condition that you guys are talking about. I was bed ridden for 2 weeks and had taken every possible test to diagnose my condition. But with little luck. The reports were normal, but my suffering was excruciating.
Then I decided to try Ayurvedic treatment methods. Within 2 weeks of prompt medicine intake, my condition started decreasing. All the sensitive patches began to disappear. Now Im left with less than 5% of patches and that is not troubling me.
Please do not waste your time and health taking allopathic drugs. Try ayurvedic medicine, it really helps.
Then I decided to try Ayurvedic treatment methods. Within 2 weeks of prompt medicine intake, my condition started decreasing. All the sensitive patches began to disappear. Now Im left with less than 5% of patches and that is not troubling me.
Please do not waste your time and health taking allopathic drugs. Try ayurvedic medicine, it really helps.
OMG i am so feeling this at the moment! i have an ear ache on the left side-- the left side of my throat and nose hurt all the time -- and they do not hurt when i swallow - i have not been to the dr yet - i am not congested. i cleaned my ears and cried thru the whole thing the canal was so sore -- my skin aches and my hair folicles are sore as well i have been popping ibuprofen and pain aids at work and musenex - just in case it might be sinus related i am going to give it a few more days then break down and go to the dr
An update for me, I am still getting relief from the Zonegran, I stopped the Lyrica and I am still symptom free. My latest exploration is with a Ketogenic diet, basically it is a high saturated fat, low carb diet. I have associated muscle and joint pain and stiffness that subside with the onset of this diet.
It is also used to help treat epilepsy, so it make sense that it could have similar effects as something like Zonegran which hits the temporal lobe.
It is also used to help treat epilepsy, so it make sense that it could have similar effects as something like Zonegran which hits the temporal lobe.
That is EXACTLY what is happening to me right now....I mean to the T. have you figured out anything about how to deal with it?
Hey Pacatex189, i ran across your post as i was trying to figure out my situation. You described my symptoms perfectly. I had dental work done 5 weeks ago, which seemed to trigger the problems. 10 days ago, a fever blister appeared. The pain started in my ear, and is only on the left side of my face. Skins is ultra sensitive. The pain and sensitivity seems to come and go. Not sure if you ever found an answer to your problem....but i wanted to let you know you are not alone in your symptoms.
Best wishes
Best wishes
I am finding relief with Zonegran and Lyrica combined. I have had this for 21 years. I take the Lyrica in the evening and the Zonegran before bed.
I found several things that make it worse: eating high glycemic foods and not getting enough sleep.
I found several things that make it worse: eating high glycemic foods and not getting enough sleep.
I have a situation similar to yours. I suffered a brain injury 4 yrs ago and suffered terribly with hypersensitive skin on the left side of my body and face. I was on Lyrica and stopped when I no longer suffered from it. Over the years I would feel it only when sick with a cold or flu. Now out of nowhere it's starting to come back on the RIGHT side of my face, ear, neck, shoulder and armpit. It's sickening. My hair cannot touch my face it hurts so much! they did that electro zapping test thing on my arms with no results. Several MRI's and tests and still nothin.
I have been plagued by unilateral areas of hypersensitive skin for over 21 years now (I'm 46). At first I thought it was ear infections as the pain often started deep inside one of my ears. After nothing showed up on physical exam I was sent to a neurologist for CT scans and he told me that I probably had trigeminal neuralgia with glossopharyngeal neuralgia as well. When I research those diagnoses, they don't fit my pain type. The pain is often on one side of my head or the other, it spreads over the course of hours and days, involves my scalp to a level that I cannot touch or brush my hair, as every hair follicle hurts. My eye will hurt to move and sometimes I can feel my food scraping one side of my throat on its way down. Occasionally these pain patches will happen on areas of my torso, legs or arms. Darvocet used to work for me with pain control but now it does not help at all. I've also found that often these attacks are triggered by dental work or cleaning. Often they are preceded or in conjunction with a fever blister in my nose or on my lip. When I research post-herpetic neuralgia, my symptoms and pain type don't really fit that either. I would love to know how to resolve this or at least know what to take when I feel it coming on, and to know what it is and what is causing it.
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