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Infant eye/eyelid fluttering

Ever since my daughter was 8 days old (she is 7 weeks now), she on occasion has had episodes of eye and eyelid rapid fluttering with certain position changes.  These are definitely involuntary episodes. She will sometimes go a week or two without me noticing an episode, but they sometimes happen 2-3 times a day. They most frequently occur when taking her from and upright position to a laying down position.  The episodes seem to occur immediately after her head touches down. I have also witnessed the episodes occuring when she has been on her belly from tummy time and I pick her up and turn her around.  Again, the episodes consist of her eyes and eyelids kind of going "haywire" involuntarily, and last for 5 to 10 seconds.  She seems to be normal before and after the episodes occur and also seems to be developing normally for her age.  She has been to see her pediatrician several times who is not convinced this is something to be concerned about, but she is puzzled.  We wanted an EEG, so one was done and a follow-up appointment with a pediatric neurologist was scheduled.  He is puzzled by these episodes as well, but is unsure if they are concerning.  The EEG was "inconclusive". Not "normal" but not "abnormal" either.  The neurologist said there was maybe some increased left sided activity, but was not too concerning.  We have basically been told to watch her to see if she grows out of it, and try not too worry too much.  My husband and I are the only ones who have witnessed her "episodes".  They are scary to see, because they look so abnormal to me.  I can't find anything on the internet stating another child has had these exact episodes.  I am an RN and have not seen another baby do this.  Has anyone seen this in another infant, or does anyone have any helpful info?
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Avatar universal
Hello - my 16 week old son does this. Your story literally sounded like our story. Have you heard anything more on this? I'm taking our boy to the doctor right away.
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Avatar universal
Hello - my 16 week old son does this. Your story literally sounded like our story. Have you heard anything more on this? I'm taking our boy to the doctor right away.
Helpful - 0
1 Comments
Me too my daughter is one and still does it what should I do I need help. Dr don’t know what to do
Avatar universal
We have also observed the same kind of eyelid fluttering. My kid has just stepped into 5th month. From yesterday, he has done it thrice (Once yesternight while playing with his mom,early morning today once he woke up and today late morning after getting breast fed). He suddenly starts fluttering his eyelids while his body is still. This lasts for 5-10 seconds and then he becomes normal. However, after this activity he becomes quiet and does not make much movements for few minutes. My wife and me are really worried and would like to know if this has been experienced by anyone before ? If yes, what is the cause ? Is is serious ?
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