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Internal Vibration with continual pins and needles for months.

I posted earlier this year regarding numbness, pins needles and memory/cog. problems and stiff hips.  Pins and needles increase with heat like blow dryer, heavey robe, etc.

Brain MRI showed bilateral punctate areas of increased signal in frontal region in deep white matter on FLAIR.  Not diagnostic of demylinating disease.

Cervical showed no convincing evidence of deyelination seen.

All lab work came back fine including B-12, ANA, Glucose, perfect.

My symtpoms have remained -5 mos.-with some days stronger than others. Now I have sensations of rubber bands snapping above my right eye and eye area -- slight numbness around my eye. Sharp jabbing pain was original symptom back in June. My vision is worse in right eye.

My fourth and fifth finger on my right hands feels weak and sometimes I awake and my 1/2 hand ONLY is numb.My right arm and legs do get tired/exhausted feeling that I never had before.

Since August I feel a continual internal vibration -- slight buzzing throughout my body. Sometimes it feels like the lower half of my face & chin is vibrating - almost to a tickle feeling but really annoying.

I had total hyst. in 2/04 with no HRT unti August. I am late 40's

What would cause my pins and needles to happen simulatneously
into my hands or feet at same time so many times per day? Memory,
snapping? Vibration?

My Phys.thinks hormone related. I take no meds except estrogen.

Can you please provide insight? MS? I know you can't diagnose me :-)

Thank you in advance!










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Avatar universal
I had a terrible time with insomnia this summer. Originally, my GP thought I was having thyroid problems. When the endo finally put me on propranolol for the tremors, within two weeks I was finally able to sleep. The propranolol is a beta blocker that slows down your sympathetic nervous system. I can't tell you that I am sleeping like I always did before this started, but I can tell you that I started sleeping 3-4 hours a night at first. There are some nights now that I sleep maybe 5 hours straight. And others where I will sleep a combined total of 5-6 hours. Fortunately, I can function just fine on that amount. I never required that much sleep anyway, but I had a hard time this summer when I would sleep 1 hour on most nights, some nights, not at all. I don't know if this would work for anyone else with insomnia, but it seems worth a try. Certainly better than the other sleeping aids that can be addictive or short-term. I have been taking it since August and the neurologist says there is no reason that I can't continue taking it as long as I need it.
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Avatar universal
Demyelinating peripheral neuropathy and Chrionic Lyme Disease.  I have that feeling all the time.  Less with medication. The neuropathy should be diagnosed by a neurologist with nerve conduction studies and Lyme by a lyme literate medical doctor (LLMD).  Tests: nerve conduction studies and western blot sent to Igenix Labs. http://www.ilads.org/
Might be a possibility - good luck to all.
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Avatar universal
hi just wanted to include myself to this list i also have had these internal vibration buzzing sensation in my legs mostly and upper body at times its worse and it also comes with ponding heartbeat fuzzy vision dizziness and brainfog i feel like im plugged into a socket like everyone had test done mris ct scans but cannot find anything and all my symptoms started after my visit abroad where i was bitten alot but my dr says its not lymes my neurologist says all is fine from all my test he even sent my brainscan and back mris to the hospital where they had a board meeting with others who specialise in this field but all came back negative well that makes me feel like crap somedays i feel so drugged up without the drugs. Also have alot of leftsided symptoms my head hurts from my temple and my ear feels funny internally my gum and tongue and cheek burn i have horrible taste in my mouth my hairs faaling my vision is going bad my leftshoulder blade has sting crawling pain my rib hurts from front and back i have strong heartbeats my neck crackle ans snaps also feel lost my left ovarie area hurts my periods are irregular im just a mess with no diagnosis as yet. Im so fed up could this me perimenopause or what why is so hard to find a diagnosis all my dr gives me on each visit are prozac citalapram or any other ad im not depressed but sick of the way i feel im so glad i found this sight i did ask my dr could it be lymes he said no none of my symptoms fit what the hell is happening its been three years now with no answers i do not know what to do just fed up my life is like a bottle of soda freshly opened with all this fizzing buzzing going on my dr properbly thinks im going crazy well what can i say i feel like that myself. Thank you.
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Avatar universal
A related discussion, Pins and needles was started.
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I am also in the middle of trying to get a diagnosis or relief from symptoms - mild constant headache, tinnitus, internal vibrations on falling asleep and waking, pain in legs, neck and shoulers, pins and needles in feet and lower legs.  All of these for 5 months and so far I have been told it is not my thyroid (I have Hashimoto's but it is under control with meds) and i do not have MS ( the doctor said MS would explain my symptoms)
I have had MRI's of spine and brain (only scattered hypointense foci - whatever that means)I have had EMG which says myopathy which is fairly general and just means muscle pain.  I have a mildly raised CPK creatine phosphokinase.  Does anyone else have that?  The neurologist is now sending me to the rheumatologist???I am wondering about the mercury test mentioned - was it a normal blood test or a hair test? Please post.  I am also thinking hormonal - menopause - which no doctor has mentioned or Lyme disease which no doctor has mentioned.  The vibrating is wierd - I wonder if it is in my head or body. I can't tell where it is coming from. Has anyone had heart problems.  We need to keep in touch with what we are finding.  I also have been told in the past that I have multiple food allergies.  Also I had all these symptoms in 1999 for more than a year, then 2 years of good health and fitness now IT has recurred.
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Avatar universal
I agree with mineandours. Almost sure that you are infected by tick. Check out where you are living. Is this infected area? I've been bite by ticks 2+ years ago. Since last year I have tinnitus. Since March this year I have twitches  all over my body including my both eye lids. Actually, it started on my right upper eye lid.  I've done 4 (!) EMGs and all four were good. Several neuro exams were normal also.
LD specialists ordered 5 (five!) different tests and exam:
ELISA (2x), PCR DNA, Coxsackie,  Entero, POLIO 1,2,3...
Nothing discovered; all negative.
I'm living in the most infected area in Europe and I'm affraid that I have neurological kind of LD.
S.B. (Croatia, Europe)
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Avatar universal
I am sorry you are experiencing your rollercoaster ride of symptoms as well.  Thank you for sharing.  I am getting further testing done and will keep communicating the outcome of my
symptom "ride" as well.  I feel the doctors look at me too with maybe I need another type of doctor....but I know this is so entirely different than anything I have ever experienced.  This is a true transforming change of thought process, etc.  I too went for a long spell of not being able to sleep. Josie
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I have been plagued with neuro problems for some time now.  I have also found it difficult to find a doctor to take me seriously.  I finally traveled to Univ of Mich Med Center and met with a professor of neuro there, and he did listen to me, but could only tell me that it was possible MS--have had multiple testing, including total blood work up, multiple MRI, and finally emg, eeg, lumbar punture, etc..only thing they could find was elevated protein levels in my spinal fluid--my symptoms are now getting worse, and i too have noticed a trembling or vibrating sensation coming from within, also have had terrible bouts of insomnia--sometimes will go for days with one to two hours of sleep--i think my next stop will be at the cleveland clinic--just wish there was someplace closer to home, as no longer able to drive, loss of balance, etc...it has made me feel better after finding this site to realize i am not the only one with these feelings, i have been told so many times by more than one doctor that i need a psychiatrist or mental health therapy--i am not crazy, i do get depressed, but i feel thatis perfectly normal for someone of my age--i am 47--also, my husband seems to remember that i started having major problems after a surgery for a tumor on my thyroid--also had a hysterectomy at age 26--i will keep reading on this site to see what else everyone has to say--thanks so much to you all
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I can't dare drink caffeine.  I gave it up long ago, but unfortunately, there was no improvement.
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I also had the internal viberations, etc.  Also the "jerks" at various places of my body.  My solution is...I no longer drink coffee or tea with caffeine.  The caffiene was what made me with the odd feelings.  Sounds too simple, but that was the cause!

Also,  Inner ear problems can cause numbness in the face and unclear thinking,  with ringing and rattling in the ear that seems to viberate the face and head.  There is not much to do to help if it is inner ear damage.  Just have to get used to  it.  I hate the fogginess in that side of my head the most.
It makes me have problems with thinking!
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Avatar universal
WOW!  I finally found some people who can understand what my husband has been feeling and going through!

Over 7 months ago, my husband's life changed drastically.  In early March he had colonoscopy followed by a tetanus toxoid booster for a cut on his left hand three days later.  Eleven days following the shot he felt a very strange feeling in his lips.  Not numbness, but a tired/fatigued feeling.  

Within a couple more days, the feeling traveled over the rest of his face.  You could see his muscles just below the eyes twitch.  Other than that, there were no outward signs.  Within the week, his arms and legs were affected.  You could see the twitiching in his quads and forearms.  He felt like he wouldn't be able to walk within a few weeks.  

That's when the night sweats and internal vibrations started.  We have been to Cleveland Clinic and got no help and no answers.  All bloodwork checks out.  The MRI, EEG, EMG, and more blood tests than you can imagine all check out.  His ANA levels were elevated, that's it.  One year prior to this he had a hernia surgery.  Seven years prior to this he had a prosthetic stapis implanted into his ear due to hearing loss caused by the fixation of his natural stapis.  The vibration for him remains constant.  He cannot sleep without Ativan as the internal cold feeling and vibration intensifies at night.  The doctors are calling it post-viral myopathy, but that doesn't help tp alleviate the symptoms or get us back to a normal life.  

My 38-year-old husband prior to this was a very healthy runner who stands 6' 3", 195 pounds.  He is a teacher who loves his job.  He was unable to work in the spring, but with the help of a physical therapist he has grown physically stronger despite the symptoms.  Our young daughter's miss the physical rough housing with their father.  We continue to struggle and to look for answers.  Any suggestions?
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Avatar universal
How can so many of us share this problem, and yet none of us can find answers?  I wish I had some.  Caroline, I didn't realize that it was my poor sleep causing my fatigue at first.  But the other day, when I thought I had slept just fine (no waking during the night - take low dose of Klonopin at bedtime), my husband remarked about how bad my trembling was.  The fatigue hit me hard a few hours after being up, then I could tell that I'm just not getting deep sleep, and spend many days sleep-deprived.  My biggest worry this week is my cognitive problems. At work, I'm trying to learn procedures for new processes that we're implementing, and I just can't seem to focus on the information.  This makes me nervous, which just makes everything worse.  When I try to read procedures, it's like trying to read after you've had about 3 drinks.  This really scares me, because now I'm worried about my job, worried I'll have to try to explain this to my boss.  I can't seem to remember anything anymore.  I hope things go better on Monday.
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Avatar universal
I have also considered mercury toxicity as my problem. I have a MOUTHFUL of amalgam fillings from when I was a kid. The only molars that don't have fillings in them are the two I had root canals on--and they had fillings in them before that!!! I had a mercury blood test that came back 0 level, but I don't think that is the best test for that. What kind of a test did you have and who did it?
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Just thought I'd let you all know that I did get some tests back.  Everything checked out okay like thyroid, CBC, Chem 20, glucose, etc..... BUT.... i have toxic levels of mercury!!!!  I looked up mercury Toxicity and that spells me.  I hope to get this stuff taken out with DMPS.  I go Monday for that to start.  I also had elevated lead.  Just wanted to let you all know.  I had about 8 amalgam fillings in my teeth.  I also used to give vaccines for years and I ate tuna regularly.  Hope this helps you all.
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Avatar universal
I also feel the vibration/tremor in my back. If my husband sleeps to close to me at night, he can feel it, and he said that I have a lot of jolts.  I also believe that this is directly related to my anxiety level.  For instance, just the normal excitement of election day seems to have taken a toll on me today, and I can tell that tonight will be difficult.  I have had so many days when I am just dead tired, and now I realize it's because I'm just not getting decent sleep at night, even though I'm not waking up. I am Hopeful42 at braintalk, and will start checking in there when this original post disappears.
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Avatar universal
Are you not getting enough sleep because the tremors are constantly moving your body without your being aware? Or is there something else that is causing your sleep disturbances? My sleeping patterns have also been dramatically altered by this stuff. I don't move around at night-my tremors subside as my body stills-so it's not them that keep me from getting a good night's sleep. My head/brain feels different. It's like I have a head cold, only I don't have the cold. It feels "tinny" if that makes sense. I had terrible insomnia (1-2 hours/night, if I slept at all) this summer. My body was felt like it was in overdrive. Meds have helped me sleep, but I sleep much differently now than before this happened. Something radically  altered the sleeping part of my brain, I feel.
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Avatar universal
Hi All....

Well all I can say is that Cleveland Clinic is first class and professional.  My appointment today was lightyears different than any appointment I have ever had.

The doctor was very kind, easy to talk to, interested and thoroughly examined me.  SHE is going to investigate further through additional testing.  I feel taken seriously.  

Whether or not she can put a name to my symptoms/condition
I don't know.  I do know that she is trying.  That is all I ask.
I was definitely not blown off.  

More tests in 2 weeks.  

I am going to locate you on another website Caroline....thanks for helping me track you down...

Please keep this post going if anyone has any ideas...I will be reading!

Josie

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Glad you had a good appointment. I'll be anxious to hear how things progress as I feel like I am running out of traditional medical approaches here. I tend to frequent the General Neurology and Rare Disorders Thread at the braintalk site if you are looking for me.

Does anyone else find it interesting that this thread has generated so much interest from people? We can't find a whole lot of info out there about what ails us, but when we find someone in our same boat, it's like a lifeline!
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Avatar universal
I have had the jerking at night, some nights at the beginning of this were really bad. I have found that they are very closely related to my anxiety level. When this first started happening, I was awakened EVERY time I started to fall asleep by a limb jerking. Of course this made me more anxious, as it wasn't just a finger or a slight movement, but sometimes my whole arm would flail! As I have calmed down, the jerks have disappeared.

The trembling at night only comes as I am settling down and also awaking. It doesn't necessarily keep me awake. As I settle down, I can feel the tremors start to gradually quiet down all over my body. As I awake, many times I can feel a pulsing tremor in my back. Lately, I have moved more towards a vibrating or a buzzing feeling. Last night I had the tremor feeling in my legs. I can't say that I am necessarily getting "worse," but my symptoms seem to be evolving and changing.

I too would like to keep posting as we all search for answers. I don't know what the solution is but as I said earlier, I am carolmerrill at braintalk.org and also at aboutbfs.com. You can access my e-mail from either site or you can also private message at either one. If anyone else has any better ideas, please post. Otherwise, I will look for y'all there!
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Avatar universal
Yes, I have the clonic jerking also.  Like when I am falling asleep.  I can have it at other times as well.  It's not real big but you can see it.  My hopes are that you get well real soon.
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Avatar universal
Are any of you having problems with trembling or jerking at night?  It may or may not wake you up.  My husband tells me about it.  I hate it that I can't get away from this even when I'm sleeping.  I'm going to see a rheumatologist next week.  I'd really like to keep in touch with all of you, to see if any answers appear.  Can anyone suggest an appropriate forum, either at aboutbfs.com or at brain.hastypastry.net/forums/?  I think keeping our group together (which will soon disappear here) may be helpful to all of us!  I'd really like to hear the results of various doctors' opinions.  I'll be happy to share mine.
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I have been reading posts in a forum at www.aboutbfs.com. It seems that there are a lot of people there who have these internal vibrations. I have found a lot of connections to my symptoms there. Your might give it a try.
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Avatar universal
The feelings you describe, pins and needles, vibrations, etc. are indicative of neurological Lyme disease.  I have it and went through the same thing.  If all of your other tests have come back normal, consider seeing a Lyme specialist.  No other doctor, specialist or 'ologist will due when it comes to Lyme.  To find one, go to www.LymeNet.org or www.ilads.org.

Here's some info to get you started...(pay particular attention to the symptoms listed under neurological.) You may want to print this and use it as a check list. Email me for more info. ***@****

Head, Face, Neck
Unexplained hair loss
Headaches, mild or severe
Twitching of facial or other muscles
Facial paralysis (Bell's Palsy)
Tingling of nose, cheek or face
Stiff or painful neck or creaking
Jaw pain or stiffness
TMJ
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Avatar universal
I avoid all wheat, barley, rye and oats.  These all contain the gluten in them.  I don't know what that burst of sensation is either.  It is soooo strange.  I does not last long maybe about 5-10 seconds.  I move around and it goes away.  I was concerned about MS for a while but now I concentrate on NOT worrying.  Stress is a killer.  I want to avoid it.  I sometimes get that vibration in just my arch of one foot or both.  It changes.  I have learned to live with what happens each day.  When I sit and constantly think about what I am feeling, I am miserable.  I just try to go on.  If anyone finds out what this is, please post it!!!!!
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