Sorry that your experiencing such symptoms. If you indeed did have GBS, the EMG should have picked it up as abnormal conduction block. If you had MS, the MRI should have shown areas of demyelination. This is not always true with the first attack but the persistence of symptoms that your experiencing there should be some MRI changes. Since the sympotms have stayed around so long, a repeat MRI with CSF studies should clear the MS possibility up. Since your symptoms have really not remitted, progressive MS is hardly not evident on MRI scans. The normal lab finds are encouraging that most of the worrisome problems can be ruled out, but that doesn't help in trying to find the etiology of your symptoms. Yes, anxiety can be one of the thoughts. But maybe a further search might help. Maybe a metabolic screen might pick up some abnormality that can be further searched out. Some initial screens would be lactate, pyruvate, ammonia, CPK, and urine and serum amino acids, organic acids, and carnitine levels.
I hope you finds some treatable reason for your symptoms.
CCF Neuro MD
I forgot to mention one thing. Contrary to what I've read about heat aggravating MS symptoms, heat doesn't affect me but extreme cold DOES seem to make the stiffness symptoms worse. Not sure if this is meaningful info but thought I'd add it.
Kim we could be twins, i've had the same types of things its been about over a year now that this began and it comes and goes but by far I have not had some huge remission, maybe one week I feel good then it comes back a week or so later, my right leg feels week and this is where it all began, my calfs ache and in the morning my sole of my effected legs foot hurts to touch the hard wood floor. I've been really tired, yet I have passed all exams and testing. I can still function but I notice it. I stumble on occasion. One thought that did enter my mind (i've been there like you thinking Guilliane barr, neuropathy etc) and fibromyalgia has some of the same sypmtoms we describe. Anyhow I wish you much luck and hang in there! by the way I was told Anxiety to as I was not fitting any particular disease. who knows? maybe it is anxiety
Did you find it hard to post your question? What time did you post in what time zone if you don't mind me asking? I'm been trying to post for 6 months. Thanks-hope you can find some answers. God Bless.
Sara try posting at 9 a.m. EST. That seems to be the best time.
No problems in posting at all. I guess it was maybe around 9:15 or 9:30 EDT. I'd just returned from dropping my daughter off at preschool and that starts at 9.
Best of luck,