and they have done 4 blood work ups an ekg, eeg, emg, pelvic ultrasound, and urodynamics already.
I have experienced similar frustration with medical diagnosis for my health problems that can be embarrassing and debilitating. I have been diagnosed with POTS and neurocardio syncope where my heart goes asystolic so I am considering a few avenues for treatment options. I am in my 20s and it took about 7 years for this diagnosis to 'find itself'...I have been diagnosed prior with a seizure disorder which they later found to be secondary to the POTS and the syncope has grown more frequent, along with the numbness and tingling which has extended from my arms, legs and extremities to my face over time. I have had numerous digestive, reproductive and autonomic system issues that are likely due to the lack of synchronized activity between my sympathetic and parasympathethic nervous systems; however, I am still skeptical as to whether this POTS is secondary to another neurological disorder, or if it is trending towards MS.
In order to diagnose these, I went to Mayo Clinic for an entire workup and had some follow-up...I was positive on the tilt table test but my MRI, CT Scan and a Spinal Tap are not showing signs of MS - there is a definite set of criteria for that. You should read the following research article if you are curious to know differences, but also I would be curious as to what physician team you are using, what your ailments are and how you are trending over time. (article: http://www.medsci.org/v07p0062.htm)
I am looking to explore and research this further as I want to prevent further atrophy of my own body but I also would like to escalate the knowledge in the medical community in this arena. Thanks so much for posting your question and I'd be happy to pass along any recommended physicians that I have encountered who are helping me with my medical care.