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Avatar universal

MS or POTS, how do Dr's decide?

I have had sooooo many random symptoms most of which by themselves aren't that bothersome but its a come on with the last year and its a bit overwhelming even if they are smaller issues. It just doesnt seem as if any of my doctors are looking at all my symptoms.

List of recent symptoms:
Irregular periods
Incontinence
Diarrhea
flatuence (major)
ever so slight twitches in arms/legs/hands/feet
weight gain
FATIGUE

When I was younger they diagnosed me with seizures but couldn't tell which kinds. Then as I got older they got fewer and farther in between and turned into white outs. They only showed up during heat or exercise. So they did a tilt test and said I had Neuro-syncope. Ive been on Atenolol  for 2 years now. I've always had serious fatigue issues. Every year I have a new vitamin deficiancy. B12, potassium, vit d and they always seem to bounce from normal to off and back within a year. This year they diagnosed my period issue and weight gain to PCOS.

What I DON'T HAVE:
Thyroid issues
Diabetes
Calcium issues

I just wanted any two cents that anyone is willing to give me. My PCP, Urologist, and Endocrinologist have no explanations for me. My neurologist is leaning on POTS I wanted to know the differences between the two and if you are showing signs of pots how is the treatment any different from ms? yesterday I actually was sitting in a chair and went to the bathroom in my chair and didn't even realize it or feel it or felt like I had to go.  I trust that my doctors will find the answer but its been 10 months and nothings been done.

Thanks for reading and if you have any advice or suggestions to bring up at appts. that would be nice.

2 Responses
Avatar universal
and they have done 4 blood work ups an ekg, eeg, emg, pelvic ultrasound, and urodynamics already.
Avatar universal
Hello,

I have experienced similar frustration with medical diagnosis for my health problems that can be embarrassing and debilitating. I have been diagnosed with POTS and neurocardio syncope where my heart goes asystolic so I am considering a few avenues for treatment options. I am in my 20s and it took about 7 years for this diagnosis to 'find itself'...I have been diagnosed prior with a seizure disorder which they later found to be secondary to the POTS and the syncope has grown more frequent, along with the numbness and tingling which has extended from my arms, legs and extremities to my face over time.  I have had numerous digestive, reproductive and autonomic system issues that are likely due to the lack of synchronized activity between my sympathetic and parasympathethic nervous systems; however, I am still skeptical as to whether this POTS is secondary to another neurological disorder, or if it is trending towards MS.

In order to diagnose these, I went to Mayo Clinic for an entire workup and had some follow-up...I was positive on the tilt table test but my MRI, CT Scan and a Spinal Tap are not showing signs of MS - there is a definite set of criteria for that.  You should read the following research article if you are curious to know differences, but also I would be curious as to what physician team you are using, what your ailments are and how you are trending over time.  (article: http://www.medsci.org/v07p0062.htm)

I am looking to explore and research this further as I want to prevent further atrophy of my own body but I also would like to escalate the knowledge in the medical community in this arena.  Thanks so much for posting your question and I'd be happy to pass along any recommended physicians that I have encountered who are helping me with my medical care.
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