Hi and thank you for your time. This is very long with some history of symptoms that may or may not have anything to do with MS or any neuro problem, but I feel I need to explain a bit about my health.
I'm a 37 y/o female from Indiana. In the summer I enjoy swimming daily in our pool and riding my bike. I was using a treadmill and weights on occasion but I have become weaker and weaker over the last few years from something! I feel awful!
It all started with ringing in my ears, some dizziness and painful migraines with "auras", then no pain, just the auras. Now I have jumpy eyes off and on every day with a bit of pain in and behind my eye and the occasional aura and some mild vision changes. My muscles ache and I have numbness in my feet and lower legs. Pins and needles sensations and they're very, very cold! It's a bit worse in my right foot and leg now but began in my left. I also have muscle twitches along my legs, buttocks and back. My legs feel heavy and weak and so do my arms, especially my right arm. I get some crawly sensations down one side of my body. Like goose bump chills. I have a crawly, tingly sensation over my left shoulder when I kind of hunch over my computer. Most days my hands are cold too but not like my feet. I have the tingling in my hands as well, although not as much as in my feet. Warm socks, Ted stockings and electric blanket are needed to help warm my feet and legs yet they stay uncomfortable with some mild pain and tremors as well. This will let up just a bit and then the next day or two it will hit me hard again. Last week while driving to town I began to get the bad numbness in my right foot while it was on the gas pedal! It moved up my leg and was really bothering me. I couldn't get to town quick enough and out of that car! Moving around didn't help though.
I began having the numbness off and on in my legs before and after major surgery 3 years ago. They cut me from hip to hip to remove my right ovary and a large, benign (thank God) ovarian tumor. The surgeon discovered I had lots of abdominal adhesions from previous surgeries; right fallopian tube removed with major surgery, gallbladder out with laproscope, laproscope to remove adhesions for infertility.
When I awoke from the ovarian surgery my legs were badly swollen and wrapped with a pump to help with the swelling and circulation I guess. For some reason my entire left leg and vagina was numb. After the catheter was removed I had problems with urinating and continue to do so.
I've noticed for some time that I can't seem to begin the flow like I used to. Also, I can't empty like I should. I'll sit there and sit there and try to get it all out. I have frequent, urgent need to go but then can't quite get it started sometimes. I've seen my Urologist every year for three or so years and have had cystoscopes and an IVP because I also have chronic microscopic blood. He finally told me he doesn't know what's causing all this. The last time I talked with him was a few months ago after an ultrasound of my kidneys because of increasing back pain and more blood in my urine. I told him over the phone that it felt like I was having spasms in my bladder. He told me if cutting back on coffee and colas didn't help he will prescribe something. In the mean time he moved to another state and I haven't went to his replacement.
I have what I think is bowel spasms too with some occasional constipation and cramping. I take fiber daily to help with this. But what I don't understand is the tremors I have which felt like they began in my abdomen and moved all over my body. Just prior to learning I had the tumor I had began to feel the strange sensation deep in my abdomen. At first it felt like a baby was kicking me. So with a growing belly and this and the real kicker here...breast milk, I thought I was pregnant when I learnt that it was a big ol' tumor instead! My doctor said it might be from the tumor twisting that I felt this sensation. I still have the milk but tests show nothing. I was advised to leave them alone and it would go away. I have and it hasn't! Just something else uncommon about me that baffles my doctors!
The week before my surgery I had a terrible muscle spasm in my shoulder and neck and couldn't move my arm or neck without screaming. I had to go to the hospital for a shot to relax the muscle. Now I have mild spasms in my neck sometimes.
I have a small numb patch above my incision. My legs are numb and really bothering me and now my entire body tremors! Whenever I lean back against a chair or lay down I feel twitching or spasms in my back. Never fails, it's daily along with the muscle twitches. My hands have begun to shake and now my head is a tiny bit too! I feel my entire body doing this while laying in bed. It's just awful! I've tried Xanax and muscle relaxers and nothing helps. The jumpy, jiggly eyes was what finally sent me to my internist last month after staying away for 9 months. I was afraid he'd say it was all in my head!
He examined me and noted that siffness in my legs was becoming worse along with my symptoms over the past few years and now with my vison jumping and odd sensations and since I'm the right age, he thought we might be dealing with MS! He ordered an MRI with Gadolinim and lots of blood work.
I should mention that last year he checked my thyroid, which was normal. He's done lots of blood tests over the last two or three years and everything has been normal. At one time him and my Dermatologist thought I had Lupus because of pain and some areas of erythemia. Red palms, spider angiomas, light rash, etc. Blood was sent to a New York lab and was normal.
The doc finally diagnosed me with Fibromyalgia and CFS. He told me I had Mono some time in the past. He sent me to a Rheumy because he wanted him to look into why I was having lots of aches and pains who also diagnosed Fibro and osteoarthritis. I didn't return to my 6 month check-up before the holidays.
I should also mention that I have bad allergies and really should be taking shots but hate to fool with it. I have a thick discharge that I'm always trying to clear out of my throat. It's very annoying especially while trying to fall asleep. Sometimes it's hard to swallow. I just take allergy pills and sips of NyQuil. I also have a problem with a thick white coating on my tongue that my new dentist just about flipped over. He took pictures of my tongue and prescribed Nystatin and tongue scraping. That didn't help so he got with my Doctor and they put me on Difflucan which didn't help either. I was told it was yeast but when my dr took a sample to grow in the lab he was confused because it didn't appear to be yeast after all. We just kind of gave up. I still have it and no amount of scraping helps. My Phamacist friend isn't so sure about all the stuff going on with me and feels I have some kind of immune problem that they haven't discovered yet. My Dentist feels the same. My Dr is confused because he thinks there's something going on too and was just about sure I had Lupus and that's why he sent me to the Rheumy last year, who told me the slight rash on my nose and forehead and the places on my scalp is dermatitis and not from Lupus!
I have problems with abdominal swelling and lots of belching and discomfort. A couple years ago I was admitted to the hospital because of swelling, vomiting, enlarged liver and elevated liver enzymes. No hepatitis, etc. was released when they went back to normal. Occasionally I have the same symptoms for a day or two without the vomiting so haven't went back to the E.R. when I feel the pain deep inside in the liver area and have the swelling.
Since I've told you just about everything I can think of I suppose I should mention this but it's very embarrasing! I have genital herpes that I control with acyclovor but was having bad attacks prior to taking it daily. Now I take just one pill a day when or if I remember to and am keeping it under control. In recent years whenever I did have a sore it appeared on my tailbone and not on my vagina! Very achy, flu like symptoms with the attack and painful when sitting. I've been married for nearly 13 years and together for over 18. Thank God he's never caught this!
I don't know if I've ever been tested for Lymes disease. Before we starting spraying our yard and treating our pets we have found several crawling on us and a few attached but no rashes. Of course the one or two found on my head I guess could have left a rash that we never noticed. I suppose I should ask the neuro about this.
Sunday and Monday I was very sick, weak and my feet and legs were worse. I called a free service through our insurance and spoke with a nurse who advised me to go to the E.R. I didn't go and the next day, yesterday, I felt lots better after having some diarrhea the night before and my legs acting up. This morning I felt bad again.
So here I am today with my jumpy eyes, and cold hands, weak right arm trying to type this VERY long letter with my body tremors and my cold, cold numb foot and leg and have probable MS but my MRI was normal. I have an appt with a Neuro the 26th. What do you think? Can one have MS and a negative brain MRI? What do you suggest? Can adhesions cause pinching of nerves and numbness? Can the herpes virus cause any of this? Do any of my symptoms sound like MS to you? Should I wait to see my neuro or should I go to the hospital now? I don't know what good that would do but the nurse I spoke to strongly advised not waiting. She felt I have some kind of acute attack and might be having a circulation problem with my leg.
Thank you so much for your time and any help you might be able to offer.