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Posted by ccf neuro M.D. on June 01, 1997 at 15:28:25:
In Reply to: MYASTHENIA GRAVIS AND PAIN posted by JOSEPH F SZELL on May 26, 1997 at 18:43:00:
BLOOD WORK AND ALL SYMPTOMS POINT TO MG WITH THE EXCEPTION OF SEVERE PAIN IN NECK AND HIPS, REGULARLY REQUIRING A TRIP TO THE EMERGENCY ROOM. TREATMENT THERE IS TORIDOL, MORPHINE AND KENALOG AND PREDNISONE. CAN THIS STILL BE MYASTHENIA GRAVIS?
Joseph, I would first refer you to the question posted immediately below your for some general information about the disease, and for the address and phone number of the myesthenai gravis foundation of America. Pain is not a symptom of myesthenia gravis, except perhaps indirectly from weakness of a particular muscle (like head and neck) that forces one into an uncomfortable position. There is an association between myesthenia gravis and other autoimmune diseases, many of which produce arthritis as a symptom, which can be painful. The other possibilities are alternative diagnoses like myositis, which is inflammation of the muscles (leading to pain and weakness of the affected MUSCLES), or a glycogen storage disease of muscles secondary to a metabolic defect, and certain myopathies. It is of course possible to have myesthenia gravis AND another disease that is responsible for the pain. If corticosteroids appear to be helping with the pain, it may be worth asking your treating neurologist whether long term steroid use for both pain and disease control is an option for you. The information provided in the Neurology Forum is intended for general medical informational purposes only, and actual diagnosis, traetment, and management options for your specific medical illness should be strictly in conjunction with your treating physician(s). If you are interested in a second opinion about your specific case at the Cleveland Clinic, our appointment phone number is 1-800-223-2273 (ask for extension 45559/neurology appointments. I would recommend Dr. Kerry Levin in particular. I hope you find this information useful.
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