Why is a hydrophaelus so hard to detect?
Why when I tell my mother when I was just a young girl that my head was filling up with water she didnt beleive me. It is so frustrating that when I tell people exactly what is wrong with me I have a huge struggle to get things properly looked at.
I am better off not telling anyone anything and thus avoiding all the disappointment throughout my whole life.
For example even now when people see me on the street say to me you look fantastic and lucky you don't have to go to the doctors any more. They are sure surprised when I tell them that is because they can not help me any more only moniture my symtoms. I am so tired of people not knowing anything about the true effects of my hydrophaelus is it so heart breaking .
When I told my mom she said well it was a long bus ride to school that is why you were so tired. It s like banging my head against a wall. When telling the specialists my symtoms.; they say I am not saying that you don't have these symtoms I am simply saying that we don't ha\ve this on record.as a symtom. Yet when I visit this site I get people telling me the same symtoms.
It's enough to make me scream. Which I can not do because my headache would only get worse.
I am so dissappointed with the whole lot of people who are suppose to be supporting we people with our Hydrophaelus problems .
This is a good site one of which I am glad to be a part of because we patience can exchange problems and ideas and dissapointments.
The most dissappointing of all is being in a family who do not listen to anything I say , then csay to me ; why didn't you tell me what was happening?
then going to the Neurologists and they put up a grand stand and say ; you know more than I do and I have just studied for 11 years. In other words they know everything and I should just be quiet. One dissappointment after another which has turned many of us looking to other ways of getting help.
There are always other paths to walk down, in my case run. I have been helped with homeopathic remedies which has me being able to walk without falling face forward.
I also know that when doctors tell you to do exercises for your abdominals that they didn't belevie me when I said I can not lye on my back and the water swishes to the back of the head.
Then as stupid as it may sound rushes to the front of the head much later around 15 mi-20 mins later to really make me sway back and forth. That is the most scary feeling I have had.
I have learned not to listen to the doctors telling me to do exercises. Rather go to a homeopathic who actually open the urinary track to empty the bladder because the brain had not been giving the signal to the closing muscle to open . I'd be sitting on the toilet with a sore kidney and a full bladder but yet could not get the muscle to open. Even telling my body part open , open , and nothing happened.
Frustrated I asked my homeopath what\s up with that? He said; It doesn\t help the brain get the message. The brain has been damaged in areas and has to find new paths to connect to the bottom half of your body.
Yet the doctors all seem to thnk that that all works apart and doesn't need the brain to give the message. How wrong is they are. I am the living proof and yet no one listened to what I tell them.
My mom seems to think that if I walked more I 'd feel better. God, please give these people insight.
The more I do the less good I feel. My brain is 3/4 full of brain fluid. People still have no idea of what that means, even the doctors don't.
When I tell them I walk a dog in the street which makes walking more pleasant and tell him how much , the only question was.; Is it is a big dog or a small one. I had to laugh , I am like the dog whispher on tv , all the dogs whether they are small or big all listen to me.
Which is more than I can say for the people I have around me be it family or doctors.