my daughter has pseudotumor and she had a shunt put in and that saved her from going blind. She still has many many problems from it. If you want to know more just let me know. I can tell you all about it. Some of your symptoms seem like what would have happened to my daughter if she didn't have the shunt in right away. Has anyone mentioned this to you? I think it saved her but it sure did cause some other trouble. write back if you want to know more, I have been through all of this for 3 years now. Good luck
Any help you can give would be greatly appreciated. My email is ***@****
Sorry lol same screenname as here but at Y a hoo
Hey there- just checking in. have you had a shunt put in?
I will try to write you an email tomorrow. I have to get my dad to the hospital for his post aneurysm angiogram at 7am so I'll write all about pseudotumor tomorrow.I'll send it to your email @yahoo
I had pseudotumer cerebri in 1994, it usually happens to overweight women before the age of 50. I can't say I was that overweight at the time, in fact I was on an exercise regimen and losing weight, the PTC was a complete mystery. Like you I had black spots in front of my visual field. The docs found papilledema. At first they thought I had a brain tumor but the MRI didn't find any tumors - did find a couple of white spots - presumably from migraines. I went on Diamox for about 8 weeks. However I also have a hx of dizzy spells, migraines, etc. but it was not from PTC that I know of. You have some really strange symptoms, like the pink rings around the iris?! That sounds like iritis. Have you gone to an internist or rheumatologist and done some bloodwork, like an ESR, ANA, etc.? You have to rule out some kind of autoimmune disorder like lupus also that could affect the brain and eyes. If thats all normal then your neurologist should keep close tabs on you and your symptoms and follow up with -...I know..sigh...more tests.