I started having a tremor six weeks ago. There’s no resting tremor, but can hear a pulsation (7Hz) in both ears when there is low pitch background noise. My tongue and jaw have the tremor, and I occasionally stumble on words because I can’t control my tongue quite as well. I have gotten uncoordinated as my fingers, arms, and hands overshoot targets and over-rebound. Typing and playing the piano are very difficult. The tremor is in my back and both arms, and my legs feel a bit wobbly. I also get random twitches and short small occasion involuntary movements throughout my body. Finally, I feel oversensitive to touch, and I am tired most of the time. Also, it takes more concentration to focus my eyes, and my balance (even when I sitting) does not feel right.
I have been to a neurologist who diagnosed me with Benign Essential Tremor. He sent me for extensive blood work, an MRI, and an EEG. There were no abnormalities in these test results. He told me that I do not have the right symptoms of any of the really bad stuff (like Parkinson’s, ALS, MSA, or MS). He put me on 400mg Gabapentin, 75mg Lamictal, and 0.25mg Xanax. He has referred me to the Cleveland Clinic for a second opinion, but says he is 95% certain that I don’t have a life threatening condition. Needless to say, I am scared as hell. I find it hard to concentrate, and am low energy. I do not know if the concentration problem is from the underlying condition, the medications, or my anxiety. Also, I was referred to an ENT to look at my throat as the tongue tremor makes it a little difficult to eat some foods (I find pieces of lettuce or seeds in my mouth (not in my teeth) long after I have eaten).
Has anyone out there had these symptoms and had it resolve to either Essential Tremor or Benign Fascilation Disorder? Are there any experts who have seen a case like mine before? The neurologist assures me that I am not going to die, but I may scare myself to death.
Thank you for your help.