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Muscle Soreness

Reading and responding to some of the other messages on this Forum prompted me to write my own message. Starting in January I thought I had the flu. I had all the classic symptoms; tiredness, weakness, achy legs and hands and overall yuck. The symptoms gradually decreased but then every once in a while I would get these strange shivers/tingling going down my spine out my arms and down my legs. My hands would be weak and clumsy. Gradually those went away and now I am left with a muscle soreness in my legs that is with me constantly. I have had this muscle soreness for 8 months, 24 hours a day, 7 days a week. I can't remember the last time I have moved my legs without them feeling sore. Sometimes (one or two times a week) they feel so weak, like i'm recovering from the flu, that I just have to sit and put my feet up because I don't feel like doing a thing.

I have done the ususal MRI of brain and spine, EMG, blood tests, Lyme tests - all negative. Physical exams are normal. I have left many a doctor stumped.

My neuro doesn't seem to think it's MS - but he can't be 100% sure. (He doesn't think its time for a spinal tap). The only other two symptoms I have is the occasional weakness/heaviness/clumsiness in my hands, but this lasts only a couple of hours and leaves. Also, I have been feeling lightheaded lately (but I also got a new perscription for contacts).

I'm sick of going to doctors - and one of them suggested that I could have had a viral infection in January and it's just taking an extra-long time to recover (hence the muscle soreness). What do you think? Does this sound like beginning symptoms of MS or just an extra-long recovery. Health wise everything else is fine. Should I start the round of doctors again or should I wait and see? Thanks in advance to any advice from anyone!!
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A related discussion, Is anyone still out there? was started.
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is open
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just checking to see if sight is still open.
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Gee,Elizabeth has almost same symptoms as I do.  The stress of try to find out what you have is enough to drive you mad.  The Dr.  who just do the same old proceedures.  I now look into the internet for ansewers and still see Dr.s not many who care next it ucla los angeles, california. symptoms weakness, soreness in arms and legs bending to do laundry ,feed the dog, cooking , changing my 4yr olds clothing, changing the radio station, you name it it weard and bothersom. but i will find an ansewer next blood test is Anti-Acetylcholine Receptor Antibodies, CBC with differential, iron studie, Ferritin Free T3,Packed/spun red cells for minerals, They say possible Fibromylgia I dont think so and they also are not sure The nurologist found slowness on the left side of the brain what ever that means.  I am upset at him he could tell me why not sure maybe an infection or virus.  Well I now have been told I do have herpes 1 and 2. this is also a pain as well 2 is not in the private parts thank god the sore is painfull like singles, not to mention night sweats maybe 1or2 nights in some months. they also cant give me ansewer to that either. I thought possible change of life they say no hormones are ok. gee, this is driving me wild!!! if a Dr. or some smart person know anything please email me this is something else! thanxs email is www.***@****
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thanks for the comments.

CCF Neuro MD
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Elizabeth,

   I hope and pray that you find answers.  Good luck and keep us posted.

Sincerely,

Christine
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Yes Hillary, I do care what is going on with my post but was not quite sure how to respond to all those messages.

Thank you all for your opinions and comments and well wishes. The circulatory issue was brought up to me once before and I have made an appointment with my GP for a follow-up. It has also been brought to my attention that my birth control pills might have something to do with it. Has anyone else heard that? I switched (around the same time my soreness began) to the new birth control pill called Ortho-Trycylene (totally spelled wrong). I have an appointment with my OBGYN in a couple of weeks, so I plan to follow up with her about that.

Thanks again for your comments!
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Has anyone noticed that Elizabeth is NEVER on her own post anymore?  Is she well?  Gone?  Doesn't care?  Why is the post taking up valuable time and space when the poster doesn't give a darn?  I'd really like to know.  Don't everyone go jumping on me like with Laurie.  It's JUST a simple question!  I wish EVERYONE well and my question DOES have to do with this post!
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Christine--I apologize to you for the harsh remarks.  Elizabeth--I apologize to you for taking up space on your post.  Laurie is right--We should all help one another.  Not be mean.
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Christine--I apologize to you for the harsh remarks.  Elizabeth--I apologize to you for taking up space on your post.  Laurie is right--We should all help one another.  Not be mean.
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Christine--I will apologize to all.  PLEASE let's all just stop now.  I hope EVERYONE feels better and gets well!  Let's none of us waste time and enregy on anger, disgust or anything else.  I apologize to all.  We are all friends to help one another.   Okay?  Now back to muscle soreness.  I hope all is okay now.
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He said he would stop answering postings.  That's all.  I also found my previous actions to be out of line way back when.  As for a personal relationship?  No... he just helped me through my massive craniotomy with a lot of good advice and support.  It was tough and so was the follow-up stereotactic radiosurgery.  Since he is such a good physician, I painted one of my characters with his likeness and devotion.  I've said my piece... now I leave it all up to you to pass judgement.

C?    
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I really think if Christine is having a personal relationship with the neurologist she shouldn't be posting in here at all.
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Christine are you flat out nuts!  Why all this posting about astrology and your "novel?"  Go be disgusted somewhere else and if the neurologist is disgusted it is by the likes of you!  Steve is right, you need to wander into the Psychiatric Forum!  As for me, I only tried to help and am not apologizing to anyone!
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Christine

I did not say you needed to apologize to anyone.  As someone who is suffering from a problem similar to Elizabeth's I read her post but do not post myself, not wanting to take up space someone with a different problem could use.  It can take a LONG time to post here and we should not intrude on a post and attempt to make it someone else's.  I never even said Paticipation should apologize--I just said that someone with that attitude should get lost.  There are plenty of people with SERIOUS problems on this Forum and people with Participation's attitude aren't needed.  As far as the Neurologist goes, how do you know he's disgusted?  Do you have personal contact with him?  He simply said he hoped we all felt better after getting it out of our system.  Perhaps he is amused.  I don't know--I don't know him and I don't think it's fair of you to say he's disgusted when you don't know if he is.  I do think the person who posted above you is correct in saying he was trying to be compassionate, but I also think that by answering questions on someone else's post, it changes the entire character of the post, unless that question pertains directly to the original poster's problem.  As you can now see, many messages have now been posted that do not pertain to Elizabeth or to sore muscles and I have noticed that Elizabeth has not posted a comment for a long time now.  Perhaps she became disgusted with all the talk of astrology--there ARE astrology message boards, you know.  This Forum is not for amusement--the people here have real problems, problems that are threatening their very existence and are far more serious than what astrological sign they happened to have been born under.  Frankly, I think you put the Neuro in a bad position with your constant comments and questions about astrology--I think that would have disgusted him far more than comments about the integrity of the Forum and it's posts about which he probably cares a great deal. Christine--I apologize to Elizabeth and to the neurologist, who I am sure was just trying to help.  I really don't think you should LABEL him as disgusted when HE did not say he was, nor do I believe you have the right to be disgusted yourself.  This is not your post.  Elizabeth--I apologize, but I was only attempting to understand why the subject should be diverted from your post and your problem.  CCF Neuro--I apologize if you are disgusted, however, I think it would take a LOT more than this to disgust you!  Please let us know if you are, indeed, disgusted.  Now, can we PLEASE stop bickering and return to the subject of sore muscles?

Elizabeth--I have no answers for you.  I have tried everything.  Had all the tests--negative.  Tried exercise, not exercising, cold packs, hot baths, rest, massage, acupressure, acupuncture, tranquilizers, antidepressants, green tea, lotions, vitimin B-12, calcium and magnesium--nothing works and I am as sore as I was months ago when I first noticed your post.  If anything helps I will let you know.
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To All:

I apologized for my intrusion way back on September 23, 1999.  Participation isn't the issue here.  The issue is why did Laurie even make such a comment after Elizabeth's post was re-established?  I think Laurie was wrong for making her intrusion and so was Participation for returning the snideness.  You both need to apologize to Elizabeth.  Neither one of you made comments concerning her post.  CCF Neuro RPS is disgusted and so am I.  Elizabeth?  I'm sorry for the second time.  Please accept my apology for intruding.

Christine

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I hope that everyone feels better about getting their feelings out in the open.  I will stop answering postings.

CCF Neuro MD
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Just putting in my two cents.  I think when someone establishes a Post, as Elizabeth did, everyone should be welcome to voice their opinion regarding the poster's problem only, or we lose track of what the post is supposed to be about and the poster gets no benefit.  I do think it is extremely rude to post a question on someone else's post unless that question was posted my mistake.  I am sure the neurologist was just trying to be compassionate and answer as many questions as possible, but I really do thin we need to stick to the original post or the benefit of this message board is lost for all of us and not just the original poster.  Steve is right.  And Participation, I think it is, I do think you owe Laurie an apology.  You were extremely rude and rudeness is very uncalled for here.  We all have our problems but we must respect one another and that means respecting their post.  So, I think Laurie and Steve are right and this should be about Elizabeth's post.  Just my two cents.  Thanks.  By the way, I agree with Steve about the circulation.
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Sorry Paticipation, but I have to agree with Laurie.  Yes, threads DO open up a myriad of possibilities, but those possibilities should have to do with the original poster's problem.  People should not attempt to introduce new problems and questions on another's post.  I can sympathize with all those who are ill and want to post but can't, but his thread is about Elizabeth and muscle soreness and I think we should all have the integrity and responsibility to Elizabeth to stick with that subject as long as this thread exists.  You, Participation, sound like you need to be posting on the Psychiatric Forum.  All that bottled up anger is going to harm you some day.

To Elizabeth--If you have cramping in your legs as well as pain, I'd investigate a circulatory problem.  Also, if they feel worse after exercise, it could be circulatory.  Ultimately, though, exercise is what helps unless the problem is in the deeper vessels, then you may need medication.  Good luck.

Steve
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People like you have no right to impinge on someone else's thread--which probably took them a LONG time to establish.  People like you are also why THIS forum has no money and has to go begging.  No one wouold miss me?  Well, no one has needed YOU so far so get lost!  The subject is ELIZABETH and SORE MUSCLES.  If you don't have anything to say regarding THAT subject--you're not needed OR wanted.

Laurie
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Forums open up a myriad of different subjects within one idea.  If you don't want to participate in the myriad qualities of a forum... then you don't have to.  We won't discriminate!  An we wouldn't miss you either.

Participation
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To the CCF Neuro

Why are you answering questions not pertaining to the problem of the original poster in the thread?  Shouldn't they attempt to establish their own thread as others must do?  This is discrimination against those who have enough integrity not to intrude on another's thread!  I was going to sponser a thread but after seeing this...I think not!

Sincerely,

Laurie Oates
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Dear Mary K:

Fibromyalgia is a clinical diagnosis that entails trigger point pain, pain that is diffuse, fatigue, etc.  We usually do not diagnosis and treat fibromyalgia and leave that up to our rheumatologist colleagues.  The etiology of this problem is unknown, as treatment is also variable.  Chronic disease can and often does cause depression, this is especially true with chronic pain.  I would see a rheumatologist to see if you have fibromyalgia.

Sincerely,

CCF Neuro MD
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I would like some information of fibromyalgia .Had X2 surgeries on my left shoulder for a torn labrum have a 40% disability cant use the arm for anything over my head. or even extension.  have numbness and tingling in my pinky and thumb. get migranes and some days find it very difficult to function suffer from depression and taking meds have finally after seven years of chronic pain saw a chiropractor. I know its only temporary but i do feel better still have muscle pain and weakness but every MD. i have seen seems to blow me off. losing controll. no one will listen .  if you can help please i could use some on to .
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