Aa
Aa
A
A
A
Close
Avatar universal

Neural Tumor - Brachial Plexus - Can't Find Surgeon - Pls. Help

I have to get a neural tumor removed from my brachial plexus (it's in my armpit).

My neurosurgeon doesn't have the experience to remove it, and is having problems locating one. Apparently there are only a handful of neurosurgeons with this specialization.

Where should I look? It is possibly a neurofibroma/schwannoma, and at last measurement was 4 x 3 x 2.8 cm.

It's starting to cause major problems in my whole nervous system, pins and needles everywhere, so I need to get it out now.

Any help would be great.
Thanks.
6 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Hello, my husband has a Schwannoma in his armpit and we are aggressively looking for a physician. How is everything working out? I need to find a doc immediately.

Thank you,
Melissa
Helpful - 0
Avatar universal
Hi.

Try contacting Joshua Hornig, MD at MUSC in Charleston SC. He's an excellent surgeon and its a top-notch facility. People from many different countries fly out here to get treatment and surgeries.

http://academicdepartments.musc.edu/facultydirectory/FacultyDetails.aspx?facultyId=4125

http://www.muschealth.com/ent/facultystaff/hornig.htm
Helpful - 0
Avatar universal
I can't guarantee that my surgeon is the right one for you, but here's my experience: I had a schwannoma tumor removed from my brachial plexus two years ago -- as far as I can tell, the surgeon did a fantastic job. On the latest MRI, the tumor is completely gone and isn't returning. My arm and hand are improving (for example, I can now type with both hands). Eugene, Oregon

If you are interested, I can find out if she would see you.

Helpful - 0
Avatar universal
TN, near Nashville. I saw the top neuro here, and apparently there are no docs in the area that do this surgery. I haven't been able to find any outside of Mayo and John Hopkins that are neurosurgeons with brachial plexus specialties... That seems to be the holdup. Several neurosurgeons deal with neural tumors, just not brachial plexus. If you don't mind sharing, where did you find the info?
Helpful - 0
749758 tn?1233245894
Where are you? USA? Where? What State? I looked up your condition on the internet and found several doctors who have written papers on the condition. You may want to start there.
Helpful - 0
Avatar universal
Anyone?

I guess I should give up on the Neuro forum here?... Second time I've posted with no responses.

Helpful - 0
Have an Answer?

You are reading content posted in the Neurology Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
5265383 tn?1669040108
ON
1756321 tn?1547095325
Queensland, Australia
1780921 tn?1499301793
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease