Neurological Concern (Inner Tremor, Sleep Shakes) Mystery Illness

[bartleyk]

I am a 29 year old, white male in Michigan, USA.

As many visitors here might experience, I have had an array of unusual neurological symptoms over the past 8 months.  I have seen several doctors and specialists (including second opinions) to include neurologists, infectious disease docs, etc.  I have had pretty much every test under the sun (HIV, MRIs, EMGs, EEGs, Sleep Studies, Western Blot, and the list goes on and on) and everything has come back normal except for 1 and I will go into that further down.

Ok, so let's get on to my symptoms.  At times I have this feeling of an inner tremor of sorts.  It is real hard to explain to someone who hasn't felt it but I would correlate it to having an extreme feeling of a caffeine buzz.  I actually feel my entire upper body tremor internally for a period of time and then as mysterious as it appears it just goes away.  There is really no set schedule on when it comes and goes other than at night which I will get to next paragraph.  It thus far comes and goes randomly but appears to be coming on more frequently as of recent.  The odd thing is that if my wife touches my arms or stomach or chest, etc., she cannot feel a tremor type sensation, I only feel it internally.

Having said that, at very minimal times will I actually notice a difficulty holding my hands stable if I try to hold them in a certain, unrelaxed position.  For example - if I try to hold the phone to my head at just the right angle, sometimes my hands will tremble trying to hold it, but at other times, no problem at all.  I only have the problem when I have the internal tremor but most of the time I have the inner tremor I still don

[sillyrabbitl]

I woke at 4:21AMwith a heavier inner tremor.  Thinking perhaps medications have caused this "vibration" I got on computer and started searching.  Have had EKG with family doc, recently saw a local cardiologist. "Its NOT your heart".  I can feel my pulse at a normal rate.  This started in 4/14.  It happens  as I wake. subsides, disappears  when I get up.
I am 77 and in reasonably good health tho 30 lbs overweight. I take meds for arthritis, GERD and cholestal , anestrolzole following B C. surgery in 8/13. I take one a day vit., D3, Biotin, Glucosamine/chon. Recent bunion surg has prevented regular exercise, Should be okay soon. Normaly excercise 5 days a week alternating  water exercise with Silver Sneakers classes, take painting classes, belong to a poetry group, Red Hats, recently took 4 classes in researching genealolgy so my brain is not idle.
I am amazed at the number of people who share these hard to diagnose symptoms. Will get busy on nutrition since I am addicted to sugar.

[toby1101]

I think i have finally found my answer. I have hemochromatosis. My ferritin level is over 1000. This attacks internal organs especially thyroid and adrenal. My hematologist claims it can cause my tremor issue.   I have to give blood until my iron gets to normal range. It is genetic disorder. 1 million people have it. Just have to give blood now and again. Hope this is it!  Another person on another site also found the same. Will know in about a month i suppose.

[deborax]

i'm a 61 female and have all the same issues you described. nothing ever shows on tests. i do have fibromyalga and so far there isn't a doctor i've been to that has been able to tell me what this is.

[crmkar]

check your thyroid, i have Hashimoto's hypothiroidism and it gives me those inner tremors that are very bad

[crmkar]

check your thyroid, i have Hashimoto's hypothiroidism and it gives me those inner tremors that are very bad.

[toby1101]

Amatriptyline is my savior. You only need 10 mg and it reduces the issue enough you can sleep. I think it is helping me get better as well.