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Nystagmus and Neurological Conditions

I'm 23, 250lb, 5'7".  Recently (December), my partner noticed that my eyes were jittering back and forth noticibly.  I went to my optometrist (May) who referred me to a neurologist.  He had seen two other cases of this "acquired pendular horizontal nystagmus", one caused by a brain tumor and a lot of chemotherapy and the other was a case of MS.  I have frequent headaches (daily) that feel like pressure behind my right eye and goes up to my head, numbness in my right thumb for the past few days, "pins and needles" in my arms, my legs feel weak and they buckle out from underneath me during regular walking, I'm nauseated quite frequently, I get severely dizzy, and I have problems speaking (stuttering, slurring a little bit, and combining words together).
Firstly, what should I expect from a visit to the neurologist?  Secondly, what could these symptoms point to other than MS or a brain tumor?  And lastly, what treatments can I seek out to help control these symptoms?
Thanks,
Brenna
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Avatar universal
Hi. I have the eye condition nystagmus, i was born with a little albinism in me and thats the cause of my eye movement i've had it since bitrth and all threw out my dr vistits they tell me mine is untreatable, however it may not be the case for you since you barely started noticing it or haven't had the condition before. I know for a fact that it has to do with the muscle that attaches to the back of the eye ball since mine isn't attached that causes the invouluntary movement. I also understand where your coming from with the headaches as well.  I had been getting headaches aout everyday since last november but ignored them and just took advils april of this year i went to urgent care cuz i was seeing flashed of light and my head was really pounding after telling my dr how often i had been getting them he said they were migraines. i went in for a ct scan and my brain came back normal but i do have a 3.5cm  cyst in my sinus area. typically they say they shouldn't trigger off headaches or be a bother but your symptoms sound alot like mine. im taking a preventative medicine for the headaches. since april drs have prescribed me 6 different medications some pain killer and some preventative but these too can cause what are known as rebound headaches. My last visit with the eye dr said the headaches didn't have anything to do with my eyes. still haven't figured out why im getting them.

something that may be heplful is to train your eye sounds silly but my parents did this with me for about an hour a day cover one eye using like a pirates pach and the eye will focous. just be careful not to strain them.  

talk to your dr about the different types of headaches and medications used to prevent them.

I also learned in one of my visits that ceratonin (sorry for the spelling) a chemical in the brain if it produces to much can cause to headache and the feeling of pressure. its a chemical imbalance.

hope it helps
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620923 tn?1452915648
HI , there r other causes of this besides what ur eye dr mentioned.

U will need a brain and cervical spine MRI, but I am sure u will find the cause.

Other conditions can be nething spine related, if u have a disk putting pressure at the right spot for ur optic nerve then this could be a result....it could be a syrinx again just at the right location to put pressureand get this symptom.

Let the NL do all the tests and wait......stress can make ur symptoms worse so try to relax.

"selma"
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