I'm very curious about this. Did you end up getting the procedure? How did it go?
Thank you so much Lisa and Nancy!! I will get in contact with y'all! Any help with this decision would be appreciated!!
I have read your post and I cannot empathize enough with everything. I am the woman Nancy was telling you about that just had the stim implant. please go to the website Nancy references above and send me a private message and I will send you one back with my telephone number. I would love to speak with you and answer any questions I can and tell you about my experience. I am not quote up to typing a long blog at the moment but really would love to speak with you. I just joined this site to post to you. I will see if I can PM you here, but if not please co tact me at FPA website so we can talk. hope your pain level is bearable. I am lisafree2 there
I have Trigeminal Neuralgia and go to a website called http://www.fpa-support.org/
There is a woman there with ON that recently had a trial stim implanted and had 70% pain relief. She said it was an occipital neuromodulator. (they are doing some trials to use this for severe migraine sufferers because the occipital nerve is the nerve affected with migraines.) She had her surgery done in Pittsburgh, PA.
Her blog is at URL: http://forum.fpa-support.org/forum.aspx?g=posts&t=2724
You have the ability to send a personal message on that site (a "PM") and she would be able to give you more details. She really researched the device and the surgeons before she made the decision to have it done.
Wishing you the best!