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Occipital/Trigeminal Neuralgia Questions
15 Year Old Male
A few months ago, I had what I believed to be an intense migraine. I was very light sensitive and needed sunglasses for a day, and constantly felt sick. The next day the symptoms apparently cleared up. However, that night when I began masturbating, once I became close to orgasm I began feeling a horrible pounding feeling in my forehead along the brow line. It lasted for 20 minutes or so, and I was rolling around on the bathroom floor, horribly in pain. It eventually turned into a normal migraine, and I needed the sunglasses still. However, the migraine did not go away, and lasted for several months. I found that this pain came whenever I attempted to urinate or masturbate, and that it would sometimes be on one side of my face, in the eye and the area above it, sometimes the other, and sometimes both, with the pain increasing over the time I spent doing either of these activities. I attempted to masturbate perhaps once a week for a few weeks, and each time the pain was worse. It eventually got so bad that the pain started as soon as I touched myself, and if I continued for about 30 seconds it got horrible. On the very last time I cracked, rolled around on the floor for 20 minutes and ran upstairs, begging my mom to kill me to clear the pain. No one knows of my rather dirty habit, and I cannot inform them as my parents have shown themselves to be extremely against it. Once school was over, I changed my sleeping schedule around. I began waking from 4-11 pm and sleeping from 5-2 pm, receiving 6-10 hours a night. Generally I would wake around 5 or 6 and sleep around 8 or 9. This fixed the migraine problem, however I became increasingly light sensitive, and could no longer have too much light without sunglasses. I continued to masturbate and use the restroom regularly throughout this period without any worry. Sometimes though [generally around 1 time a week] I cannot bear the light and feel that it is ripping through my eyelids and dark glasses, and need to spend the day in the dark. However, just recently, the pain returned while masturbating and urinating. I find if I move my shoulders and neck back it partially helps dull the pain if I do it close to the start of the pain. I looked it up on the internet and found that I had the symptoms of both Trigeminal Neuralgia and Occipital Neuralgia. I did not believe it to be a coital headache because it wasn't active enough, but it could be. Also, I successfully masturbated and experienced an orgasm properly while lying on my side. The pain has mostly gone away, but not completely. Also, it sometimes comes on its own [the feeling of trigeminal neuralgia], especially when I am in the light. I have been to several doctors, however I did not mention all of the details that I can here, but with most of it [leaving out the masturbation but still describing the pain felt most often when using the restroom] fully intact. They either sent me to another doctor or believed it to just be a migraine and photophobia. This is badly affecting me and I need help identifying and fixing this problem. If anyone has further questions, please ask me, as I probably forgot important information anyways.
Thanks
JSPP
My email if necessary: ***@**** [Please do not send messages to the email address I registered the account under]
A few months ago, I had what I believed to be an intense migraine. I was very light sensitive and needed sunglasses for a day, and constantly felt sick. The next day the symptoms apparently cleared up. However, that night when I began masturbating, once I became close to orgasm I began feeling a horrible pounding feeling in my forehead along the brow line. It lasted for 20 minutes or so, and I was rolling around on the bathroom floor, horribly in pain. It eventually turned into a normal migraine, and I needed the sunglasses still. However, the migraine did not go away, and lasted for several months. I found that this pain came whenever I attempted to urinate or masturbate, and that it would sometimes be on one side of my face, in the eye and the area above it, sometimes the other, and sometimes both, with the pain increasing over the time I spent doing either of these activities. I attempted to masturbate perhaps once a week for a few weeks, and each time the pain was worse. It eventually got so bad that the pain started as soon as I touched myself, and if I continued for about 30 seconds it got horrible. On the very last time I cracked, rolled around on the floor for 20 minutes and ran upstairs, begging my mom to kill me to clear the pain. No one knows of my rather dirty habit, and I cannot inform them as my parents have shown themselves to be extremely against it. Once school was over, I changed my sleeping schedule around. I began waking from 4-11 pm and sleeping from 5-2 pm, receiving 6-10 hours a night. Generally I would wake around 5 or 6 and sleep around 8 or 9. This fixed the migraine problem, however I became increasingly light sensitive, and could no longer have too much light without sunglasses. I continued to masturbate and use the restroom regularly throughout this period without any worry. Sometimes though [generally around 1 time a week] I cannot bear the light and feel that it is ripping through my eyelids and dark glasses, and need to spend the day in the dark. However, just recently, the pain returned while masturbating and urinating. I find if I move my shoulders and neck back it partially helps dull the pain if I do it close to the start of the pain. I looked it up on the internet and found that I had the symptoms of both Trigeminal Neuralgia and Occipital Neuralgia. I did not believe it to be a coital headache because it wasn't active enough, but it could be. Also, I successfully masturbated and experienced an orgasm properly while lying on my side. The pain has mostly gone away, but not completely. Also, it sometimes comes on its own [the feeling of trigeminal neuralgia], especially when I am in the light. I have been to several doctors, however I did not mention all of the details that I can here, but with most of it [leaving out the masturbation but still describing the pain felt most often when using the restroom] fully intact. They either sent me to another doctor or believed it to just be a migraine and photophobia. This is badly affecting me and I need help identifying and fixing this problem. If anyone has further questions, please ask me, as I probably forgot important information anyways.
Thanks
JSPP
My email if necessary: ***@**** [Please do not send messages to the email address I registered the account under]
Thank you very much for your reply.
I will mention it to my doctor. I am on inderol and have removed all preservatives and other migraine triggering foods from my diet, and the frequency has dropped, however the intensity has unfortunately skyrocketed. The inderol unfortunately does not help much.
Thanks again
JSPP
I will mention it to my doctor. I am on inderol and have removed all preservatives and other migraine triggering foods from my diet, and the frequency has dropped, however the intensity has unfortunately skyrocketed. The inderol unfortunately does not help much.
Thanks again
JSPP
First off I don't think that mastrubating is a 'dirty habit' or something to be ashamed about. It's normal for people to be shy about, but it's also something that the majority of the population participates in. And really? It's normal and it's ok. You should mention this to your doctor - they should just take it in stride without blinking - but it could help them determine more of what to do to treat you.
I find that if I have a mild migraine that mastrubating can make it worse - I had a migraine for 8 months pretty much straight and it was miserable. I also have trigeminal neuralgia and it is completely seperate from my migraines and it isn't light sensitive.
Migraines really really suck. Are you on any preventitive medication? Have you altered your diet? Excluding all 'migraine triggers' from your diet can have a huge impact on how many you have. There is a great book called 'Heal your headache - the 123 programe for taking charge of your headaches'. This was a book that my neurologist told me about and it made a fantastic difference. As well there are abortive medications that you can take that help as well.
Hope that you are doing better soon. Keep talking to the doctors - and don't be afraid to tell them everything even if it's a bit embarrassing.
I find that if I have a mild migraine that mastrubating can make it worse - I had a migraine for 8 months pretty much straight and it was miserable. I also have trigeminal neuralgia and it is completely seperate from my migraines and it isn't light sensitive.
Migraines really really suck. Are you on any preventitive medication? Have you altered your diet? Excluding all 'migraine triggers' from your diet can have a huge impact on how many you have. There is a great book called 'Heal your headache - the 123 programe for taking charge of your headaches'. This was a book that my neurologist told me about and it made a fantastic difference. As well there are abortive medications that you can take that help as well.
Hope that you are doing better soon. Keep talking to the doctors - and don't be afraid to tell them everything even if it's a bit embarrassing.
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